This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks!

Thanks for the link and concerns, Anonymoose. I had spoken on the phone with a research neurologist, who knows my brother, before the trial who was more positive for BG12. Any thoughs?

I knew of the statins being looked at but not of lisinopril. I have been on it for many years, only 5mgs though. It hasn't improved the course of my disease. Following the post, I found out that lisinopril is being looked at MS in mice. Anyway, it's not relevant to me now since I quit the study. Tha...

They followed the trial protocole to the T! If desired, refer to the trial at ClinicalTrials.gov under Study of Tcelna (Imilecleucel-T) in Secondary Progressive Multiple Sclerosis (Abiliy-T). Sorry that I can't provide the link.

Supplements were not restricted. The supplements that I was taken are D3, Ocean Blue (Omega 3), Multivitamins (Centrum Silver), B complex, B12 sublingual, Citrocal, in addition to lisinopril and baby aspirin.

No, there were no restrictions other than having to adandon the previous MS therapy. I was on Rebif and every 2 months or so IV solumedrol. I was offered Acthar by the neurologist, but I decided to seek the Tcelna trial. The second question is more like it...no guarantees.

Well, I am scheduled for the third treatment next April. I feel that there hasn't been any improvement even slightly, yet you may say that the MS continues to progress. I made a decision to withdraw from the study. Perhaps, I would be more patient if assured that I was receiving the real product Thi...

I also eagerly await for BG12. Not sure if it's going to be used for SPMS in addition to RRMS.

With BG12 likely to be next the next MS drug to be approved, any information about its effect on SPMS?

Hello littlered13, I think the question would be, was there something with your MS ( like an incipient flare-up ) that caused the fall. It is entirely possible that a fall can trigger a relapse. We don't know exactly. One of the theories liking trauma (particularly head trauma) has to do with T-cell...

Hi silverwings 87, I used to practice Psychiatry until my MS progressed to the point that I couldn't do the job effectively. Fatigue and pain were present early in the disease process and required that I adjusted my work schedule. They are the most common symptoms leading to disability. Not long ago...

Hello, I am currently enrolled in the Tcelna trial fpr SPMS ( Abili-T ). I have received two injectioms. Because it is double-blind, we don't know whether I am receiving the real stuff. I haven't noticed any improvement so far, although I know that is too early to tell. I am here thinking that there...

Hello vikingquest, Thank you for your encouraging words. I have only received two treatments, so there are no noticeable changes. This is not surprising since we don't even know if I got the Tcelna and not the placebo. It would be great if others in the Abilit-T trial would post so that experiences ...

In my previous "incarnation" as a physician, I encountered several MS patients who had some head trauma before the diagnosis.

Hi all,
Got my second dose of the Tcelna/placebo today. It appeared a bit cloudy perhaps because the vial was cold. So far I have not seen a big change but will continue to monitor.