Willy,
willysnout1 wrote:I told her I think it would be highly irresponsible to yank his medicine and substitute with an untested substance. I didn't call her irresponsible. I'll only do that after she yanks the Rebif. Of course, there might be a good reason to yank it. Maybe the kid's intolerant of the interferons, and can't do Copaxone either. In that case, she'd be doing the right thing. But from her message it didn't sound as if that's what is going on
I don't think you can split hairs like that....if you call her actions irresponsible, then you call "her" irresponsible...and I don't believe that is your call or my call or anybody's else's call for that matter. And that's because you, nor I nor anyone knows what the exact circumstances are at this moment. In my opinion, I still think it was a very insensitive thing to say to a new member of this forum.
I didn't do that, either. The "quackery bandwagon" is quitting ABCRs and taking LDN because of a fascination with alternative medicine or opposition to the phramaceutical companies. Supplementing an approved therapy with LDN ,or going to it after determining that the ABCRs aren't working for you, is a horse of a different color and I have absolutely no problem with it.
I am going to respectfully disagree with your line of thinking here. You are assuming that this person has made a decision based on why you think she may be making her decision...that being a "fascination" or "opposition" to an approved medicine. We don't know all the facts of what she is basing her decision.
You are also equating an "approved" therapy to that of being an effective therapy. In the past year or so, Dr. P. Behan, Dr. Munari and Dr. Filippini, all very knowledgeable in the world of MS medicine and along with their colleagues, have come right out and stated that the CRAB drugs are not effective and are a waste of time. Drs. Munari and Filippini were more aggressive and stated that Copaxone was basically useless in the treatment of MS. Drs Prineas and Barnett have provided serious proof that the auto-immune system isn't the main culprit in MS. Heck, about 4 years ago, my wife's neurologist here at the large MS Clinic in London, Canada, told her that the research docs were very disappointed in the ABC drugs at that time because they simply weren't doing for MS patients what they originally thought they would do. He would not prescribe then to her because he stated "they won't do you any good!!"
In view of the above, I think it is wrong to condemn someone for not following the "status quo" for MS treatment when the mentioned MS docs are also saying this treatment isn't good either. These are not "quack" docs and have been working with MS for years.
I will always agree with Arron in stating that one must discuss treatment with their doctor and then after learning as much info as possible, make their decision. But I don't believe any of the readers here have the right to call people or their actions irresponsible without knowing all the facts.
Harry
