A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
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Step 1: Assess/Correct Your Nutrient Imbalances
Replies: 14
by
jimmylegs »
7 years ago
First post
If you have an MS diagnosis, you are likely to have a constellation of nutrient imbalances that have been extensively researched.
If you are...
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Nutrition Guide for Clinicians - Venous Insufficiency and Varicosities
and re this link included in the above - lol i can't say i have ever...
- 14 Replies
- 17166 Views
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Last post by jimmylegs
4 months ago
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Newbies Please Visit here first
Replies: 24
First post
Hi Newbies,
If you have any questions about CCSVI Please write them here and we will do our best to answer them.
Before posting please check to...
Last post
Dear Jimmyleggies and NHE....
can we please make this a sticky or something??
cheer
done! FYI, introduction section is available from the main...
- 24 Replies
- 36720 Views
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Last post by jimmylegs
9 years ago
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jugular vein studies
Replies: 7
First post
The Petrosquamosal Sinus: CT and MR Findings of a Rare Emissary Vein
K. Marsot-Dupucha, M. Gayet-Delacroixa, M. Elmaleh-Bergèsa, F. Bonnevillea and...
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Cerebral venous drainage and its impact on cerebrospinal fluid motion: a retrospective
review of the work of the ISNVD
Clive Beggs 1,2
1. Buffalo...
- 7 Replies
- 972 Views
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Last post by Cece
2 years ago
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- 0 Replies
- 713 Views
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Last post by Cece
2 years ago
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Go Fund Me
Replies: 2
First post
is the url for my project.
Last post
Good luck, 1eye. It's a very interesting concept with obvious application.
- 2 Replies
- 882 Views
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Last post by Cece
2 years ago
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FDA approves bioresorbable stent
Replies: 1
First post
The FDA has recently approved a bioresorbable stent. Could these one day be used for CCSVI?
First Stent That the Body Can Resorb:
Now, the FDA...
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Yes, this looks like a good development. They'd have to be made in jugular vein sizes, which are larger than the sizes used in coronary applications....
- 1 Replies
- 717 Views
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Last post by Cece
2 years ago
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Gene NR1H3 recently discovered interacts with endothelium
Replies: 4
First post
This month was published that a mutation in gene NR1H3 was heavily related to familial PPMS. The big news for CCSVI is that this gene is involved in...
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It seems important to note that the microbiomes of pedatric MS patients are not normal. I think there is a probable relationship between diet in very...
- 4 Replies
- 1114 Views
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Last post by 1eye
2 years ago
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CCSVI UPDATED 2016 -
Replies: 8
First post
Greetings. I intend to post the following paper on Daily Kos on March 2, 2016 at 5:30 p.m. CET (Paris time) which is 8:30 a.m. PST, (11:30 am EST) I...
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Hi Maidmarian,
How did your procedure go with Dr. Arata? Do you have anything to report?
I'd love to hear what it was like, was it easy or...
- 8 Replies
- 3044 Views
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Last post by ThisIsMA
2 years ago
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Advanced CCSVI diagnostic center will be opened in Ferrara
Replies: 2
by
ThisIsMA »
2 years ago
First post
According to this article, an advanced CCSVI diagnostic center will be opened in a few months in Ferrara:
This is translated from an original...
Last post
Hi CureOrBust,
I found this June 4, 2016 article in an Italian newspaper about Dr. Zamboni's space station experiment, and I used Google Translate...
- 2 Replies
- 949 Views
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Last post by ThisIsMA
2 years ago
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Atlas/TMJ treatment with Dr M Amir to negate CCSVI treatment
Replies: 12
First post
I have started this thread to detail my treatment with Dr Amir over the coming months.
Some may already know my story but to recap I do not have an...
Last post
Thanks everyone for your answers . I think that I should give to this disorder of jaw the chance to be treated. Until now with my dentist we have not...
- 12 Replies
- 6383 Views
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Last post by aliki
2 years ago
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Kirsty Duncan wins Etobicoke again!
Replies: 16
First post
Kirsty Duncan has worked tirelessly in Opposition as a Liberal MP in Canadian Parliament, on behalf of all Canadians with MS, and put forward a...
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I suspect CCSVI is caused by some other, possibly genetically transmitted, condition. It has been declared to be congenital. It certainly shares some...
- 16 Replies
- 2822 Views
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Last post by 1eye
2 years ago
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PPMS can be passed to mice by CSF. IS PPMS DIFFERENT?
Replies: 22
First post
What do you think about this article? Is PPMS a different disease that RRMS/SPMS? Does it have an immune or chemical origin?
If this article is...
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New article somehow related to the previous one. This time is about RRMS been passed by B-cells (from peripheral blood)
For sure if this is true,...
- 22 Replies
- 3538 Views
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Last post by frodo
2 years ago
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- 0 Replies
- 829 Views
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Last post by frodo
2 years ago
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Italian team studies Chiropractic care for MS CCSVI
Replies: 3
First post
Hello Dr. Flanagan:
Hugo Macia (his blog -
has just sent me this PubMed study which implies that Neurologists are finally considering the...
Last post
There are a series of studies by Italian Vascular specialists beginning to look at mechanical aspects of CCSVI MS. Here is another published on Pub...
- 3 Replies
- 1052 Views
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Last post by vesta
2 years ago
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ISNVD 2016-moving forward
Replies: 27
by
cheerleader »
3 years ago
First post
ISNVD 2016 will be at the Academy of Sciences in New York City in April.
Keynote speaker will be Jonathan Kipnis---his lab discovered the brain's...
Last post
10:20 – 10:40 AM – Clive Beggs, PhD, “Retrospective overview of CSF and neurodegeneration work undertaken by members of ISNVD.”
Clive Beggs, who...
- 27 Replies
- 2687 Views
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Last post by Cece
2 years ago
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- 0 Replies
- 977 Views
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Last post by Cece
2 years ago
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More about pattern III
Replies: 1
First post
Pattern III in MS lesions is a specific kind of demyelination that looks hypoxic, and therefore it could be more related than others to CCSVI....
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In MS has been linked to Metabolic Stress
Fascinating article.
What factors besides fluid flow could possibly contribute to this stress?
Found in...
- 1 Replies
- 829 Views
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Last post by Rogan
2 years ago
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internuclear ophthalmoplegia, one and half syndrome & CCSVI
Replies: 10
First post
Internuclear ophthalmoplegia(IO) (right sided) + one & Half syndrome.
Yep, I had to google both of those too.
This is the latest fun diagnosis Emma...
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Hello I am new and see this is old. Have you found an answer as I have INO in both eyes and am finding no help. Hope you found relief.
Thanks
- 10 Replies
- 1924 Views
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Last post by vender
2 years ago
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- 0 Replies
- 882 Views
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Last post by frodo
2 years ago
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- 17 Replies
- 6805 Views
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Last post by ianalex
2 years ago
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ANYONE HERE EVER HEARD OF OR TESTED FOR SPINAL AVM?
Replies: 11
First post
THIS WAS NEW TO ME. MAYBE TO OTHERS IT'S OLD NEWS.
I KNOW MY COMPUTER SKILL SUCKS SO IF YOU WANNA GOOGLE SPINAL AMV INFO. YEAH, IT'S NOT DIRECTLY...
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KIM P<
Have you had surgery, I know this was five years ago, if you are still suffering reach out to Dr. Robert Bray
- 11 Replies
- 3721 Views
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Last post by candistick
2 years ago
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Study: How MS Can Be Triggered By Brain Cell Death
Replies: 2
by
ThisIsMA »
3 years ago
First post
Here's an interesting article about a new study:
Brain Cell Death May Cause Multiple Sclerosis :
There's a lot in this article. For one thing...
Last post
the full article (including a description and reference to their model of progressive MS) can be found using Googles advance search using the...
- 2 Replies
- 1426 Views
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Last post by CureOrBust
2 years ago
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Venous anatomy and MS Lesions study abstract
Replies: 2
by
ThisIsMA »
2 years ago
First post
I noticed a link to this study abstract on Dr. Zamboni's twitter page, with the introductory statement: Advanced MR reveals VEINS even in atypical...
Last post
Great finding. Thanks
- 2 Replies
- 957 Views
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Last post by frodo
2 years ago
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Is the CCSVI procedure no longer available in Poland?
Replies: 15
First post
Hi all,
Sorry to create a new thread for this but things really are getting more complicated for some unknown reason.
As stated in a previous...
Last post
I will get this pocedure 3 weeks later in AMED Poland.
- 15 Replies
- 3835 Views
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Last post by husamsdu
2 years ago
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The Missed Immune Connection in the Brain
Replies: 1
First post
The Missed Immune Connection in the Brain listed as #27 in Discovery Magazine's top 100 Stories of 2015.
According to the research -- the jugular...
Last post
Scientific American had a good article this month on the discovery of the glymphatic system. Unfortunately, the online version is only available to...
- 1 Replies
- 1309 Views
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Last post by NHE
2 years ago
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Leukoaraiosis and MS lesions appear in the same places
Replies: 3
First post
From the new article:
They explain that in the aging patients, damage is produced not only by the MS underlying condition, but also by the normal...
Last post
Sounds like an easy study to do: just tabulate the number of cases of whiplash that have MS post-accident. I am awfully fearful of my wife's friend...
- 3 Replies
- 1612 Views
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Last post by 1eye
2 years ago
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CCSVI: Getting the Word Out
CCSVI – Getting the Word Out
Cheerleader has just posted an excellent article on her site Joan Beal “MS: The Vascular Connection” titled “Turf War”....
- 0 Replies
- 1113 Views
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Last post by vesta
2 years ago
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- 0 Replies
- 1100 Views
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Last post by Sharon
2 years ago
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BIG THING!!! ANOCTAMIN-2 AND ENDOTHELIAL CELLS !!!
Replies: 2
First post
Anoctamin-2 is a protein expressed in muscle cells and venous endotelium. You can read about it here:
(Anoctamin)
And why do I post this? Because...
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Significance
Despite the growing evidence that autoantibodies are team players in the pathogenesis of multiple sclerosis (MS), the target...
- 2 Replies
- 1261 Views
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Last post by 1eye
2 years ago
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New article by Marian Simka
PDF fully available at:
Submitted: 21.11.2015
Accepted: 21.11.2015
ABSTRACT
This review summarises current knowledge on the lymphatic system of...
- 0 Replies
- 5210 Views
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Last post by frodo
2 years ago
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the sooner the better
Replies: 3
First post
May symptoms of chronic cerebrospinal venous insufficiency be improved by venous angioplasty? An independent 4-year follow up on 366 cases
Pietro...
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I have never felt any transition into SPMS from RRMS. I have been told by a neurologist that I made the transition as soon as I started using a cane...
- 3 Replies
- 1043 Views
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Last post by 1eye
2 years ago
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modelling of CCSVI physics
Replies: 21
First post
Fourth Chilean Workshop on Numerical Analysis of Partial Differential Equations
January 14 - 18, 2013
Lucas Mueller and Eleuturio Toro are...
Last post
Brain venous haemodynamics, neurological diseases and mathematical modelling. A review
Eleuterio F. Toro, , , E-mail the corresponding author...
- 21 Replies
- 4201 Views
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Last post by Cece
2 years ago
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Quantifying CCSVI
One of the markers of progress with CCSVI research is that we are seeing quantification. Here's an abstract:
Impact of CCSVI on cerebral...
- 0 Replies
- 936 Views
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Last post by Cece
2 years ago
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support for Dr. Arata's theory
edited to add another article:
I disagree with what Dr. Arata posited a few years ago, which was that ballooning the jugulars stimulated the...
- 0 Replies
- 1049 Views
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Last post by Cece
2 years ago
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Research crowd-funding
Replies: 10
First post
People with no illness (i.e. doctors and specialist doctors) have been ranting about how CCSVI is bunk, for years after many people have had...
Last post
As far as research crowd-funding, 1eye, CCSVI Alliance will be holding our matching grant program very soon, giving people a chance to double their...
- 10 Replies
- 1390 Views
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Last post by Cece
2 years ago
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LWW Journals Spotlight on MS... MUST READ ABSTRACT
Replies: 3
by
orion98665 »
3 years ago
First post
Hi all, Just got the abstract in my email today!!!
Thanks,
Bob
Last post
They're talking about how MS impacts the cardiovascular system. Of course it impacts it. The brain controls everything in the body. Damage to the...
- 3 Replies
- 1306 Views
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Last post by Cece
2 years ago
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CCSVI INTERVENTON. NOW I KNOW!!!
Replies: 5
First post
Hi
I come from Austria. I was quite skeptical before undergoing PTA. I suffer from CCSVI and I was diagnosed nearly 5 years ago.
Very confused about...
Last post
Never been so plenty of energy, my legs are no longer heavy, I can see much better and no more headache.
So happy for you. There is nothing like...
- 5 Replies
- 1203 Views
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Last post by Cece
2 years ago
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Parkinson's and veins?
Replies: 1
by
Donnchadh »
2 years ago
First post
I seem to recall seeing some images of a brain with Parkinson's disease with a vein connection.
But I can't seem to find the study so was hoping...
Last post
I remember that too. Hmmm.
Sorry for your friend's diagnosis.
- 1 Replies
- 1010 Views
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Last post by Cece
2 years ago
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Bartonella and CCSVI connection
Replies: 11
First post
Bartonella causes small vessel disease and Neurovascular problems. The bacteria live in the endothelial cells. Could Bartonella be a cause of CCSVI?
Last post
It seems reasonable that Bartonella and other infections could absolutely cause or worsen some cases of CCSVI. In Dr. Sclafani's thread, though, he...
- 11 Replies
- 1467 Views
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Last post by Cece
2 years ago
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Lucchinetti pattern III and CCSVI
Replies: 4
First post
This is an old article but I found it just now. I found it specially interesting because CCSVI theory didn't still exists at the time it was...
Last post
The reason I am confused is because there has been a lot of work showing that there is not a shortage of oxygen (which, by itself, might point to a...
- 4 Replies
- 977 Views
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Last post by Cece
2 years ago
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Study: Pathology of the Internal Jugular Vein Wall in MS
Replies: 12
by
ThisIsMA »
3 years ago
First post
From the Journal of Multiple Sclerosis:
The Pathology of the Internal Jugular Vein Wall in Multiple Sclerosis
Massimo Pedriali1 and Paolo Zamboni...
Last post
Is this not the primary physiology of MS?
Yes, that's what is so d*** exciting about CCSVI. The case is cracked. It needs to be processed and...
- 12 Replies
- 1564 Views
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Last post by Cece
2 years ago
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How are the stents holding up?
Replies: 16
First post
Long time lurker, first time poster. I’ve been wondering how some of the people here who received stents some time ago have been doing? I remember...
Last post
Lucky break: my procedure has been moved up to 23 February.
Scared, worried, and hopeful!
Donnchadh
This is great news. Yes, it does seem like the...
- 16 Replies
- 2375 Views
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Last post by Cece
2 years ago
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Dr. Hubbard's update on the FDA
Replies: 46
First post
from the Hubbard Foundation newsletter
Dr. Hubbard's Update on the FDA
On Wednesday 7/25/12 an FDA Fidld Office inspector met with one of our...
Last post
I went to their webpage today and it's full of script errors and nothing has been updated in some time. The last post on the Hubbard Foundation...
- 46 Replies
- 6640 Views
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Last post by NHE
2 years ago
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Cerebral Vasculitis is prerequisite for MS Lesion Genesis
Replies: 2
First post
The classic acute inflammatory response is typified by a mandatory vascular inflammation and there is considerable
evidence conclusively...
Last post
This fact is being used to justify use of the animal EAE model to research MS.
Your right. I was expecting something more when I read the title....
- 2 Replies
- 962 Views
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Last post by frodo
2 years ago
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- 0 Replies
- 817 Views
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Last post by 1eye
3 years ago
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Researchers Report Alternate Explanation of Why CCSVI Works
Replies: 19
by
ThisIsMA »
4 years ago
First post
Read the whole article here:
Researchers Report Alternate Explanation Discovery Of How And Why CCSVI Treatment Works In MS Patients
Here's an...
Last post
In case anyone is interested, my vagus nerve incident resulted in 3 weeks of unremitting, painful hiccups, finally cured using oral chlorpromazine, a...
- 19 Replies
- 5050 Views
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Last post by 1eye
3 years ago
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Article on Dr Zamboni: Open surgery for CCSVI
Replies: 2
by
ThisIsMA »
3 years ago
First post
I found this TCTMD article through a google news search. See the link below this quote for the full article:
Controversial Intravascular Therapy...
Last post
Hi Cece,
All good questions!
I'll take a guess at one of your questions: Here's the definition of:
phle·bec·to·my (flĭ-bĕk′tə-mē)
n.
Excision...
- 2 Replies
- 1134 Views
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Last post by ThisIsMA
3 years ago
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- 0 Replies
- 1018 Views
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Last post by ThisIsMA
3 years ago
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Understanding Multiple Sclerosis
Replies: 32
by
ANothingNobody »
3 years ago
First post
CCSVI is just one component of a more global, biomechanical disease process which we call MS. I have outlined a framework for understanding MS which...
Last post
You're reading the wrong stuff.
Never would have guessed :roll:
- 32 Replies
- 3683 Views
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Last post by 1eye
3 years ago
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ISNVD Conference 2016
ISNVD 2016 Conference
CCSVI ALLIANCE·TUESDAY, DECEMBER 15, 201529 Reads
Dear Colleagues,
At this time, we are pleased to announce that Registration...
- 0 Replies
- 1163 Views
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Last post by Sharon
3 years ago
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Alternative Treatment/Therapies After Two Failed Treatments
Replies: 1
First post
Hello everyone,
I wanted to start this post because I was having trouble finding a thread that was dedicated to therapies yet to be tried for those...
Last post
In 2010, I started a thread called When CCSVI Fails, try AO and/or the Dentist ,
I had three CCSVI procedures (2010 - 2012). Each corrected major...
- 1 Replies
- 1166 Views
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Last post by Rosegirl
3 years ago
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Poland or Bulgaria for CCSVI
Replies: 1
by
husamsdu »
3 years ago
First post
Hello. I am in a dilemma. I could not choose which is better. Does anyone have an idea?
Poland : Maciej Zarębiński, MD, PhD --- AMEDS Poland...
Last post
Hello, Grozdinski is labeled a bit of a fraud. Not that he is not a skilled or bad doctor but that he is making unnecessary surgeries. He would...
- 1 Replies
- 1047 Views
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Last post by Pesho
3 years ago
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