This Is MS Multiple Sclerosis Knowledge & Support Community

Wow what a nice story!

Hi, I am French and I am very disappointed to see that things are not moving at all in my country.

However, I really enjoy reading your story. Congratulation to Mel! You made it! This story brings much hope for people like me.

Thks so much
Cheers

Hi Kar1, I was also diagnosed with CCSVI and I also have breathing issues One week ago, I tried to sing a song I like but I could not as I could not breathe enough! The way I speak is also affected by this problem. The idea from Jozee looks interesting as I saw many soccer players using small bandag...

Hi L,
I do practice IBT (my bed is raised since a few weeks) but I still feel bad after a long rest. So I guess I’d better avoid long naps

Hi, I noticed that after a very long rest, my ms symptoms get worst. On Saturday, I usually get up late and enjoy a long nap. If I decide after that, to go out for a while, I feel terrible, I can barely walk and I also feel I just want to get back home. I remember the neurologist telling me “ you mu...

Andrew and others, I dont know if I should be starting a new on this. This is something that is bugging me about IBT and CCSVI. In the light of CCSVI discovery, does anyone here think that there is a need to relook at ITB. That is, is IBT most beneficial for patients with: 1) issues in IJV 2) exter...

Seen on the French forum (ARSEP): Link: http://www.gizmag.com/ccsvi-multiple-sc%20...%20oni/13447/ (one guy spoke about what’s going on in Spain regarding MS and blood flow) I am an M.S patient for 18 years. And an M.S researches for 10 years. I am electronic engineer and a university teacher. If yo...

Migrain was also my first ms symptom. However, these migrains were somehow kind of unusual. They were occurring every day/several times per day at the same time with the visual aura and then nasty one-sided headache. During this difficult time (6 months) I had my first relapse, followed by a progres...

Hi there,

Yup, similar story happened to me. I had a car accident in 2007 and I was diagnosed with pms in 2009. Although I was not hurt physically in the accident, I was really shocked

Maybe there is also a link between emotional shocks and ms…

Hi everybody, I just joined the IBT users :) I was diagnosed Progressive MS in last September. I read somewhere in the topic that sleeping “flat” only one day can stop the ibt effects for several weeks! So I can not follow this therapy as I would like, cause I can not avoid flat beds (I sometimes ha...