This Is MS Multiple Sclerosis Knowledge & Support Community

Jaded wrote:I know it's been a while since I've been here - it's been a difficult few months!

Anyway here I am with a diagnosis of trigeminal neuralgia. I don't want it to be that and I am trying to hold off taking the carbamazepine because of the side effects. It seems that if it's caused by 'MS' there is no surgical solution, just hard core drugs.

I'm not sure what triggered it - I haven't had a relapse in years. But today has been really painful so I may have to take the carbamazepine - it would be nice to eat!!


Has anyone here had this problem, or can anyone suggest anything that may help? I'd be so grateful.

Thanks

J.

Consider the work of Dr. Farough Owiesy of Corona CA who specializes in migraine headaches and Trigeminal Neuralgia. He has begun to treat CCSVI-MS with an injection of dexamethasone/lidocaine/thiamine in the area around the Internal Jugular Vein. According to my sister who has struggled with Trigeminal Neuralgia these past 5 years (no MS) she was injected with the same mixture (a different B vitamin than Thiamine) which freed her from pain for a time until an accident triggered it off again (i.e. stress event).

Dr. Owiesy’s thinking ?

Dr. Owiesy has observed that when the middle layer of the vein composed of smooth muscles go into spasms, blood flow is obstructed. Again the problem resides “exterior” to the vein, not “interior”.  The veins may be weak or somehow defective, but the mechanism which shuts off the blood flow isn’t “intima”.  This corresponds completely to my experience. The treatment?  Dr. Owiesy administers a mixture of dexamethasone/lidocaine/thiamine in the area around the Internal Jugular Vein. Outcomes have been impressive, risks and expense minimal. 
 
His observations are consistent with the following recent research from the Buffalo New York University Department of Neurology.
http://link.springer.com/article/10.100 ... 015-9599-y
Molecular Neurobiology
January 2017, Volume 54, Issue 1, pp 362–37
"Impaired Neurovisceral Integration of Cadiovascular Modulation Contributes to Multiple Sclerosis Morbidités".
“Multiple sclerosis (MS) is an inflammatory demyelinating central nervous system (CNS) disease with an uncertain etiology. MS... we propose that the dysregulation in the neurovisceral integration of cardiovascular modulation can lead to many MS-related clinical symptoms...the manifestations of cardiovascular autonomic nervous system (ANS) dysfunction. The strategies for improving sympathovagal balance would likely prevent and minimize many MS-related clinical symptoms”

Dr. Owiesys has presented at least 2 papers to the International Society for Neurovascular Disease (ISNVD) founded 2011.

My point :

If the same mixture is being use to relieve CCSVI-MS and Trigeminal Neuralgia, perhaps that is something to consider, do some research.

I understand the pain is terrible. The injection did work for my sister for a time and I think she should be encouraged by that and continue treatment.

Best regards, Vesta

Quotes previously published on my site
https://www.mscureenigmas.net/

PS; I just noticed jaded's initial post dates from 2015. THX1138's recent post caused me to overlook the dates. Sorry. The info should still be helpful. I hope jaded is no longer suffering from TN. Any news?

Vesta, THX1138

Apologies I have only just checked back here. Thank you both for the info you posted.

Regarding the TN, it seemed to respond to acyclovir which I took when I had a cold-sore coming, and having seen Scott1's valcylovir posts and spoken with him about this, I asked the docs to let me take this med daily. It's been much better since although I do still get periods when I get a relapse. Nothing compared to the pain I had initially. It's pretty heavy duty but everything has a price.

I hope your sister is doing better Vesta.