Search found 1294 matches

by robbie
Sat Jul 27, 2019 12:14 pm
Forum: Daily Life
Topic: life with ms question
Replies: 11
Views: 6120

Re: life with ms question

Hi Harry WOW almost 10 yrs ago how are you doing ?
by robbie
Sat Jul 27, 2019 4:51 am
Forum: Daily Life
Topic: Swollen ankles and feet
Replies: 30
Views: 8106

Re: Swollen ankles and feet

I was gonna say I got up this morning but obviously not, I woke up and thought the compression stockings I wore last night did nothing but make my legs twitch all night which they haven't done since my Neuro gave me Clozopam. Sleeping is my only escape ,you get into a good dream where things are all...
by robbie
Thu Jul 25, 2019 11:06 am
Forum: General Discussion
Topic: Can your life ever be normal again?
Replies: 42
Views: 6248

Re: Can your life ever be normal again?

The EDSS score can change probably a lot both up and down in early stages. Once it sets in full time you tend to stay there more. It helps to visualize people's challenges in an annamoose world, like now I know EB can still walk and work thx EB . Changes the way you think about things.
by robbie
Thu Jul 25, 2019 8:33 am
Forum: General Discussion
Topic: Can your life ever be normal again?
Replies: 42
Views: 6248

Re: Can your life ever be normal again?

Dam Jimmy you always nail me with your article's lol I'm guilty of all the highlighted material. I check all the boxes for what you shouldn't do ! There was a time believe it or not I did try and do things right, better diet, didn't smoke, less beer. Things change a lot in 28 yrs. Are you still work...
by robbie
Tue Jul 23, 2019 2:19 pm
Forum: General Discussion
Topic: Can your life ever be normal again?
Replies: 42
Views: 6248

Re: Can your life ever be normal again?

Hi JL and EB you guys are so central to Tim's what is your EDSS # ?, it helps understand where people are at
by robbie
Tue Jul 23, 2019 9:51 am
Forum: General Discussion
Topic: Can your life ever be normal again?
Replies: 42
Views: 6248

Re: Can your life ever be normal again?

1st remission can feel so good, almost euphoric like it's all just a bad joke.
by robbie
Mon Jul 22, 2019 11:09 am
Forum: General Discussion
Topic: Can your life ever be normal again?
Replies: 42
Views: 6248

Re: Can your life ever be normal again?

What a completely moronic thing to say, it's insulting to those of us that have serious life changes thanks to this , not just numb fingers and toes
Ms/better life, up to you, what a frigging joke

Zyklon wrote: Sun Nov 12, 2017 7:37 am Can your life ever be normal again? Yes and no, depends on you. It can be even a better life.
by robbie
Thu Jul 18, 2019 2:26 pm
Forum: Daily Life
Topic: i want to get better or die
Replies: 13
Views: 5318

Re: i want to get better or die

I was thinking of his title "get better or die" , when i was told finally, the part i remember most is the neurologist saying the words it's multiple sclerosis it's progressive, chronic and no cure. So that title is tough, I know you can have better ms but it's still there, drugs now make ...
by robbie
Wed Jul 17, 2019 9:42 am
Forum: Daily Life
Topic: Progressive MS
Replies: 16
Views: 11496

Progressive MS

No interest JL, not something you really want on your mind or to talk about it's all about staying RR can't blame anyone:)
by robbie
Tue Jul 16, 2019 12:02 pm
Forum: Daily Life
Topic: i want to get better or die
Replies: 13
Views: 5318

Re: i want to get better or die

Are u still here dkep11 you said you were an 8 and climbing on the EDSS, not a good number to be at. Say hey sometime
by robbie
Tue Jul 16, 2019 8:47 am
Forum: Daily Life
Topic: Washroom ?
Replies: 0
Views: 1290

Washroom ?

Wondered if there's anyone that is in a wheelchair and can't transfer ,how do you manage ?
by robbie
Mon Jul 15, 2019 11:27 am
Forum: Daily Life
Topic: Living without a life,
Replies: 20
Views: 5987

Re: Living without a life,

My brother put up another hoist upstairs for me this weekend, nice to have a different view. The best thing is my wife isn't up and down the stairs all the time :)
by robbie
Mon Jul 15, 2019 10:48 am
Forum: Daily Life
Topic: Swollen ankles and feet
Replies: 30
Views: 8106

Re: Swollen ankles and feet

Thx Terry i will ask my wife to get a pair, maby if I can get the swelling down my ankles won't be so locked inwards. Thx for sharing your day as well:)
rob
by robbie
Sun Jul 14, 2019 4:38 pm
Forum: Daily Life
Topic: Swollen ankles and feet
Replies: 30
Views: 8106

Re: Swollen ankles and feet

"Time will tell" should be the slogan for ms it's perfect :)
by robbie
Thu Jul 11, 2019 8:58 am
Forum: Daily Life
Topic: Swollen ankles and feet
Replies: 30
Views: 8106

Re: Swollen ankles and feet

Hard to believe 10 years ago , i was doing some leg exercise on that bowflex in the background. I was feeling so good during this time , being able to stand was amazing. Didn't get any better than this, lasted about a year.

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