This Is MS Multiple Sclerosis Knowledge & Support Community

hope410 wrote:

NotFound wrote: I tried when I gave up my spot.

Just curious, why did you give up YOUR spot?

Because Poland responded with an earlier date.

suzq77 wrote: My IR found that my right sigmoid sinus is almost completely occluded

Sorry for off the topic question - by which test did your IR determined the sigmoid sinus occlusion?

I need to vent. This woman I know who has an appointment on August 6th in Albany is going to be the death of me (It's a good thing I rarely see her. She called approx 3 weeks before my June 1st call to the clinic but that's a whole other issue. While (what is the waiting list 7-800) wait anxiously ...

Andrea,

You might want to re-post to Dr. Sclafani's thread, because I believe he only answers the questions posted there.

Katie41 wrote:NotFound: MT is diagnosed with MRI or veinogram. It may be diagnosed other ways too. I'll ask the dr. when I go for two week checkup.

Thank you again Katie. So it would be an MRI of lower body, right?

Thank you Katie.

I don't seem to find how MT is diagnosed - does it have to be venous catheter?

I am still not giving up on finding my MS to venous blockage issue (so far - no CCSVI as per Poland, with good flow through my both jugulars)

Where did you have the procedure done? Was the entry on the left or on the right femoral? Do you think something was missed as far as venous blockages (i.e May-Thurner)? Are you planning to re-test using different point of entry / more thorough testing? Did you get tested for Lyme? Did you test posi...

Sorry, wrong topic (how did THAT happen?)

I am with Dave. I don't go out of my way to cook and prepare. Trying to mimic "standard" foods and inventing all kinds of substitutes drains me. If I am hungry, there are always raw veggies and raw fruits around the house. If I am VERY hungry - I throw a whole potato in the microwave. When...

after following my body for these years with different lyme protocols, i understand how complex chronic neuro lyme is. Alex, you seem to be ahead of the game. Where as CCSVI testing was my first step to trying to figure out this MS puzzle and I am looking into Lyme only now, you are already looking...

My lyme dr said MS is actually late stage lyme... I dont believe that but i do believe some people that think they have MS actually have Lyme....but i think some long term lyme people that are told have they have Lyme actually have MS See, the very definition of MS is not the definition of illness,...

Whitey wrote:
If we had known about the Lyme disease befofre we made our trek to Poland we could have saved about $10,000 and 5 years of MS treatments which don't do very much. I'm only hoping to save other hassle, money, and suffering.

My sentiments exactly

Hold on guys! I had my first episode 6 years ago, numbness (active lesion) and then 2 weeks after, gone. Now I can fell some numbness at the same place. Come on... Tell me that it could'nt only be Lyme desease. It could. It could also be Lyme + some thing else. Yet, it could have nothing to do with...

If you tested positive for Lyme Disease, then you should first get treated for lyme before you go any further with CCSVI. Almost all of the symptoms are the same as with MS, so it's possible that you don't even have MS. The treatment is a few months of antibiotics. If you don't get better, then you...

Thanks for the big post detailing your conversation with specialists. I appreciate you looking out for your doctor and not revealing his name. Now, if you were from California... I might not have appreciated it so much (because THAT would mean the doctor is local to me) :lol: Joking of course. The d...