A board to discuss the Multiple Sclerosis modifying drug Copaxone
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Last post by NHE
Sat Jul 16, 2016 10:51 pm
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Experiences with Copaxone
Replies: 60
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Arron » Wed Mar 29, 2006 10:17 am
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This is a call for our members who currently are, or previously have taken, Copaxone for the treatment of MS to please share your experiences with...
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I have been in copaxone for 7 yrs. was. Dx w RSD at the same time. My rt foot w the RSD is always red, skin dry, flaky, etc. stopped the copaxone 1...
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Last post by TeresaL
Fri Aug 21, 2015 6:50 pm
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Last post by frodo
Thu May 16, 2019 8:09 am
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Copaxone side effect??
Replies: 17
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Cfuller00 » Wed Jul 13, 2016 4:32 pm
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I was diagnosed with MS in April 2015. I have been taking 20mg Copaxone daily ever since. I have never had an issue with my teeth. I receive regular...
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Hi all,
Thanks NHE, for sharing your protocol.
Re: Clemastine: My neuro mentioned that to me in November when I last saw him, and I discovered that...
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Last post by DaisySue
Sun Feb 25, 2018 3:06 pm
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Copaxone and Lipoatrophy (skin indentations)
Replies: 30
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Arron » Thu Sep 09, 2004 3:25 pm
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We're trying to pull together some information here on a topic people don't hear much about: Lipoatrophy, or the loss of subcutaneous fat, due to the...
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I have been injecting Copaxone 3 times a week since August. I'm a runner and very active so I really don't have a ton of fat on my body. I've been...
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Last post by NHE
Mon Dec 04, 2017 12:18 am
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About to start this medication and kinda scared
Replies: 3
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Daisycat » Sun Nov 12, 2017 2:40 pm
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I’m about to start this medication this week. I’m kinda terrified of side effects and it making me feel so bad that I’m unable to work. I’ve heard...
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You should try to take it at around the same time. You may want to ask Shared Solutions to verify.
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Last post by ElliotB
Sun Nov 12, 2017 5:03 pm
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Immediate post injection reaction
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Loriyas » Thu Apr 20, 2017 8:43 am
Ok after over 14 years of being on Copaxone it finally happened. Last night I had my first immediate post injection reaction. I injected in my...
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Last post by Loriyas
Thu Apr 20, 2017 8:43 am
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New Copaxone user
Replies: 7
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meem » Wed Mar 29, 2017 6:36 pm
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Hello everyone,
So recently (about a month ago) I started using copaxone 40mg. It has been going ok I guess. I get soreness but I sleep it off most...
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I had horrible reactions when I started. I thought that I was going to the right depth, but it turns out I was going too shallow and causing horrible...
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Last post by aetex
Wed Apr 05, 2017 7:48 pm
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Copaxone after 8 months
Replies: 4
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markablee » Sat Feb 25, 2017 11:21 pm
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Hi. I've been taking copaxone for 8 years,made a break for 8 months,and now I'm wondering if I can continue taking it.
Does anybody knows if it's...
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I had a problem with finding avaliable space on my skin,it become hard and painful,so I wanted to give it some rest. Then I started with natural...
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Last post by NHE
Sun Feb 26, 2017 3:22 pm
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Copaxone 40mg and intense exercise
Replies: 5
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joeymia » Tue Jan 17, 2017 8:18 am
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Hello been a long while since I posted on this site. I started taking 20mg Copaxone around 2010. I used it everyday for 3 years but eventually had to...
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Well my luck ended at the end of 2015. I caught the Flu was sick for a whole week, felt good one day and then the very next day I ended up in the...
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Last post by NHE
Wed Jan 18, 2017 4:07 am
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Copaxone and Fatigue?
Replies: 17
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vajkb2 » Tue Mar 15, 2005 4:21 pm
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I have been trying to adjust to the MS meds since my DX late 2003. Tried Avonex for about 6 months and was really sick for mostly the whole time....
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Would like to warn people about taking modifinal for fatigue and mental allertness, I was taking this drug for a few years and have this week been...
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Last post by Jacquiefripp
Sun Jan 01, 2017 10:19 am
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Last post by MSUK
Thu Dec 08, 2016 3:04 am
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Copaxone side effects
Replies: 15
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Alicia » Tue Jun 29, 2004 9:04 pm
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I have a question for anyone that would like to respond. I have had MS for the past 5 years 3 of which I have been taking Copaxone. I was okay for...
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Hello - Started COPAXONE about three weeks ago - no official MS diagnosis but taking proactively due to a lesion found on my spine. First three...
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Last post by NHE
Thu Nov 24, 2016 12:17 am
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R-Pharm Group to launch Glatirat
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MSUK » Tue May 31, 2016 4:29 am
The Russian Ministry of Health has granted Marketing Authorisation to R-Pharm JSC for the development of Glatirat, a drug intended for the treatment...
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Last post by MSUK
Tue May 31, 2016 4:29 am
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Trying to conceive and Copaxone
Replies: 13
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Wonderfulworld » Mon Aug 28, 2006 2:15 am
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Hi
I know you're supposed to give up Copaxone before trying for a baby. I have read all the literature I can and there is no data that I found that...
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I have just taken my first injection of Copaxone, I have previously been on Avonex for 9 years. I guess I am looking/searching for support and wisdom...
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Last post by lyndacarol
Thu Apr 28, 2016 6:50 am
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Thinking About Going Off Copaxone
Replies: 17
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SpringsJessica » Sat Jan 07, 2012 2:37 pm
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:?: I'm wondering if anyone has experience going off Copaxone. If it can be stopped immediately or if I will need to taper off? I could call Shared...
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I love Copaxone. Was on it from 2003 - 2013, switched to Tecfidera for ~15 months, back on Copaxone since 2015. Just switched to the 3x per week,...
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Last post by Jimpsull
Sat Apr 23, 2016 10:20 pm
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Fungus and nails hand and foot
Replies: 2
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cfarris412 » Tue Jan 19, 2016 8:16 am
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Has anyone in this group had to deal with fungus fingernail and toenail? After being on Copaxone for almost 3 years all the sudden a fungus outbreak...
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Thanks for the info! my podiatrist put me on oral lamisil for 3 months.
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Last post by cfarris412
Tue Feb 16, 2016 2:12 pm
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THEORETICAL: Can Copaxone cause relapses
Replies: 1
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CassidySS » Fri Jan 01, 2016 5:58 am
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Can taking Copaxone actually cause your body to start attacking one's own myelin ONCE you stop injecting copaxone ?
I keep reading about all these...
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I'm skeptical of Big Pharma drugs.
Then you probably should not go on a DMD.
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Last post by ElliotB
Fri Jan 01, 2016 10:29 am
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loss of appetite on copaxone
Replies: 5
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globab » Wed Jul 07, 2010 3:44 am
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any one else lost their appetite since on copaxone?
i have been on it since jan or feb, and have lost 25lbs or so.......
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I have switched to Copaxone daily and have no appetite which is OK but who else has the problem of it feeling like fire even at room temp. I have no...
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Last post by Worldreachmf
Sun Dec 06, 2015 2:26 pm
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Generics, 40 mg. Copaxone and Teva
Replies: 27
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cheerleader » Fri Feb 28, 2014 10:50 am
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Interesting week trying to get Jeff's Copaxone 20mg. refilled. Has this happened to anyone else??
Accredo giving us the run around, wouldn't fill...
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My last post was last year. Since then I and others finally got approval from excellus BCBS for the 40mg 3x/week COPAXONE. This was in the fall of...
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Last post by itasara1
Wed Oct 21, 2015 9:45 am
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Last post by MSUK
Mon Oct 12, 2015 3:13 am
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Copaxone at 40 ml
Replies: 11
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Loriyas » Tue Apr 29, 2014 10:01 am
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For those who have already switched to the new dosing would you mind sharing any thoughts on it? I am specifically interested in hearing about side...
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Ok it has been a year since I asked the question how are people doing who switched to 40 ml dosing 3 times per week? I am wondering now how those who...
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Last post by Loriyas
Mon Sep 14, 2015 9:46 am
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Copaxone patent invalidated again
Replies: 2
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MSUK » Fri Jun 19, 2015 2:26 am
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A U.S. appeals court has again invalidated a patent held by Teva Pharmaceutical Industries on its top-selling multiple sclerosis drug Copaxone,...
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I agree, how much money does Teva want to make. Didn't they just spend billions purchasing another company?
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Last post by daverestonvirginia
Thu Aug 13, 2015 6:00 am
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Last post by MSUK
Fri Apr 24, 2015 1:47 am
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Copaxone When does the pain end?
Replies: 17
by
tt89 » Sun Sep 07, 2008 7:44 pm
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Ok...
When does this shot become less painful? I mean I've been on it since July and its the worst most painful shot ever! The welts are terrible...
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I had excruciating pain with bruising and lumps that would last nearly three weeks. I had a shared solutions nurse come out for a follow up visit and...
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Last post by aetex
Thu Apr 23, 2015 8:08 pm
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Going through customs with copaxone
Replies: 7
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aetex » Mon Jan 05, 2015 8:29 am
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Hi- I am getting ready for a trip to Costa RIca in a couple weeks. I have a copy of my prescription for security on the US side of things, but I am...
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Also I have carried up to 14 needles into many countries in the regions I mentioned and have never been questioned on any occasion.
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Last post by mccpm
Wed Apr 22, 2015 9:45 am
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Last post by MSUK
Fri Apr 17, 2015 5:10 am
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how does one judge treatment failure?
Replies: 2
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DizzyDean » Sun Jul 10, 2011 2:57 am
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Hello all - long time lurker, sometimes poster here, its been awhile.
I had on/off symptoms of ON, Lhermitte's for many years (early to mid 1990s I...
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This is a tough question -we don't know what is and isn't helping and how much. I encourage you to add swank diet back to your regimen (in addition...
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Last post by Jimpsull
Sat Apr 11, 2015 7:23 pm
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Copaxone and high blood pressure
Replies: 1
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Loriyas » Sat Apr 04, 2015 3:36 pm
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Has anyone found that Copaxone has increased their blood pressure over time? I don't mean just after the injection but rather over months or years. I...
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I took copaxone from 2003 - 2013 and again since the beginning of this year. I have seen my bp drop from 150 / 90 to 120 / 70 since going on the...
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Last post by Jimpsull
Sat Apr 11, 2015 7:06 pm
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just curious
Replies: 4
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jerrygallow » Fri Mar 13, 2015 6:47 pm
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for those on Copaxone, why do you take it and why does your neuro prescribe it? I'm not trying to be negative here. But this is a drug that leaves...
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I have been taking copaxone for almost 10 years now. I take it because it has no side effects to speak of, minor red mark every so often. Giving...
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Last post by daverestonvirginia
Mon Mar 16, 2015 10:48 am
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Copaxone Sting Reduction Technique: A Personal Breakthough
Replies: 21
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notasperfectasyou » Sat Sep 08, 2007 7:32 am
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If you try this, please post a reply. I know that typically there’s only about 1 reply post for every 30 or so views, but honestly I really think...
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Getting the injection depth correct is crucial to success with Copaxone. If you inject too deep, you hit muscle and it is very painful. Too shallow...
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Last post by ElliotB
Mon Feb 02, 2015 9:21 am
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Last post by MSUK
Tue Jan 20, 2015 8:24 am
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Last post by DougL
Mon Jan 19, 2015 7:26 am
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Last post by MSUK
Tue Dec 09, 2014 6:51 am
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Skipping a Shot Once a Week
Replies: 5
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Cammie » Mon Sep 29, 2014 9:54 pm
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My insurance is refusing to pay for the new dosage of Copaxone of 40 mg. 3xwk. Since my skin is a mess (and I rotate!) and I am running out of shot...
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Over time, I found my MS symptons getting worse while skipping a shot once a week. I am now skipping a shot once every ten days and seeing how that...
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Last post by Cammie
Wed Nov 26, 2014 3:16 pm
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Last post by MSUK
Thu Nov 13, 2014 4:12 am
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i switched meds and now i have many boxes of copaxone
Replies: 2
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mmpetunia » Tue Oct 14, 2014 9:44 am
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does anyone want them? i have one box that expires at the end of next month and the rest are all in 2015. i'm in the bay area and if you live...
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It's technically illegal to give prescription medication to someone for whom they were not prescribed.
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Last post by NHE
Wed Nov 05, 2014 8:46 pm
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Last post by MSUK
Tue Sep 30, 2014 5:44 am
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Copaxone and elevated liver enzymes
Replies: 2
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mccpm » Sat Jun 29, 2013 7:48 pm
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Has anyone had elevated liver enzymes associated with copaxone use?
ive been on the regular 1 a day copaxone routine for about 2 months now. a...
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Update on this post. Elevated liver enzymes went away after a few months.. I cut the fish oils down to 6000 mgs a day. Switching to Tysabri now...
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Last post by mccpm
Thu Sep 25, 2014 5:23 pm
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Shattered syringe with Autoject
Replies: 2
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mccpm » Fri May 10, 2013 7:15 pm
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Hi, day 4 of Copaxone. Injected into right hip. I pushed the trigger button and fired. Watching the window go down but then I noticed a sharper pain...
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Hi all. Folowing up on my post from 14 months ago. I did the Copaxone run and after the incident with the shattered syringe it never happened again....
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Last post by mccpm
Thu Sep 25, 2014 5:18 pm
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First generic medication for MS developed
by
MSUK » Thu Sep 11, 2014 5:00 am
New study finds a generic version of Copaxone to be just as effective, safe.
A new study on the first generic medication for Multiple Sclerosis is...
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Last post by MSUK
Thu Sep 11, 2014 5:00 am
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Teva’s Copaxone patent problems continue
Replies: 1
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MSUK » Mon Sep 01, 2014 12:02 am
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Teva Pharmaceuticals Industries Ltd is in trouble again for its multiple sclerosis (MS) injectable drug-Copaxone, as other drug manufacturers seek to...
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This will be a big blow to the company, as Copaxone is a crucial part of its sales. The Copaxone 40mg has already earned $411.5 million in revenues...
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Last post by THX1138
Mon Sep 01, 2014 8:37 am
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Lipoatrophy occurrence for MS patients using Copaxone.......
Replies: 10
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MSUK » Wed Jun 18, 2014 4:51 am
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Lipoatrophy occurrence for MS patients using Copaxone higher than originally thought
The risk of developing lipoatrophy for multiple sclerosis (MS)...
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These studies are important but I can't help but wonder if the competition was behind the funding for it. Anytime you inject anything you risk...
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Last post by HarryZ
Wed Jul 02, 2014 12:13 pm
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Bone pain with Copaxone?
Replies: 1
by
andya » Fri Apr 04, 2014 7:55 pm
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I have been dealing with various bone pain in feet, hips and knees for about the last 3 years. Has anyone else experienced bone pain? I have had many...
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I have only begun Copaxone a few days ago, however was experiencing bone pain for the last year and a half in my hips, wrists and ankles. My new...
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Last post by diamondgem
Wed Jun 11, 2014 7:44 am
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Teva sues FDA over bid to block approval of generic Copaxone
Replies: 1
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MSUK » Mon May 12, 2014 2:06 am
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Teva Pharmaceutical Industries Ltd. sued U.S. regulators seeking to block approval of a generic version of its multiple-sclerosis drug Copaxone, a...
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Teva loses suit against FDA over generic form of Copaxone
Teva Pharmaceutical Industries Ltd. lost a bid to block approval of a generic form of...
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Last post by MSUK
Thu May 15, 2014 12:48 am
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Last post by MSUK
Mon Apr 21, 2014 2:40 am
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Last post by MSUK
Wed Apr 09, 2014 7:53 am
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Last post by MSUK
Tue Apr 01, 2014 4:42 am
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Injection Tracking App for Windows 8 mobile devices
Replies: 1
by
bhanline » Sat Mar 29, 2014 10:01 am
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I created this app for myself to plan and track my Copaxone injections. It may help you too. The app is patterned after the shot book from Shared...
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Welcome to ThisIsMS. Please see our rules of the board which prohibit advertising.
[quote= Arron ]NO advertising is allowed on the message boards,...
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Last post by NHE
Sat Mar 29, 2014 11:01 pm
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Cysts/boils related to MS?
Replies: 2
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SassyBoots » Sun Mar 23, 2014 7:51 am
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Good Moring
My bf has recurring remitting MS. He has been on Copaxone for about nine month, no serious side effects. He is a Welder by trade. About...
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Hi, just another idea of what may be going on. What you describe sounds somewhat similar to shingles. Has the doctor considered this? I got a case of...
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Last post by julu
Thu Mar 27, 2014 12:07 pm
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