ms at older age

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
User avatar
sous
Family Member
Posts: 25
Joined: Fri Jan 01, 2010 3:00 pm
Contact:

ms at older age

Post by sous » Tue Apr 26, 2011 7:18 am

I was told by my neurologist, that my ms is now too weak (withered away) to attack..
I am 56yrs old female with ms since 13 yrs, on copaxone daily injection since 6 yrs, and no attacks at all.
So, his theory is that at my age with such ms history, ms has withered away.. therefore, he might suggest stopping copaxone, only after seeing a new mri for spine and neck..

have you heard of similar medical opinion?
Many thanks,

User avatar
Filmmaker
Family Elder
Posts: 194
Joined: Fri Nov 13, 2009 3:00 pm

Post by Filmmaker » Tue Apr 26, 2011 10:08 am

absolutely! Google MS burns itslef out after about 25 years... The worst damage is done during the first 5 years of progressive disease, then it gets weaker and weaker... just like any other auto immune disease by the way... but this is very hidden info as there's just too much money involved to let people know that medication will not help in any way but that some day, the disease will have run its course...

User avatar
sous
Family Member
Posts: 25
Joined: Fri Jan 01, 2010 3:00 pm
Contact:

Post by sous » Tue Apr 26, 2011 10:59 am

Hi Filmmaker,
Absolutely?????????

This is the best email i have ever received.... thank you so so much for this great news... oh my God... I will start the search right now..

Have a beautfiul day

User avatar
lovebug
Family Elder
Posts: 177
Joined: Fri Jan 01, 2010 3:00 pm
Location: Canada
Contact:

Post by lovebug » Tue Apr 26, 2011 12:14 pm

Is this really true!!! You mean if I can survive through the first 5 years than I am just coasting through life. Doubt it folks!! But its always `Good to Dream`..............

User avatar
Filmmaker
Family Elder
Posts: 194
Joined: Fri Nov 13, 2009 3:00 pm

Post by Filmmaker » Tue Apr 26, 2011 2:25 pm

lovebug; not the first five years, but the first PROGRESSIVE years of MS... 75% of the damage is done during those years, it does continue a little later, but it gets less and less agressive... research that, you ll see, same applies for RA, Behcet etc... That means if during the progressive phase, you do not end up in a wheelchair in the first five years, chances are you will never need one...

User avatar
Filmmaker
Family Elder
Posts: 194
Joined: Fri Nov 13, 2009 3:00 pm

Post by Filmmaker » Tue Apr 26, 2011 2:26 pm

sous, I've pmed you, check your messages :-)

LR1234
Family Elder
Posts: 1517
Joined: Wed Feb 11, 2009 3:00 pm
Location: California
Contact:

Post by LR1234 » Fri Apr 29, 2011 9:54 am

I know one person personally whose MS stopped progressing but she dramatically changed her diet. She has remained stable for years. (Susie Cornell)

Terry Wahls seems to have reversed her disease process.

Those ladies that wrote the MS recovery diet no longer are progressing (it seems).

They all had secondary progressive but were active in order to get it to "burn out"

User avatar
Filmmaker
Family Elder
Posts: 194
Joined: Fri Nov 13, 2009 3:00 pm

Post by Filmmaker » Fri Apr 29, 2011 11:30 am

Paul there are many articles about that on the internet... However it may take up to 25 years... just like many other auto immune diseases... One simple explanation could be that as we age the immune system becomes weaker, so the inflammation stops...

User avatar
Filmmaker
Family Elder
Posts: 194
Joined: Fri Nov 13, 2009 3:00 pm

Post by Filmmaker » Fri Apr 29, 2011 11:31 am

And I also agree with the very strict diet, ( iam on a gluten, diairy and sugar free diet), as you know many people with MS have food allergies and -or get diagnosed with celiac...

Wonderfulworld
Family Elder
Posts: 776
Joined: Sun Aug 27, 2006 2:00 pm
Location: Ireland
Contact:

Post by Wonderfulworld » Fri Apr 29, 2011 12:07 pm

You know, one part of me thinks...hmmmmm?? but perhaps this really is a reality in some people with MS. I do have a distant relative (not blood relation) who this happened to. She was extremely disabled during her 30's, so much so her family thought she might not make it to 50. Then she stabilised in her late 40's and now she is late 60's, doing ok, swimming a little each day. But perhaps the damage incurred in the first 5 years of progression was negligable for her and she had a mild disease course once she reached 50.
Unfortunately for so many others this is not the case but it is good to think of the positive from time to time!
~~~~~~~~~~~~~~~
Concussus Resurgo
~~~~~~~~~~~~~~~
RR-MS dx 1998 and Coeliac dx 2003
~~~~~~~~~~~~~~~
Tecfidera, Cymbalta, Baclofen.
EPO, Fish Oils, Vitamin D3 2000 IU, Magnesium, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle, Melatonin.

User avatar
maynaka
Family Elder
Posts: 110
Joined: Fri Mar 17, 2006 3:00 pm
Location: Chicago area
Contact:

Post by maynaka » Fri Apr 29, 2011 2:49 pm

I was diagnosed in 84 but did not experience any symptoms until 2001.

I am on my second neuro and neither one has been comfortable specifying what type of MS I have; both have outstanding reps from top hospitals.

I have been following the Wahls program since March 1. My only disability is really walking (or lack thereof). No improvement yet; but my thought is it took nine years to get to this point, so it might take a while to walk again.

Certainly not giving up!

User avatar
maynaka
Family Elder
Posts: 110
Joined: Fri Mar 17, 2006 3:00 pm
Location: Chicago area
Contact:

Post by maynaka » Fri Apr 29, 2011 3:17 pm

Just wanted to add that I do agree, with this disease everyone is different.

Prior to 2001 I was convinced I was misdiagnosed but the MRIs and other earlier tests showed MS. My problem was I was in a very stressful job...add graduate school and a bad diet and there you go!!!

I do believe it can be reversed. I'm reading a really good book "Power Up Your Brain". Recommended by The Healing Coach (I think I signed up for her email newsletter on the Terry Wahls website). It talks about how mindset, etc. can have a physical influence on your brain. A good read!

M

User avatar
sous
Family Member
Posts: 25
Joined: Fri Jan 01, 2010 3:00 pm
Contact:

Post by sous » Fri Apr 29, 2011 4:29 pm

Hi Maynaka,
Since when did u start having walking problems?

User avatar
maynaka
Family Elder
Posts: 110
Joined: Fri Mar 17, 2006 3:00 pm
Location: Chicago area
Contact:

Post by maynaka » Fri Apr 29, 2011 4:47 pm

Started in 2001. Used a cane from around 2002 til about 2006 or so.

I stopped driving around then and started using a scooter outside the house. Now I can walk around the house somewhat for a short time or with a walker. Do need the chair at different times (depends on weather, etc.)

I exercise in a recliner I usually sit in during the day. Problem is we're in a tri-level and in this market...should have sold way back. Oh, hindsight...!

:) :)

User avatar
Mike56
Family Elder
Posts: 105
Joined: Thu May 14, 2009 2:00 pm
Location: BC, Canada
Contact:

Post by Mike56 » Tue May 17, 2011 7:28 am

Hmmmmm........

I was diagnosed when I was 53. I'm now 55......so I'm going to start feeling better in my 80's. Can't wait.

M

Post Reply