euphoniaa wrote:Aw hell, I just woke up and suddenly I'm coughing up disgusting, scary-looking stuff after a couple days of no coughing at all. Only 2 more days of antibiotics.
Two jam-packed months later and...the medical saga continues. But at least now, after steering my ownself (brain-damaged as it is) through an ever expanding maze of doctor’s offices, clinics, and testing centers (with contradictory professional advice & very little assistance), I’m finally getting some negative test results! (Mostly.)
After another double round of antibiotics since I last posted above on this thread, PET/CT scans show the ominous pneumonia mass in my lung is finally gone! Kinda. With just traces left. (I posted about my Antibiotic Adventures here: http://www.thisisms.com/forum/antibioti ... 20745.html
I’m feeling pretty good, with little noticeable change to my MS either better or worse (despite weeks of antibiotics and a bombardment of radiation). And…despite the monumental efforts of doctors with visions of dollar signs glinting in their eyes, none have been able to dx me with any of the varieties of cancer they’ve looked for. (So far.) Dr. Gyno Gal scheduled me for a colposcopy & possible biopsy – not needed after all! At last week’s annual dermatologist appointment, Dr. Derma Dude found nothing to biopsy for a change!
My thyroid nodules don’t show cancerous on PET scan either! (I guess the nodules technically give me another NEW dx of “goiter,” but all docs assure me that, “Everyone in our state has thyroid nodules. We’re too far from the ocean.”) THAT story: Last month I was sent to a Cancer Center for a consultation to order the I-131 test for the thyroid nodules. On review of my other issues, the cancer doc could hardly contain his glee at the prospect of a patient with so many potential diseases and so much insurance! (I hear there are 3 new
Cancer Centers in town competing for sick people.)
Dr. Cancer Guy spent an hour trying to sell me on the idea of possible LUNG CANCER instead of (or along with) thyroid cancer, seeming surprised at my basic "ho-hum" shrug at his efforts to leave me cowering in the corner, begging for his help. (If I only had a $1 for every time he yelled “lung cancer” at me…) Somehow he convinced my insurance company to approve a whole body PET scan – for 3 days later – even though I was still coughing my guts up from pneumonia. At the advice of the pleasant Pulmonary People at the next
day’s appointment, I pushed the PET ahead 3 weeks to let the new antibiotics clear my lungs enough to prevent a false lung cancer reading.
The full PET/CT scan showed no obvious cancer anywhere, although all my scans do show the thyroid nodules & the major hiatal hernia, etc., etc. I keep reminding my docs that, geez, at my age, pics of my insides won’t look any younger or healthier than pics of my outsides do…
A surgeon still did a biopsy of my thyroid last week, just in case, and will do an endoscopy this Wed. in preparation for possible hiatal hernia surgery. The hiatal hernia/reflux has been acknowledged as the sole cause of my aspiration pneumonia, and I’ve pointed out many times that it’s caused much more distress in my life than MS ever has. I just choked yet another meal into my lungs on Monday night.
And my current distress is mainly from my bodyful of arthritis, since I’m forbidden to take any anti-inflammatory meds like aspirin or ibuprofen for a week until the endoscopy on Wed. I’m even hobbling around today with my right, non-MS knee wrapped to reduce swelling and pain. Sigh. It’s not always MS, it’s not always MS, it’s not always MS...
So, in the last 3-1/2 months – and almost totally unrelated to MS -- I’ve had:
Many chest X-rays, 4 days in the hospital, lots of blood work, 1 leg X-ray (on my non-MS leg), EMGs (on the non-MS leg), 2 spinal MRIs, 2 CT scans of my lungs, 1 whole body PET/CT scan, 1 colposcopy (don’t ask…you don’t want one), 2 ultrasounds & a biopsy of my thyroid.
And I’ve been to all these docs (TOTALLY unrelated to MS): Primary M.D., Pulmonary People, Physiatrist/Rehab Doc, Gynecologist, Oncologist, Dermatologist, Surgeon – most of them more than once.
I’m still working full-time (when I’m not at doctors’ appointments), exercising daily, and hanging in there with my MS slooooowly progressing as usual (I'm a little more dependent on my cane), and no obvious effects on it whatsoever from the recent ordeal(s). I always assume that comes from having Old MS instead of New MS.
Wishing good health, good doctors, good moods, and good days to all of you!