Overcoming MS - Diet and Lifestyle Feature Week

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MStranslate
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Overcoming MS - Diet and Lifestyle Feature Week

Post by MStranslate » Sun Jul 17, 2016 4:34 pm

Hi all,

Just as a way of introduction, we will be conducting a Feature Week on Facebook this week week with Professor George Jelinek and the Neuroepidemiology Unit from The University of Melbourne. You may already know George through his association with the Overcoming Multiple Sclerosis group. We will be posting a number of videos with George and members of the team, where they will discuss their research into using diet and lifestyle modifications to manage MS. George, who was diagnosed with MS over 10 years ago himself, has successfully developed this protocol and has seen great benefits personally from it.

On Thursday evening (6pm AEST), we will be hosting a live, online Q&A with George and two other members of his team. This Q&A is open for anyone to join and participate in, allowing for members of the community to engage in conversation with these researchers and ask any questions that they may have. More details will be posted about this throughout the week. We would love to get as much community engagement as possible during this week, so please interact with us on Facebook and like, comment and share as many of the posts as possible.

The first feature, an introductory video with George, will be posted at 4pm AEST today. We look forward to all of your contributions!
Brett Drummond

MS Researcher/Science Communicator/Co-Founder of MStranslate
www.mstranslate.com.au
Facebook: www.facebook.com/MStranslate

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Petr75
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Re: Overcoming MS - Diet and Lifestyle Feature Week

Post by Petr75 » Thu Jan 31, 2019 12:34 am

2018 Dec 12
Neuroepidemiology Unit, Centre for Epidemiology and Biostatistics, Melbourne School of Population and Global Health, The University of Melbourne, Australia
Health Outcomes and Lifestyle in a Sample of People With Multiple Sclerosis (HOLISM): Longitudinal and Validation Cohorts
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6299875/

Abstract
Objective: To report the methodology and summary data of the Health Outcomes and Lifestyle In a Sample of people with Multiple sclerosis (HOLISM) longitudinal and validation cohorts. We report (1) data on participation, socio-demographics, disease characteristics, medication use, modifiable lifestyle risk factor exposures, and health outcomes of the HOLISM longitudinal cohort 2.5-years post enrolment; (2) attrition at this 2.5-year wave; and (3) baseline characteristics of the associated HOLISM validation cohort.

Methods: The HOLISM longitudinal study recruited people internationally with self-reported diagnosed multiple sclerosis (MS) through web 2.0 platforms and MS society newsletters. Participants, first recruited in 2012, were invited 2.5-years later to participate in a follow-up survey. At both time points, participants completed a comprehensive online questionnaire of socio-demographics, modifiable lifestyle exposures, and health outcomes using validated and researcher-designed tools. The same methodology was used to recruit a new sample: the HOLISM validation cohort. Characteristics were explored using summary measures.

Results: Of 2,466 people with MS at baseline, 1,401 (56.8%) provided data at 2.5-year follow-up. Attrition was high, likely due to limited amount of contact information collected at baseline. Completion of the 2.5-year wave was associated with healthier lifestyle, and better health outcomes. Participants completing follow-up had diverse geographical location, were predominantly female, married, unemployed or retired. At 2.5-year follow-up, nearly 40% were overweight or obese, most were physically active, non-smokers, consumed little alcohol, used vitamin D/omega-3 supplements, and 42% reported current disease-modifying drug use. Thirty percentage of reported cane or gait disability, while 13% relied on major mobility supports (Patient Determined Disease Steps). Approximately half the respondents reported a comorbidity, 63% screened positive for clinically significant fatigue (Fatigue Severity Scale), and 22% screened positive for depression (Patient Health Questionnaire-9). The validation cohort's characteristics were mostly consistent with previously reported HOLISM baseline data.

Conclusions: Exploring prospective associations of modifiable environmental/behavioral risk factors with health outcomes in this international longitudinal sample of people with MS will be beneficial to MS research. Impacts of attrition and selection bias will require consideration. The validation cohort provides opportunity for replication of previous findings, and also for temporal validation of predictive models derived from the HOLISM cohort.

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