This Is MS Multiple Sclerosis Knowledge & Support Community

Sorry, misread. Liver damage. But really, my point about Avonex is that not one person has ever claimed that it's a cure for MS. All the older drugs do is try to slow relapse rate. When they work. I don't think they can be proven to slow progression. But I wouldn't know, I'm not a neurologist, but j...

Whatever the cause is, or treatment, no one has ever claimed that Avonex is a cure for MS. So your point is redundant. It all depends on how you react to whatever you are taking pre-CCSVI treatment. If you tolerate Avonex well, then you will most likely continue taking it. There is no evidence that ...

I was just idly thinking about that. Gulf War Syndrome (as far as I recollect) seems to have similar symptoms to MS, but with more breathing difficulties. If you think about it, if MS numbers have risen due to people staying inside their houses more, due to air-conditioning, cultural changes etc, th...

Growing up in Yorkshire, I think I did get out a lot as this was the 1960s and babies were out in the sunshine as much as possible. Here in northwest Spain, I asked my new neuro how many MS patients he has and he has 9. He's the only neuro in a large area. Must be the sunshine then. It's an outdoor ...

What I'm finding difficult to understand is that MS should be as rare as hen's teeth in Kuwait. It may be that people aren't getting enough vitamin D3 through staying out of the sun, but statistically, MS shouldn't be there. It is extremely rare in equatorial countries. It's also less common in coun...

Hi, Your second paragraph may be true, but their research was also concerning relapse rate. My progression has been very slow, but each relapse has hit me hard, like a sandbag to the back of the head - sudden too. One minute I'm fine, the next I can't move. So in my case, I feel that the reduction i...

And makes just about no difference at all to neurologists working in the not-for-profit health providers. My neuro sees few MS patients as it is pretty rare here. The majority of his patients are over 75 and have had strokes or dementia/Alzheimers. In our area there are about 10 people with active M...

I have MS. I have been incredibly fortunate in that my particular form of MS has responded to treatments well. I take Rebif - it cut my relapse rate from every 6-8 weeks, to 4 in ten years. I'm really thankful that it's done this. But, I also force myself to take a lot of exercise, which improves my...

Hi, I'm not particularly impaired either. I'm a fairly classic RRMSer and have had disabling relapses, but have always recovered mobility (although at times it took months). The pain started within two months of diagnosis (2000). It's located in my lower limbs, below the knee and elbow joints and if...

And he's been writing and saying the same anti-drug views for as long as I can remember and I was diagnosed in 2000. In my case, I feel the issue is simple. Relapses=lesions=symptoms=trouble. But that's just my body and my view. I had an MRI last year, the first since 2001 and I had 4 more lesions a...

Hi, I have been thinking about this question for a while. My theory (for what it's worth) is that if your MS is quite active and then is well controlled by taking Rebif, that it will become active again if you stop taking it. Maybe not immediately, but it makes a relapse more likely to happen. Which...

Like the other respondees, I don't like that I have to take it, but I'm very grateful that it's worked.
10 years this year and no horrible flu-like side effects, just injection site marks. As I'm not (and never will be) an underwear model, this isn't a big issue for me.
xx

Me. I've been on Rebif for 10 years this year. Okay, I get huge red injection site reactions, but this beats relapses. I've always had the reactions, but less on Rebif 22. I did try the lower dose for a while, but my neuro noted that I was getting more exacerbations and so I went back on to Rebif 44...

That was really interesting and it's good to read that I'm actually taking the best supplements already to help.
It could explain why I've done so well on Rebif.
Again, thanks.
K Roberts
x

I'm sorry you take exception, but I was posting about the situation in the UK. It was a scheme that was brought in so that people with RRMS could have access to the DMDs. The statistical gathering was flawed and incompetent, but I think it was intended to be that way to right an injustice so that on...