Search found 44 matches

by Kate_PghPA
Wed Aug 11, 2010 7:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: IJV thrombosis associated with shiatsu massage
Replies: 1
Views: 1659

thanks for the word of caution!

. . As some 'Liberated' folks are finding...there have been 'old clots' found in vessels, new ones could develop,etc...and too vigorous, or repetitive motions could cause clots to move/ immobilize causing 'stroke' , other cardiovascular event! Thanks for the word:caution...! we don't need to compoun...
by Kate_PghPA
Mon Aug 09, 2010 11:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Intervent.Radiologist/ Vas.Surgeon List needed for SW Penna
Replies: 8
Views: 2611

I did just call Shadyside Hosp IR dept...spoke only to receptionist, who kept insisting I needed to get my PCP to give specifics on 'venous compression'... Later on I explained ...Insists she never heard of MS venoplasty,etc. Oh God! what do you think they do with a letter???!! JR, mshusband have tr...
by Kate_PghPA
Sun Aug 08, 2010 1:26 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Intervent.Radiologist/ Vas.Surgeon List needed for SW Penna
Replies: 8
Views: 2611

If you post and ask, I bet someone else will know.

I don't want to even ask but are the docs on this list actually 'out'? Or is it the same list with the same problems from last week? Sorry Cece... not sure if you're asking me...I believe I am looking for a Public list of IRs, Vascular Surgeons ...in fact YOU kindly recommended 2 of the three that ...
by Kate_PghPA
Thu Aug 05, 2010 6:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Intervent.Radiologist/ Vas.Surgeon List needed for SW Penna
Replies: 8
Views: 2611

Denise Manley's info: excellent!

Check out - www.forumonhealth.com Go to "featured entries" and click on "Denise Manley's New List". I don't think it has anyone in Pa. but you might find someone close. Good luck. Thank you so much for pointing me toward Denise Manley...she has some great Videos of You Tube as w...
by Kate_PghPA
Thu Aug 05, 2010 1:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Intervent.Radiologist/ Vas.Surgeon List needed for SW Penna
Replies: 8
Views: 2611

Intervent.Radiologist/ Vas.Surgeon List needed for SW Penna

Please help! I want to get liberated but my HMO insurance is only local: ( Univer.of Pittsburgh Med Ctr) UPMC + budget is tighter than my constricted neck veins. Besides these TWO Sites for IR/Vascular: http://www.ucomparehealthcare.com/drs/pennsylvania/interventional_radiologists/ and vascular surg...
by Kate_PghPA
Fri Jul 23, 2010 5:57 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sclafani article w/ commentaries by Drs. Dake and Katzen
Replies: 19
Views: 4442

May the Great Physician bless you- always- Dr Sclafani !!! Psalm 121 1I will lift up mine eyes unto the hills, from whence cometh my help. 2My help cometh from the LORD, which made heaven and earth. 3He will not suffer thy foot to be moved: he that keepeth thee will not slumber. 4Behold, he that kee...
by Kate_PghPA
Wed Jul 21, 2010 8:28 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI treatment available in the U.S.!
Replies: 859
Views: 204057

Dr. in Maryland

HappyPoet wrote: The TOTAL cost, regardless of number of stents, is mandated to be $16,500. Maryland state law sets this price according to a formula; therefore, the hospital and doctor have nothing to do with fee setting. Wow, that's expensive! Too bad they don't offer a reduced rate if it's only ...
by Kate_PghPA
Fri Jul 16, 2010 4:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: anna d successfully treated. Negative MRV sometime back.
Replies: 6
Views: 2676

Perseverance PAYS OFF!

Kudos to all involved...!!!
this is a Lesson for many
...not to give up, be tenacious...persevere, Fight that Good Fight!!

Thank you for sharing and continuing to give hope to all!!
by Kate_PghPA
Thu Jul 15, 2010 4:10 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Intro'd on General Site Months ago
Replies: 1
Views: 1332

Intro'd on General Site Months ago

Hello, I'm Kate...
Better late, than Never? That's how I feel 'bout ccsvi Venoplasty
TIMS: Thank you! Thank you all- for Revealing Ccsvi / treatment to the World!
Let Truth REIGN, Let the Healing BEGIN!
by Kate_PghPA
Fri Jul 09, 2010 5:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Sandy Macdonald-Canada
Replies: 15
Views: 6593

Monday, July 26--Professional CCSVI SymposiumShare Today at

PLEASE Pass this on to your IR/ neuros.... CCSVI in Multiple Sclerosis's Notes Monday, July 26--Professional CCSVI SymposiumShare Today at 1:35pm Patients---please refer your IRs to this upcoming conference: The Departments of Radiology and Neurology of SUNY Downstate Medical School in Brooklyn, NY,...
by Kate_PghPA
Tue Jun 29, 2010 3:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: From M.S. Patients, Outcry for Surgery - NYTimes.com
Replies: 24
Views: 5081

Any publicity is GOOD Publicity

Thank you NYTimes, et. al. Unproven treatment? if the veins are blocked...OPEN THEM, despite MS diagnoses...and THEN keep researching... It's like Cataract removal...people were 'blind' until it was 'discovered' the lens could be surgically excised and replaced! Technology caught up...as did IR tech...
by Kate_PghPA
Tue Jun 01, 2010 6:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: hear ye! hear ME! Oh Canada...
Replies: 19
Views: 6233

Americans in USA...write here !!

Thank you BooBear Health and Human Services. Complaints about government programs, services, or activities related to child care, elder care, preschool, social services, or health care programs (including schools of medicine, dentistry, nursing and other health-related fields) should be directed to:...
by Kate_PghPA
Wed Apr 21, 2010 6:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Creation of the March of Dimes
Replies: 8
Views: 2853

Pittsburgh researchers of Ccsvi where are you?

Pittsburgh is home of many 'firsts'... in the field of medicine, Dr Jonas Salk researched his Polio vaccine http://en.wikipedia.org/wiki/Jonas_Salk in the field of organ transplant, Dr Thomas Starzl and others performed such 'radical ' transplants http://en.wikipedia.org/wiki/Thomas_Starzl ...where ...
by Kate_PghPA
Thu Apr 08, 2010 8:24 am
Forum: Introductions
Topic: Hello ! (er, ah, hope I doing this Intro properly...)
Replies: 0
Views: 1348

Hello ! (er, ah, hope I doing this Intro properly...)

Please pardon my rudeness..Hello I'm Kate, rrms dx 2000, ( my oldest sister also has rrms!) I am SO excited about CCSVI...only just even heard of it 3 days ago! Please, Please help! I'm in the Pittsburgh, PA area and would Absolutely Appreciate ANY information anyone has re: CCSVI, any radiologists ...

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