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DoraMaar wrote:I have not been diagnosed with MS. I found you because I have had weird symptoms all my life and just decided to try and find out what was going on. I've had high blood pressure since I was 25 years old. It doesn't run in my family, and at the time it wasn't weight- I weighed 103 lbs. I have never been overweight. I used to have frequent bad headaches, like 4 to 6 headaches a week! And I have brain waves- it feels like a huge wave in your head. They don't hurt. But I have to be real still until it has passed. When I don't feel well, its like the beach in my head- wave after wave. And the newest weirdness was my arms feeling like they weighed 100 lbs. each. It lasted a few minutes and then was gone. I forgot to mention I have tinnitus, ringing in my ears. I'm a mess. I'm looking for some help/suggestions... Thank you. eLF
Hi DoraMaar & welcome! I'm sorry you're going through this, but this site has a lot of information that may help you on your search for answers.
I am afraid, however, that your important questions may get lost on this really long, old (6 years), generic thread, so my first suggestion is for you to wander around the site, read, explore, and ask us any questions you want! Start your own threads with a specific question in the Subject Line and you should get a lot more responses.
As for my own experience, I had weird symptoms my whole life before I got a surprise diagnosis of MS at age 52, but every one of us seems to have our own unique set of symptoms. I suspect that it's because we also have our own unique set of medical conditions that contribute to them -- even if we DO have MS also.
I, too, have had hard-to-control high blood pressure since age 27, but NONE of my doctors think it's due to the MS. And my neuros all agree that it's impossible to identify which of my innumerable symptoms is from MS and which are from my innumerable other medical conditions (and age).
I'll also point out that we're not experts here -- just patients with a lot of varied experiences & opinions, so you really need to find a good doctor to work with to steer you through the process of testing and examination. Also, the best thing you can do for yourself in the meantime is try to optimize your overall health! It will make any future diagnosis much easier to handle.
Good luck to you!
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!