are there any others besides yourself

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
User avatar
globab
Family Member
Posts: 25
Joined: Thu Dec 03, 2009 3:00 pm

are there any others besides yourself

Post by globab »

just wondering if you are the only one in your family with MS......

for me, there is my younger sister, and myself, and two cousins (that are sibblings)
LR1234
Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California
Contact:

Post by LR1234 »

Aunt had MS.
User avatar
sbr487
Family Elder
Posts: 865
Joined: Tue Nov 24, 2009 3:00 pm
Location: India
Contact:

Post by sbr487 »

my Mom (suspected)
Its so clear in my case that genetics plays a role.
My sister does not have nor she has any characters of my mom ...
User avatar
msgator
Family Elder
Posts: 103
Joined: Wed Mar 17, 2010 3:00 pm
Location: USA
Contact:

Post by msgator »

just me. No one else anywhere in family even suspected.
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
User avatar
caraboo
Family Member
Posts: 68
Joined: Thu Feb 25, 2010 3:00 pm
Location: scotland

ms

Post by caraboo »

Just me , no one else in whole family.

caraboo
User avatar
SandyK
Family Elder
Posts: 221
Joined: Wed Oct 14, 2009 2:00 pm
Location: WA
Contact:

Post by SandyK »

I'm the only one.
Diagnosed 1994, Self EDSS is 6.5
User avatar
TeachX3
Newbie
Posts: 6
Joined: Fri May 07, 2010 2:00 pm
Contact:

Post by TeachX3 »

I am the only one... however, most of my family has other issues, such as severe thyroid problems, migraines, female problems (which I have extensively as well) allergies, etc...
User avatar
Husker48
Newbie
Posts: 7
Joined: Sun Mar 28, 2010 2:00 pm
Location: Sioux Falls, SD
Contact:

Post by Husker48 »

My Aunt had MS and I have a cousin who has it.
I can do all things through Christ who strengthens me. Phillipians 4:13
User avatar
Bubba
Family Elder
Posts: 488
Joined: Fri Feb 13, 2009 3:00 pm
Location: Lithia (Pinecrest, Florida
Contact:

Post by Bubba »

No one else, just me; Thank God....
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.
Lo
Family Member
Posts: 33
Joined: Tue Apr 13, 2010 2:00 pm
Location: Florida
Contact:

Post by Lo »

Just me.
User avatar
L
Family Elder
Posts: 946
Joined: Sat Oct 20, 2007 2:00 pm
Location: The United Kingdom
Contact:

Post by L »

I don't know anyone else with MS except for you lot..

But my dad describes a 'trapped nerve' that he suffered from for a year or so in the 60's, which sounds to me just like my first symptoms of you-know-what.
User avatar
hwebb
Family Elder
Posts: 361
Joined: Thu Nov 26, 2009 3:00 pm
Location: Melbourne, Australia
Contact:

just my luck

Post by hwebb »

my grandmother's grandmother had MS. Skipped all those generations, and has expressed itself in me. I have a suspicion that my Mum has narrow veins too - but not bad enough to cause MS. She has a few of my symptoms. She wont get tested (not even a Doppler). Can't say I blame her, as the medicine options are pretty crappy (bad side effects, low efficacy - not worth it unless your disease is obviously marching forward).
jenf
Family Elder
Posts: 106
Joined: Thu Sep 17, 2009 2:00 pm
Location: Albany, NY
Contact:

Post by jenf »

Just me...
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
User avatar
bromley
Family Elder
Posts: 1898
Joined: Fri Sep 10, 2004 2:00 pm

Post by bromley »

Globab,

TIMS had a poll asking this question. See link to the results below:

http://www.thisisms.com/survey-results-15--0-0.html


All the best

Ian
User avatar
euphoniaa
Volunteer Moderator
Posts: 798
Joined: Sat Jul 15, 2006 2:00 pm
Location: midwest U.S.
Contact:

Re: are there any others besides yourself

Post by euphoniaa »

globab wrote:just wondering if you are the only one in your family with MS......
I have a cousin with MS, my dad and another cousin have HNPP (Hereditary Neuropathy with liability to Pressure Palsies), and I've been diagnosed with both. (Dad had genetic testing, and 50% of their offspring have it.) That means that my peripheral nerves are demyelinating like my central nervous system and I have a missing myelin gene. :) I really think there must be a connection between them.

I write about peripheral neuropathy on here a lot, because it's impossible to tell which of my symptoms are from MS and which are PNS issues. Since the peripheral nerves are all the ones that are not in the CNS (brain/spinal cord), they're just as likely to cause some of the same symptoms as MS - especially for someone like me, but I suspect that other MSers have a few PNS issues as well, even without HNPP.

Here's a bit info for anyone who's interested. This is why I wonder if I would even notice if my MS disappeared. :)

http://www.merck.com/mmhe/sec06/ch095/ch095i.html
Hereditary Neuropathy With Liability to Pressure Palsies

Hereditary neuropathy with liability to pressure palsies is a hereditary disorder in which nerves become very sensitive to pressure, injury, and use.

In this neuropathy, nerves are susceptible to damage resulting from relatively slight pressure or injury or from repetitive use. Usually, this neuropathy starts during adolescence or young adulthood, but it may start at any age...

Peroneal nerve palsy with footdrop, ulnar nerve palsy, and carpal tunnel syndrome commonly develop. Numbness or weakness occurs periodically in the affected area. Symptoms vary from unnoticeable and mild to severe and incapacitating. Episodes may last several minutes to months.
Wishing good health vibes to all of us this morning. :)
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
Post Reply

Return to “General Discussion”