A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.
-
-
Step 1: Assess/Correct Your Nutrient Imbalances
Replies: 14
by
jimmylegs »
7 years ago
First post
If you have an MS diagnosis, you are likely to have a constellation of nutrient imbalances that have been extensively researched.
If you are...
Last post
Nutrition Guide for Clinicians - Venous Insufficiency and Varicosities
and re this link included in the above - lol i can't say i have ever...
- 14 Replies
- 17150 Views
-
Last post by jimmylegs
4 months ago
-
-
Newbies Please Visit here first
Replies: 24
First post
Hi Newbies,
If you have any questions about CCSVI Please write them here and we will do our best to answer them.
Before posting please check to...
Last post
Dear Jimmyleggies and NHE....
can we please make this a sticky or something??
cheer
done! FYI, introduction section is available from the main...
- 24 Replies
- 36717 Views
-
Last post by jimmylegs
9 years ago
-
-
The central vein sign
Replies: 5
First post
The CVS (Central Vein Sign) is an unmistakeable indication of MS. I expect it is an unmistakeable sign of CCSVI as well. Prevalence studies in...
Last post
More about the CVS
Central vein sign in multiple sclerosis. Ready for front and center?
The diagnosis of multiple sclerosis (MS), while often...
- 5 Replies
- 2074 Views
-
Last post by frodo
10 months ago
-
-
- 0 Replies
- 1068 Views
-
Last post by frodo
10 months ago
-
-
TYSABRI
Replies: 1
by
AkiraLe »
10 months ago
First post
MY DOC IS TELLING ME TO GET ON TYSABRI. DOES ANYONE HAVE ANY POSITIVE RESULTS TAKING THAT MEDICATION?
Last post
MY DOC IS TELLING ME TO GET ON TYSABRI. DOES ANYONE HAVE ANY POSITIVE RESULTS TAKING THAT MEDICATION?
Hi AkiraLe and welcome! There are plenty of...
- 1 Replies
- 1126 Views
-
Last post by euphoniaa
10 months ago
-
-
Trigeminal Neuralgia, MS and Veins
Replies: 1
First post
I noticed a post referring to Trigeminal Neuralgia on the ThisisMS website. Because THX1138 posted something recently I assumed the issue was...
Last post
Dealing with problems of the trigeminal nerve (TN) is similar to the ongoing discussion of CCSVI. Are the veins really blocked, and if so, from the...
- 1 Replies
- 1055 Views
-
Last post by Rosegirl
10 months ago
-
-
Impaired Cardiac Function in MS
Impaired Cardiac Function in Patients with Multiple Sclerosis by Comparison with Normal Subjects
Abstract
Multiple sclerosis (MS), neurologic...
- 0 Replies
- 1234 Views
-
Last post by frodo
10 months ago
-
-
Color vision in multiple sclerosis
Replies: 1
First post
Do you remember the reports about improvement after PTA? Not sure about the relationship, but is worth to read about.
Impairment of acquired color...
Last post
interesting. would be neat to see serum zinc levels in these groups.
personally, i used to see purplish items as grey before restoring nutrient...
- 1 Replies
- 1228 Views
-
Last post by jimmylegs
11 months ago
-
-
study shows PTA helps head-ache long-term in MS
Replies: 2
First post
improvements seen long-term from PTA in RRMS, SPMS, may work in PPMS as well, relieves venous pressure
Last post
improvements seen long-term from PTA in RRMS, SPMS, may work in PPMS as well, relieves venous pressure
Greetings:
Thanks much for posting this...
- 2 Replies
- 1329 Views
-
Last post by vesta
11 months ago
-
-
Cerebrospinal Fluid Dynamics in Patients with MS
Replies: 1
First post
Cerebrospinal Fluid Dynamics in Patients with Multiple Sclerosis: The Role of Phase-Contrast MRI in the Differential Diagnosis of Active and Chronic...
Last post
Cerebrospinal Fluid Dynamics in Patients with Multiple Sclerosis: The Role of Phase-Contrast MRI in the Differential Diagnosis of Active and Chronic...
- 1 Replies
- 1118 Views
-
Last post by NHE
11 months ago
-
-
- 40 Replies
- 4049 Views
-
Last post by Music
1 year ago
-
-
Altitude and blood flow
Replies: 78
by
ElMarino »
9 years ago
First post
Is this relevant to CCSVI?
I was flying transatlantic, home to the UK and when I arrived, and bear in mind my MS was at the stage when I had to give...
Last post
Hi Theskyking,
I don't know the answer to your question and I'm not a medical professional, but if higher elevation makes blood thicker (as someone...
- 78 Replies
- 20698 Views
-
Last post by ThisIsMA
1 year ago
-
-
Jugular Anomalies in MS associated with collateral flow
Replies: 1
First post
Jugular Anomalies in Multiple Sclerosis Are Associated with Increased Collateral Venous Flow
CONCLUSIONS: Compared with healthy controls,...
Last post
This would answer a question raised in the Journal of Vascular Surgery - Venous and Lymphathic Disorders that I read the other day.
The hypothesis...
- 1 Replies
- 884 Views
-
Last post by Cece
1 year ago
-
-
does anyone know the correct Billable codes for a venaplasty
Replies: 6
by
jaynekae »
8 years ago
First post
Hello, I have been evaluated for ccsvi and I am a canidate. But, I have Medicare and my Doctor won't proceed with my venolplasty until finds the...
Last post
Thank you for these diagnoses and codes.
Several of us are wondering similarly.
I think coding has changed (it's 7 years later, now), but this is...
- 6 Replies
- 2349 Views
-
Last post by violin
1 year ago
-
-
Could it be that CCSVI just makes MS worse?
Replies: 6
First post
Could it be that CCSVI just makes MS worse?
This is an idea that came to me after reading an article named The topograpy of demyelination and...
Last post
More about the same:
Vascular comorbidities in the onset and progression of multiple sclerosis
Source:
Abstract
Vascular comorbidities are...
- 6 Replies
- 1367 Views
-
Last post by frodo
1 year ago
-
-
Picamilon - Niacin for the brain (ie Vasodilator)
Replies: 7
by
CureOrBust »
6 years ago
First post
I haven't looked into it too far at this stage, but after stumbling across it, the links are looking interesting.
Picamilon is able to cross the...
Last post
The Latest Insight and Controversy About Picamilon
----------------------------------------------------------
Despite the clear benefits and low...
- 7 Replies
- 3164 Views
-
Last post by NHE
1 year ago
-
-
- 6 Replies
- 1263 Views
-
Last post by cheerleader
1 year ago
-
-
astronaut eyes
Replies: 1
First post
More information on the damage to astronaut eyes during long term spaceflight. It was on CNN's website so probably fake news. Just kidding. Thought...
Last post
NASA and others have used a bed rest model to induce the adverse effects of microgravity on astronauts. Prolonged bed rest, both flat and head down...
- 1 Replies
- 1059 Views
-
Last post by AndrewKFletcher
1 year ago
-
-
- 0 Replies
- 1114 Views
-
Last post by hwebb
1 year ago
-
-
- 0 Replies
- 944 Views
-
Last post by frodo
1 year ago
-
-
brain drain
Replies: 5
First post
The question in my mind is: is it nocturnal (i.e. during REM sleep). If it is, (the mice drained during diurnal sleep -- i.e., during the day) we may...
Last post
Right, Dr. Sclafani has written that the venoplasty treatment of CCSVI should be evaluated and considered for neurologic disease in addition to MS....
- 5 Replies
- 1284 Views
-
Last post by violin
1 year ago
-
-
- 0 Replies
- 916 Views
-
Last post by frodo
1 year ago
-
-
Vit D3>125nmol/L (50ng/ml) in blood. Goal for pwMS
Replies: 821
First post
First step is to take Vitamin D3, minimum level for pwMS is 125 nmol/L of 25-hydroxyvitamin D in blood (50ng/ml). My advice (edited 3 March 13 with...
Last post
A 'so what' paper..................
Why?? Because both pwMS and controls had mean serum 25-OH vitamin D level was 26.07 ± 10.27 ng/mL for the control...
- 821 Replies
- 91746 Views
-
Last post by MarkW
1 year ago
-
-
- 0 Replies
- 880 Views
-
Last post by 1eye
1 year ago
-
-
- 0 Replies
- 921 Views
-
Last post by frodo
1 year ago
-
-
- 0 Replies
- 915 Views
-
Last post by frodo
1 year ago
-
-
- 2 Replies
- 1242 Views
-
Last post by Cece
1 year ago
-
-
Inversion?
Replies: 1
First post
For the past ten years I've used The Back Revolution, an inversion device designed to decompress lumbar discs: Could this work with CCSVI?
Last post
I don't think so. CCSVI means that the blood flow drains more slowly from your head. By inverting, it would drain even slower yet, which would be the...
- 1 Replies
- 967 Views
-
Last post by Cece
1 year ago
-
-
- 2 Replies
- 1056 Views
-
Last post by 1eye
1 year ago
-
-
Horse chestnut
Replies: 15
First post
Do not know if anyone is interested, but I started horse chestnut Dec. 1, in form of venastat: 600mg time realize. started felling foot sensations...
Last post
This is one of the most interesting threads on CCSVI I've read in a long time. Any updates from the folks here who have posted? Thanks.
- 15 Replies
- 6731 Views
-
Last post by theskyking
1 year ago
-
-
Doppler ultrasound tests can be normalised
Replies: 1
First post
It is known that doppler ultrasound tests can yield different results according to the operator. This has been one of the problems leading to...
Last post
This is an interesting study, but I didn't see any mention of how many people with MS were diagnosed with CCSVI versus how many healthy controls were...
- 1 Replies
- 1182 Views
-
Last post by ThisIsMA
1 year ago
-
-
TVAM and stem cells?
Replies: 2
First post
Would love to talk to someone who has had this procedure done recently about what it is and how it went. Has anyone here had it done in the last six...
Last post
I thought this forum was for discussion of CCSVI. Perhaps you should post in the General forum.
TVAM is CCSVI and it is entirely appropriate to be...
- 2 Replies
- 1185 Views
-
Last post by vesta
1 year ago
-
-
jugular veins are 10% narrower in MS than controls
Replies: 7
First post
Source:
Background
Multiple sclerosis (MS) is a chronic disease of the central nervous system. As an association between MS and reduced cerebral...
Last post
I think if Dr. Freedman, and various others, came out with a paper, saying CCSVI theory is true and useful, there would still be paid shills willing...
- 7 Replies
- 1262 Views
-
Last post by 1eye
1 year ago
-
-
- 0 Replies
- 1127 Views
-
Last post by 1eye
1 year ago
-
-
JUGULAR ANOMALIES AND COLLATERAL FLOW IN M.S
Replies: 2
First post
HI Friends please read
regards
seeva
Last post
I think handedness is a big clue to MS, and it will be found to relate to disability. Since both jugular and collateral flow result in physical...
- 2 Replies
- 1440 Views
-
Last post by 1eye
1 year ago
-
-
Inclined Bed Therapy
Replies: 832
by
ErikaSlovakia »
9 years ago
First post
I have inclined my bed couple of days ago.
It is 16 cm higher (only that part under my head). The piece of wood is on a floor.
I have also tried it...
Last post
Ian Cook, Reporter for New Pathways magazine, revisits Inclined Bed Therapy
- 832 Replies
- 187185 Views
-
Last post by AndrewKFletcher
1 year ago
-
-
Upright MRI accepted as invention
Replies: 2
First post
Today I have found this. The date is 16 May. Though I don't know if to achieve the approval of an invention means anything about its efficacy....
Last post
Or simply raising your bed to a five degree head up angle? Been saying this for 23 years now. I was the first person to suggest having MRI scans for...
- 2 Replies
- 1119 Views
-
Last post by AndrewKFletcher
1 year ago
-
-
- 3 Replies
- 1374 Views
-
Last post by 1eye
1 year ago
-
-
Jugular anomalies again (June 2017)
I had to put again together with the date, because would look otherwise like the old Zamboni reports.
Jugular Anomalies in Multiple Sclerosis Are...
- 0 Replies
- 982 Views
-
Last post by frodo
1 year ago
-
-
small vessel disease and MS
Replies: 4
First post
Brain Pathol. 2016 Nov 19. doi: 10.1111/bpa.12460.
Age-related small vessel disease: A potential contributor to neurodegeneration in multiple...
Last post
small vessel disease is different from MS. These are small infarcts in the distribution of small arteries.
They are correlated with vascular risk...
- 4 Replies
- 2176 Views
-
Last post by centenarian100
1 year ago
-
-
- 0 Replies
- 1024 Views
-
Last post by seeva
1 year ago
-
-
Dr. Beggs' new article March 2017
Replies: 3
First post
Inflammatory Disorders of the Nervous System
Part of the series Current Clinical Neurology pp 259-273
Date: 21 March 2017
The Venous Connection: The...
Last post
Inflammatory Disorders of the Nervous System
Part of the series Current Clinical Neurology pp 259-273
Date: 21 March 2017
The Venous Connection: The...
- 3 Replies
- 2361 Views
-
Last post by 1eye
1 year ago
-
-
HOPE AND CONCERN: Dr. Rosa’s Guided Image Upright MRI's
Replies: 66
by
Tamarack »
6 years ago
First post
All of us in the MS community hang on to each new development and watch eagerly when a potential treatment emerges, so I want to attempt to shed some...
Last post
Thanks for sharing your story, Daniel.
Just a question. What is the Atlasprofilax procedure? And does Dr. Rosa advocate for it? thanks.
And...
- 66 Replies
- 16045 Views
-
Last post by vesta
1 year ago
-
-
ISNVD 2017 in Italy
Replies: 31
First post
Here is the program pdf:
Sesssion 3 13.30 – 14.30 - Annette Funicello Presentations
Chairs: Paolo Zamboni – Carol Schumacher
1. J. Winny Yun:...
Last post
A report from ISNVD? It's a detailed 11 page overview of CCSVI, with pages of citations, by Dr. Zivadinov and Dr. Jakimovski of the University of...
- 31 Replies
- 3828 Views
-
Last post by Cece
1 year ago
-
-
Simvastatin trial linked to vascular system
Replies: 1
First post
Professor John Greenwood at the UCL Institute of Ophthalmology investigates the potential benefit of statins in auto-immune diseases and is following...
Last post
Heard a quotation today (not verbatim but similar): Science progresses one funeral at a time.
- 1 Replies
- 1017 Views
-
Last post by 1eye
1 year ago
-
-
CCSVI in Meniere disease
Replies: 1
First post
Mèniére Disease (MD) is a disorder of the inner ear producing vertigo and hearing loss. Circulatory problems seem to be implicated. The researchers...
Last post
I might remind that although used extensively in arterial disease, the term % stenosis is controversial in jugulars due to their non-cylindrical and...
- 1 Replies
- 1259 Views
-
Last post by 1eye
1 year ago
-
-
- 0 Replies
- 915 Views
-
Last post by Rogan
1 year ago
-
-
Treating CCSVI with antibiotics - new website
Replies: 6
First post
Hi there,
I've created a new website to help those who are trying to treat their CCSVI using antibiotics:
Through my journey of being diagnosed...
Last post
1eye, why is it not a surprise you have MS? Is it in your family history?
My dad had diabetes and stroke. My mother had vasculitis. All my siblings...
- 6 Replies
- 1518 Views
-
Last post by 1eye
1 year ago
-
-
Good results presented at SIR2017 for CCSVI in Menieres
Replies: 1
First post
He and his team have also performed angioplasty (percutaneous transluminal angioplasty, or PTA), on 105 of the patients, to open up key neck veins,...
Last post
He and his team have also performed angioplasty (percutaneous transluminal angioplasty, or PTA), on 105 of the patients, to open up key neck veins,...
- 1 Replies
- 969 Views
-
Last post by frodo
1 year ago
-
-
Inclined Bed Therapy (IBT) Feedback Request
Replies: 37
by
AndrewKFletcher »
7 years ago
First post
Hello everyone
I have just uploaded an instructional video which shows how to convert a wooden framed bed (ours) for inclined bed therapy....
Last post
Relapsing remitting ms, sexual function, tremors, bladder control, lethargy
I have been diagnosed with RRMS by Dec 2012. I had a very bad relapse in...
- 37 Replies
- 8525 Views
-
Last post by AndrewKFletcher
1 year ago
-
-
Apology needed from Cheerleader and Cece
Replies: 54
First post
Pre-CCSVI this site had a good vibe. There was some good banter and some good friendships were started (I met 3 TIMS members in the flesh). Then,...
Last post
Someone at bit.ly doesn't seem to want me to see this page.
Try this link.
- 54 Replies
- 5347 Views
-
Last post by NHE
1 year ago
-
-
Do it yourself lymph drainage
Replies: 1
First post
I don't know if this will help CCSVI issues, but it may be worth trying.
Last post
Draining lymph. I thought it was drained into the venous blood...
- 1 Replies
- 907 Views
-
Last post by 1eye
1 year ago
Forum permissions
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
