Search found 323 matches

by Quest56
Sun Aug 21, 2016 8:39 am
Forum: General Discussion
Topic: Time for a wheelchair. Any suggestions?
Replies: 8
Views: 2413

Re: Time for a wheelchair. Any suggestions?

The Segway products also look very interesting. I am considering getting one of these to use to walk my dog. They also make versions that are suitable for off-road/trail use. They make a number of different models. I think I'd prefer model 12 SE with handles. http://www.segway.com/products/consumer-...
by Quest56
Sat Jul 02, 2016 8:02 am
Forum: General Discussion
Topic: Time for a wheelchair. Any suggestions?
Replies: 8
Views: 2413

Re: Time for a wheelchair. Any suggestions?

TiLite Manual wheelchairs, very light weight:

TiLite WheelChair Overview

This is the chair I plan to invest in when the time comes. Light enough to easily pop in and out of the the trunk of your car as needed. I've had two friends who were very happy owners.
by Quest56
Sun Jun 26, 2016 7:55 am
Forum: General Discussion
Topic: Melatonin Acts as Antioxidant and Improves Sleep
Replies: 4
Views: 2243

Re: Melatonin Acts as Antioxidant and Improves Sleep

Some more information about relationship between melatonin and inflammatory disease:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3709754/
by Quest56
Wed Jun 01, 2016 5:35 pm
Forum: General Discussion
Topic: Diet that mimics fasting may reduce MS symptoms
Replies: 16
Views: 4630

Diet Derived from Longo Research at USC

Here's a diet plan that is said to be similar to the FMD diet used in the USC study.

The URL is shortened using tinyUrl.com to make it useable for posting here:

http://tinyurl.com/zcfbw65
by Quest56
Sat May 28, 2016 11:45 am
Forum: General Discussion
Topic: Diet that mimics fasting may reduce MS symptoms
Replies: 16
Views: 4630

Full Text and Summary of USC Study

Read the full text and summary here:

http://tinyurl.com/zbuqsku

This info dovetails nicely with ideas from the Wahls/ketogenic diet.
by Quest56
Sat May 07, 2016 8:49 am
Forum: Introductions
Topic: methotrexate
Replies: 2
Views: 2129

Re: methotrexate

ken11, I saw your post from 1-1/2 years ago while looking for information about methotrexate and MS. I was amazed to see that you had used it for almost 30 years. Why did your doctor recommend that you switch to tecfidera? What dose of methotrexate were you using? Did you stop completely? How is you...
by Quest56
Wed Apr 13, 2016 7:35 am
Forum: General Discussion
Topic: ClinicalTrial To Evaluate OTC Allergy Med for Remyelination
Replies: 7
Views: 2580

Re: ClinicalTrial To Evaluate OTC Allergy Med for Remyelinat

Clemastine fumerate in the news again, this time in relation to repair of optic nerve damage: http://alturl.com/9u9qv "While the improvement in vision appears modest, this study is promising because it is the first time a drug has been shown to possibly reverse the damage done by MS," said...
by Quest56
Fri Mar 18, 2016 10:57 am
Forum: General Discussion
Topic: New role of environment in multiple sclerosis revealed
Replies: 3
Views: 1312

Re: New role of environment in multiple sclerosis revealed

These results could also be partially explained by differences in diagnostic rates between those living in London, and those living in other countries.
by Quest56
Sun Jan 24, 2016 6:27 pm
Forum: Drug Pipeline
Topic: Has anyone here had BOTOX injections in the bladder ?
Replies: 27
Views: 23984

Re: Has anyone here had BOTOX injections in the bladder ?

As long are you are emptying regularly and completely, you shouldn't get a UTI even with catheter use. I'm able to catheterize while sitting on the toilet and follow a pretty sterile procedure. It's not hard to do and you get used to doing it quickly. So yeah, I'm not happy about having to catheter...
by Quest56
Fri Jan 15, 2016 4:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 363
Views: 107102

Re: Notes from CureIous' at Stanford

Very sorry to hear about this, perhaps this serves as a good "heads-up" to the rest of the early Stanford pioneers. I was last checked in 2012. I need to find a local vein clinic to check my stents yearly, Dr. Dake's office is inconvenient (and unwilling**) to do this. I hope you get quick...
by Quest56
Tue Oct 20, 2015 12:05 pm
Forum: Copaxone
Topic: Generics, 40 mg. Copaxone and Teva
Replies: 27
Views: 18028

Re: Generics, 40 mg. Copaxone and Teva

If I remained at the 20mg dose, I'm certain my prescription benefit provider would require that I move to a generic version as soon as it becomes available in order to cut costs. I've remained at the 20mg dose, so it was only a matter of time. My next glatiramer acetate refill arriving tomorrow is ...
by Quest56
Tue Sep 29, 2015 3:49 pm
Forum: Natural Approach
Topic: Phosphatidylserine?
Replies: 13
Views: 5922

Re: Phosphatidylserine?

PubMed has some good abstracts on why vinpocetine may help MS folks. I take it to prevent strokes. I have had a minor one 1 Jan 2015 and do not want another. Hopefully you are also taking high-dose Biotin. Seeva recently posted a patent application for the use of high-dose Biotin which contains inf...
by Quest56
Tue Sep 29, 2015 3:43 pm
Forum: Biotin (Qizenday, Cerenday, MD1003)
Topic: RE USE OF BIOTIN FOR THE TREATMENT OF M.S
Replies: 2
Views: 5493

Re: RE USE OF BIOTIN FOR THE TREATMENT OF M.S

HI Friends please read https://www.google.com/patents/WO2014016003A1?cl=en regards seeva This is a very nice write-up. I'm only part way through it, and will probably need to read over it a few times, but am very interested to read the information about the use of high-dose Biotin (up to 600mg/day)...
by Quest56
Sun Sep 27, 2015 12:12 pm
Forum: Natural Approach
Topic: Phosphatidylserine?
Replies: 13
Views: 5922

Re: Phosphatidylserine? - Also Vinpocetine

A doctor recommended this supplement to me several years ago for brain health. I have been taking it daily ever since, although I cannot point to any specific benefit with respect to my daily symptoms. I take "phosphatidyl serine matrix" from Source Naturals, 500mg morning and evening and ...
by Quest56
Fri Sep 04, 2015 7:25 am
Forum: General Discussion
Topic: heat
Replies: 22
Views: 3206

Re: heat

The upshot of this is that above an air temperature of 73 degrees F I start to quickly deteriorate in many ways. I've found my trigger to be 72 degrees, remarkably close to yours. As the day progresses, I need intermittent cold showers or my trusty ice cooling jacket: http://www.amazon.com/FlexiFre...

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