I'm glad to see the creation of a separate forum group / page for this here as I believe that Biotin is going to continue to be a hot topic within the MS community, especially for those with PPMS such as myself.
Cerenday is MedDay's name for their high dose biotin treatment.undisclosED wrote:Just a little clarifiation, the medication is named MD1003, and the trials were for PPMS and SPMS patients.
http://www.ukmi.nhs.uk/applications/ndo ... rugID=6454
Generic Name: biotin
Trade Name: Cerenday
This whole thing that MS and diabetes are related:
Journal of Immunology (April 1 and February 15, 2001).
http://www.sciencedaily.com/releases/20 ... 074643.htm
Multiple sclerosis (MS) and type I diabetes mellitus are autoimmune disorders, where the body's immune system attacks its own tissue. The diseases are entirely different clinically, but have nearly identical ethnic and geographic distribution, genetic similarities, and, as is now known, shared environmental risk factors.
https://www.raypeatforum.com/forum/view ... 215&t=8043
I have posted more information and or the topic of the GcMAF topic…
Not a doctor.
I wondered the same thing, so created the following pole, in the hope to get some general self reported results:1eye wrote:Has anyone on biotin 300mg had any results?
http://www.thisisms.com/forum/biotin-ce ... 27563.html
What I did get were some small improvements in the ability to move my left foot/ankle/toes.
These were observable by my physio.
Lately, I have been able to walk (lurch) a few steps without support.
The net effect is to make it easier for my FES to help my walking with a rollator.
I am on Biotin 300mg since 6 month with no benefits up to now. I will finish 24 month.1eye wrote:Has anyone on biotin 300mg had any results? I think my walking speed has improved but my stamina not yet. It is getting to be around the 1 year mark. I will keep on it because it seems to have a positive effect on my lower digestion. I also use rice bran as a filler so I get some vitamin B that way...
Improvements I have seen: digestion (I don't have to worry about Codeine so much anymore)
hair (it grows all over my body now: I never had chest hair before)
stamina and strength -- I am now doing exercises with a cable-weight machine. I am playing a lot of
piano. The weight training has helped my grip strength on my weak side, as well as arm and core
muscles. I was playing catch with a 5 lb sand ball and catching it on the weak side. I will be doing
ball-balancing which is good for my core. I do sit-to-stand exercise which has helped me get in and
out of my recumbent tricycle. I might be walking faster.
Improvements I have not seen yet: Dorsiflection of my weak side still not there. I wear an AFO which does not help. Thigh muscle on my weak side does not work.
I have significant pain in my lower back. Will try a back brace.
Did 15km on my tricycle today.
Good luck with biotin.
Not a doctor.
Today I went to see an endocrinologist because my GP had noticed my thyroid was sky-high.
I told her about taking 300 mg per day of biotin. What she said was interesting. Apparently biotin can change thyroid test results. Apparently it acts as a signaling molecule between the pituitary and the thyroid. Presumably the effect is to turn the thyroid down, which may, in my case, result in less heat sensitivity. Wouldn't that be nice?
http://www.pharmacistanswers.com/thyroi ... iotin.html
By Stacy Holcroft Pharm.D
biotin can interfere with your blood test results. In simplest terms, the tests used to measure thyroid hormone and TSH (Thyroid Stimulating Hormone) levels have molecules that bind to biotin which can result in either a false low or false high result in the test. It can artificially throw off the blood test levels in either direction. Most studies tend to show that biotin causes more false-low measurements of TSH than false-high measurements but again, it can go either way.
Additionally, please make sure you let your doctor know that you have been taking biotin supplements, and let him/or her know how many days in advance of your test you decided to discontinue. The practitioner may also have experience in this area and can provide some helpful information for you. In addition to taking an oral biotin supplement, it is important to note that many foods contain biotin naturally. Some of these foods include sunflower seeds, walnuts, pecans, green peas, lentils, carrots, mushrooms, cauliflower, avocado, organic dairy foods, egg yolks (not the white), and organ meats (like liver). Dietary sources of biotin typically should not have much of an effect on the tests however since supplementation doses often far exceed the amount you get in your diet.
Please be aware that the biotin doesn’t actually affect your true thyroid hormone levels at all, just the test results.
Not a doctor.
High dose biotin can affect many tests. Here's a list put together by Medday.1eye wrote:Today I went to see an endocrinologist because my GP had noticed my thyroid was sky-high.
I told her about taking 300 mg per day of biotin. What she said was interesting. Apparently biotin can change thyroid test results.
To understand the interference and why biotin produces either a false low or false high result, have a look at their sandwich and competitive immunoassay schematics.
Sandwich Assay: http://medday-lab.com/sandwishAssays.html
Competitive Assay: http://medday-lab.com/competitiveAssays.html
Not a doctor.
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