Hi BadWolf,BadWolf wrote:Apparently along with an MRI, this test is next up on the list. Have any of you had one? I'm a bit nervous because I heard they are uncomfortable. What is the purpose of one?
I’ve had lots of those and they are a little uncomfortable, but bearable. And heads up – they do consist of needles and slight electric shocks. You can read more about EMGs (Electromyograms) and other nerve conduction studies here (and about a zillion other places):
http://www.webmd.com/brain/electromyogr ... on-studies
They’re done to either diagnose or to rule OUT problems with your peripheral nerves, rather than to diagnose MS, since MS has no definitive diagnostic test. MS is a disease of the Central Nervous System (CNS includes the brain, spinal cord & optic nerve), while the Peripheral Nervous System (PNS) includes all the other nerves in your body. There are dozens (if not hundreds) of medical conditions that can damage your peripheral nerves, and that damage often causes similar symptoms to other neurological conditions.
As it turns out, I’ve been diagnosed with both MS and a hereditary peripheral neuropathy, so I’ve had those nerve studies many times as new issues arise. My docs just shake their heads at the “multiple pinched nerves” in my legs, carpal tunnel (in both my wrists & elbows), and the multiple degenerative spinal issues showing on MRIs – none of which are related to MS, but do cause much of my distress.
The physiatrist who diagnosed my PNS problems with the EMGs also sent me for brain MRIs, since apparently he noticed other symptoms of Central Nervous System damage, and those showed a brainful of MS lesions, too.
There are plenty of other descriptive sites and even videos of these tests, but I didn't bother to watch them. Wishing you good luck and good doctors!
Thanks for the helpful info, I'll check it out. I've honestly been a little afraid to google anything these days so I wanted to get some real, first hand experiences from people who have been there first.
and, there's always health-focused stuff you have control over and can work on, even if the docs haven't figured out how to label or properly identify every possible combination of non-health issues yet ;)
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
I agree with THX1138 –" That is great."BadWolf wrote:I already limit gluten, dairy, and sugar and follow a low carb diet
All three – gluten, dairy, and sugar – increase the blood sugar (glucose) level; carbohydrates convert quickly to blood sugar also. The body reacts an increase in blood sugar by increasing the level of insulin. My aim is to reduce and maintain a low level of insulin (It should be 3 UU/ML or lower.).
Diet and exercise is the place to start!
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