Search found 176 matches

by MarkLavelle
Fri Jan 13, 2012 11:38 am
Forum: General Discussion
Topic: MRI updates
Replies: 13
Views: 1839

Re: MRI updates

Any suggestions based on my symptoms Mark? I forgot to add muscle spasms in arms, legs, abdomen, and my fine motors skills in my left hand seemed to have diminished. My heart seems to be beating harder as well. With the possible exception of the muscle spasms, everything below your neck that you de...
by MarkLavelle
Thu Jan 12, 2012 4:43 pm
Forum: General Discussion
Topic: MRI updates
Replies: 13
Views: 1839

Re: MRI updates

So my c-spine came back normal except for 2 bulging discs...no lesions. My neuro says I definitely don't have MS, but I'm not totally convinced. He wants me to do physical therapy for my neck, and come back in a month. On one hand I'm happy that they haven't found anything, and on the other I still...
by MarkLavelle
Wed Jan 11, 2012 9:03 pm
Forum: General Discussion
Topic: Accupuncture?
Replies: 48
Views: 19421

Re: Well,

And just like such other very much more severe neuro-degenerative diseases like senile dementia, Alzheimers, Parkinsonism etc, and well, if such very much more chronic neuro-degenerative disorders can be 100% fully cured, a definite total cure for MS would have been found and invented long time ago...
by MarkLavelle
Wed Jan 11, 2012 8:43 pm
Forum: General Discussion
Topic: Symptoms
Replies: 20
Views: 3409

Re: Symptoms

I wouldn't be satisfied with that "anxiety" biz either. But I would also say that I or folks I know have had all of the symptoms you mentioned for purely mechanical spinal reasons (which would generally also result in normal neuro tests). If any/all of your symptoms seem position/posture d...
by MarkLavelle
Wed Jan 11, 2012 8:31 pm
Forum: Introductions
Topic: Hello from Ohio
Replies: 4
Views: 1451

Re: Hello from Ohio

Welcome! And sorry you had to be here... I genuinely admire your determination to take a natural approach, but as someone who's life has literally been saved by modern medicine (chemo, radiation & cyber-knife) I sincerely hope you will continue to consider the disease-modifying meds. This is the...
by MarkLavelle
Tue Jan 10, 2012 12:26 pm
Forum: General Discussion
Topic: Hot Hands and Feet
Replies: 9
Views: 4212

Re: Hot Hands and Feet

mrbarlow wrote:... warm to the touch and visibly flushed
That part doesn't sound like an MS symptom to me, but I'm a newbie...
by MarkLavelle
Sat Jan 07, 2012 3:46 pm
Forum: General Discussion
Topic: I suspect my neighbour has MS
Replies: 8
Views: 1757

Re: I suspect my neighbour has MS

I just took my wife to an on-call ophthalmologist today because she's had floaters & light flashes in one eye for over 24 hrs. The dx was basically aging (the vitreous gel hardening). The rx is to come back regularly (for monitoring). They can apparently laser repair the retina if they catch it ...
by MarkLavelle
Fri Jan 06, 2012 1:39 pm
Forum: General Discussion
Topic: They won't give me a diagnosis, are they afraid to?
Replies: 2
Views: 1248

Re: They won't give me a diagnosis, are they afraid to?

I'm sure you're frustrated, but I would not want or expect a neurosurgeon to make a definite MS dx (I did let one cut a tumor out of my brain, though :wink:). If there's one anywhere near, I'd try to see a neurologist at a major MS Clinic.

Good luck,
Mark
by MarkLavelle
Fri Jan 06, 2012 1:19 pm
Forum: General Discussion
Topic: any rocket scientists out there? Anyone who can decifer MRIs
Replies: 5
Views: 1441

Re: any rocket scientists out there? Anyone who can decifer

If my neuro wouldn't explain my test results or why I should take a particular DMD I would find a new doc ASAP. Preferably one at a major MS clinic...
by MarkLavelle
Thu Jan 05, 2012 12:48 pm
Forum: Exercise and Physical Therapy
Topic: Hate gyms, not exercise? Here's a great option...
Replies: 0
Views: 4595

Hate gyms, not exercise? Here's a great option...

Like the subject implies, I've got nothing against exercise but the very last place I want to do it is in a gym. So I'm willing to invest in exercise equipment when I know I'll use it (and have somewhere to put it!)... For several years we had a treadmill and then switched to an elliptical trainer f...
by MarkLavelle
Thu Jan 05, 2012 11:50 am
Forum: General Medications
Topic: gabapentin
Replies: 10
Views: 8962

Re: gabapentin

elyse_peace wrote:I do not need to add to my depression.
Depression is a *potential* side effect, not guaranteed. If you've been using gabapentin already without new/increased depression there's no reason to stop (unless/until you *do* have side effects, of course)...
by MarkLavelle
Mon Jan 02, 2012 8:57 am
Forum: Introductions
Topic: Merry Xmas, here is your MS
Replies: 17
Views: 3910

Re: Merry Xmas, here is your MS

Research shows the drugs are useless at best and may be harmful. The drugs are certainly harmful to some, and do not measurably help *everyone* who uses them, but to call them useless is a your personal opinion. There's plenty of evidence that all DMDs slow MS progression for *most* users. If there...
by MarkLavelle
Sun Jan 01, 2012 10:08 am
Forum: General Discussion
Topic: Seeing movement when there is none
Replies: 1
Views: 2204

Re: Seeing movement when there is none

First of all, there are all sorts of visual effects that are caused in the eye itself (e.g., 'floaters') and not obviously linked to neural diseases. Actual hallucinations (let's not beat around the bush) can be caused by all kinds of brain/neural issues. In June I went from a few weird peripheral d...
by MarkLavelle
Fri Dec 30, 2011 12:09 pm
Forum: Copaxone
Topic: Cost of Copaxone
Replies: 34
Views: 35370

Re: Cost of Copaxone

Is everyone faced with this increase? Ouch. I am fortunately still working and my co. offers a good PPO-type plan. I'm paying $30/mo. and haven't been told of any increase. I *was* told that if I elected to allow delivery without signing for it, I would be responsible for the $3000+ per month if it...
by MarkLavelle
Fri Dec 30, 2011 11:06 am
Forum: Copaxone
Topic: Experiences with Copaxone
Replies: 60
Views: 70219

injection tracking: DIY & phone app approaches

... i am also really diligent about rotating within and between injection sites -drew myself a chart to make sure i am always at least 2" from last injection in a particular site (it was on a leaflet to keep at least 2" away). my approach meant i didn't actually inject the same spot for 6...

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