Lyon,
I think they expected the last MRI to already show MS activity but the docs and myself are blinded to previous MRIs so I really have no idea how long I have had no active lesions. Of course if I don't participate in the next part of the study I don't know if they would even have access to my new MRIs. I do go to the MS clinic at the hospital in Madison but Dr. Fleming is not my doctor. Plus I have to consider how long it will take before they can start the next part of the study. I have to talk to my regular neurologist and get his thoughts but at this point I am ok with waiting 6 months and having a MRI done through my insurance.
Symptoms started in July 2009. I ignored it too long. I was diagnosed as CIS in Nov 09. I did have IV steroids right away as I had a numb tongue and wouldn't you know I talk for a living and love to eat. I also could not tell if I was drooling.
Seriously though it was pretty worrisome my face and eye were also numb and I was having balance problems. I also took balance therapy. I had 1 brain lesion and decided to wait to start the shots. 6 months later in May of 2010 I had 5 lesions. I then swayed back and forth what to do and started the study in July 2010. I had an MRI every month for 5 months then 10 months of treatment ending Oct 2010. So I have no idea of course how many lesions I had by the time I started the ova in Jan. but I was having new tingling and fatigue and I felt cognitively just slower than I had been.
I have to say a couple years before being diagnosed I had strange sensations and balance problems but really just ignored them.
