Not sure what to think

This is the place to ask questions if you have symptoms that suggest MS, but aren't yet diagnosed.
vortexmama79
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Re: Not sure what to think

Post by vortexmama79 » Wed Aug 29, 2018 2:16 pm

They only did the head, not the spine. I know this could be other things but with them ruling out MS could be related. It’s just like the article you attached. I have some shoulder pain from an old injury on the left side but this is something totally different. It’s annoying and it hurts. I’m trying ice and Motrin now. I still have to go back to work. Night 3 of 4 in a row

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jimmylegs
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Re: Not sure what to think

Post by jimmylegs » Wed Aug 29, 2018 2:27 pm

i asked re spinal because i had searched for lhermitte's in assoc w cavernoma and this came up (only a case study but interesting)

Lhermitte’s sign in cavernous angioma of the cervical spinal cord
https://jnnp.bmj.com/content/65/6/954.2

hope the ice and meds help in time for work!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

vortexmama79
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Re: Not sure what to think

Post by vortexmama79 » Wed Aug 29, 2018 2:33 pm

Thank you for looking that up! You’re awesome. I find it very interesting. It’s like I’m my own case study. My doctor will love when I bring in all this medical literature next week....;)

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jimmylegs
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Re: Not sure what to think

Post by jimmylegs » Wed Aug 29, 2018 3:34 pm

np :)
and yep dr internet is everyone's favourite - said no doc ever lol
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

vortexmama79
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Re: Not sure what to think

Post by vortexmama79 » Tue Sep 04, 2018 7:57 am

See neuro today at 4. Trying to think good thoughts

vortexmama79
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Re: Not sure what to think

Post by vortexmama79 » Tue Sep 04, 2018 3:26 pm

Well I have “spots” on my mri. He wants a mri of neck and spine now. He’s says I’m too young to have these spots for no reason. So if I have spots on the next mri it’s pretty much MS. If not they will watch me closely.
I’m trying not to cry and waiting for another mri and the results is going to do me in
Side note: the cavernoma on my mri is normal he said. Been there since birth

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jimmylegs
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Re: Not sure what to think

Post by jimmylegs » Tue Sep 04, 2018 3:59 pm

ok deep breaths then. lots you can control in order to not be like a typical ms patient. chin up!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

vortexmama79
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Re: Not sure what to think

Post by vortexmama79 » Tue Sep 04, 2018 4:01 pm

I know it’s jyst scary. I don’t want to end up being a burden to my husband and kids

vortexmama79
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Re: Not sure what to think

Post by vortexmama79 » Tue Sep 04, 2018 4:06 pm

I know I’ll have to change a lot of things and I will. I’ll be a damn warrior. But I get to have a pity party for a little

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jimmylegs
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Re: Not sure what to think

Post by jimmylegs » Tue Sep 04, 2018 4:18 pm

you won't be a burden, rock on xena ;) !!!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

vortexmama79
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Re: Not sure what to think

Post by vortexmama79 » Tue Sep 04, 2018 4:52 pm

:)

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jimmylegs
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Re: Not sure what to think

Post by jimmylegs » Sun Sep 09, 2018 6:48 am

so i had my super fun c-spine mri yesterday. it wasn't as annoying as cranial on wednesday.

one of the scans had a good beat, had me mentally accompanying it with 'safety dance' lol


results soon. i'm getting my own copy of the discs for both, including the reports. last time was a hot mess lol. what i get for being lazy w self care!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

vortexmama79
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Re: Not sure what to think

Post by vortexmama79 » Mon Sep 10, 2018 12:48 pm

Thinking good thoughts! I created a little “beat” during my last MRI too! :)
Still waiting to schedule my next MRI

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jimmylegs
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Re: Not sure what to think

Post by jimmylegs » Thu Sep 20, 2018 4:58 pm

hope results are good!
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

Zyklon
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Re: Not sure what to think

Post by Zyklon » Fri Sep 21, 2018 3:27 am

During my last MRI, I listened Rammstein all the time. Next time Slipknot haha

Good luck ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

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