just diagnosed yesterday; my husband was diagnosed in May

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MSKarateka
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Re: just diagnosed yesterday; my husband was diagnosed in Ma

Post by MSKarateka »

If vitamin D plays such a huge role in MS then higher latitudes in and if themselves have little to do with increased rates of MS. It is the decreased natural Vitamin D that goes along with the higher latitudes due to warmer clothes, and less sunlight availability. According to my doctor, Maine (my state) has approximately twice the national average. We have long winters. Population Vitamin D levels are also extremely low in relation to the rest of the country. Mine was too low to measure accurately. It is perfect now though.

I wonder it Inuit diets (fish, whale, etc.) have more vitamin D than the lower 48 as well.
ElliotB
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Re: just diagnosed yesterday; my husband was diagnosed in Ma

Post by ElliotB »

The diet of the Eskimos and Inuit is a high fat diet rich in essential nutrients (fat/blubber is loaded with nutrients and the fats from wild caught fish is loaded with essential fatty acids and nutrients essential to good health). What those specific nutrients specifically are I am not sure but vitamin D and Omega 3 fat and other EFAs (essential fatty acids) would be included in them:

Top 10 Vitamin D Rich Foods
(from https://draxe.com/top-10-vitamin-d-rich-foods/)

1) Sunlight
Promotes vitamin D synthesis from cholesterol in the skin.

2) Cod liver oil
1 tsp: 440 IU (over 100% DV)

3) Sardines
3 ounces: 164 IU (41% DV)

4) Salmon
3 ounces: 400 IU (100% DV)

5) Mackerel
3 ounces: 400 IU (100% DV)

6) Tuna
3 ounces: 228 IU (57% DV)

7) Raw Milk
1 cup: 98 IU (24% DV)

8) Caviar
1 oz: 33 IU (8% DV)

9) Eggs
1 large: 41 IU (10% DV)

10) Mushrooms
1 cup: 2 IU (1% DV)

It is important to know that the food items listed (fishes) MUST be wild caught and the milk should be used ONLY from grass fed cows for maximum health benefits. Ultra high Omega 3 fat eggs (significantly higher than the typical 'supermarket' eggs like E&B) are now available.
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1eye
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Re: just diagnosed yesterday; recalcitrant lesions

Post by 1eye »

This is a theory. It is based on the weird circumstance Dr. Zamboni is familiar with, where people get recalcitrant lesions on their feet, ankles, and lower legs. It is a way MS (maybe) can be a pathogen, an environmental toxin, sexually transmitted, and part of the gut flora. Once these lesions take hold they are recalcitrant. Blood circulation is more difficult in the feet and lower legs of bipeds who cannot walk enough, because it is partly done by muscular pumping of muscles which squeeze blood vessels. That is easy in healthy people. All they have to do is walk. It is venous blood return that is difficult. We have valves in our legs to make the task of returning venous blood upwards (towards the heart), easier. MS sufferers are familiar with purple feet.

Seeing recalcitrant lesions in photographs, the obvious question is, where do they come from? A person who wears good footwear and socks, should not so easily have skin disruptions on their feet or ankles. I think the sufferer has a good idea where they come from. The infections feel different from skin infections one gets anywhere else on the body. That is, I think, because of a particlar bacterium, streptococcus. It feels immediately like an infection. The infected feeling is continuous, not going away until it is healed.

I am not misogynistic. While this bacterium may be coming from a spouse, the spouse can be a man or a woman.

It may be that this bacterium does not do well in cold. The Inuit protect their feet with warm furs, and are careful not to get frostbitten feet. They do a lot of standing when they drive dog sleds, and since wheels and horse travel are more difficult in snow, they probably do the difficult walking in snowshoes.

The Japanese study of gut flora of MS sufferers found over-representation of streptococcus. This bacterium is pernicious, causing serious injuries when it gets under the skin. Don't forget that gut bacteria are probably all very dangerous when they get into the blood. They probably can pass through the blood-brain barrier.

My wife has a probably very unusual habit. Sometime before morning, her right foot starts hunting. It carefully checks out the location of my feet. When it is sure of their location, it strikes, scratching the skin on my feet and legs with its big toenail. I have watched it do this, when she is fast asleep. The result is that I get mysterious recalcitrant lesions on my ankles and feet. They have taken six months to heal, with daily nursing wound care. The ones I have currently have been there over a month. When I get other cuts on my lower legs that do not have this infection, or have better blood supply, they heal in days, two weeks at worst. Her toenails are probably rife with streptococcus.

We have placed pillows at the bottom of the bed. They mostly stop her feet from wandering, but her predatory toe has also been found to perch on top of them. Twin beds are probably the only good answer.

It may have been that Achilles had a recalcitrant infection on his heel. Both my heels have been sites of very recalcitrant infections, possibly because of scarce blood supply. Once Achilles had an infected heel, problems walking may have made it recalcitrant, and he may have had amputation, gangrene and death.

I intend to soak my feet in hydrogen peroxide, and ask my wife to do the same.
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ebrownkirkland
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Re: just diagnosed yesterday; my husband was diagnosed in Ma

Post by ebrownkirkland »

Wow! Thanks, everyone, for responding! I've been reading through all of your answers and this is really interesting! A couple of things to note about me and my husband:

1. He drinks a lot of Diet Coke, but I do only on occasion (furthermore, while I realize artificial sweeteners aren't good for you, there is no actual causal effect between artificial sweeteners and MS)
2. I did most of my growing up (between the ages of 5 and 15) in South Dakota; he is from Mississippi
3. Both of us have been tested for Lyme (as well as for a litany of other things) and we are negative

The only link I have found that sounds somewhat interesting is that we both lived on what was at one time a military base. The grounds had to be cleaned before houses could be built there. I do wonder how many other people in that neighborhood (which now has an elementary school on it) have been diagnosed with MS... I understand that there is a relatively high incidence of MS among the military population.
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1eye
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Re: just diagnosed yesterday; my husband was diagnosed in Ma

Post by 1eye »

ebrownkirkland wrote:Wow! Thanks, everyone, for responding! I've been reading through all of your answers and this is really interesting! A couple of things to note about me and my husband:

1. He drinks a lot of Diet Coke, but I do only on occasion (furthermore, while I realize artificial sweeteners aren't good for you, there is no actual causal effect between artificial sweeteners and MS)
2. I did most of my growing up (between the ages of 5 and 15) in South Dakota; he is from Mississippi
3. Both of us have been tested for Lyme (as well as for a litany of other things) and we are negative

The only link I have found that sounds somewhat interesting is that we both lived on what was at one time a military base. The grounds had to be cleaned before houses could be built there. I do wonder how many other people in that neighborhood (which now has an elementary school on it) have been diagnosed with MS... I understand that there is a relatively high incidence of MS among the military population.
I have no info or opinions re military. I suspect my gut flora were messed up for a long time with a bad diet, and something kicked off a chain reaction that was waiting to happen. The best defense is a good offense. Your diet is key, and though it is probably OK to stray occasionally, a long-term bad diet can mess you up for good. Eat right and don't fall for commercial industrial non-food. Raw, raw, raw, that's the spirits we have around here. And exercise. Keep fit, keep active, don't let a desk job melt you down. I think a desk job can kill you with inactivity. Do both aerobic and anaerobic. If you get control of these things, MS may be a distant bad dream.
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"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
vesta
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Re: just diagnosed yesterday; my husband was diagnosed in Ma

Post by vesta »

ebrownkirkland wrote:Wow! Thanks, everyone, for responding! I've been reading through all of your answers and this is really interesting! A couple of things to note about me and my husband:

1. He drinks a lot of Diet Coke, but I do only on occasion (furthermore, while I realize artificial sweeteners aren't good for you, there is no actual causal effect between artificial sweeteners and MS)
2. I did most of my growing up (between the ages of 5 and 15) in South Dakota; he is from Mississippi
3. Both of us have been tested for Lyme (as well as for a litany of other things) and we are negative

The only link I have found that sounds somewhat interesting is that we both lived on what was at one time a military base. The grounds had to be cleaned before houses could be built there. I do wonder how many other people in that neighborhood (which now has an elementary school on it) have been diagnosed with MS... I understand that there is a relatively high incidence of MS among the military population.
I think you've found the cause of your MS, it's called TOXICITY (contaminated military base) which can lead to any number of "diseases" when the immune system is overwhelmed. It depends on the point of vulnerability where the problem develops. This requires reducing other toxins (e.g. aspartame) and whatever is individually "toxic" for example glutens.

Below find my Five Steps to MS health.


MY FIVE STEPS TO MULTIPLE SCLEROSIS HEALTH

1. DETOXIFY
“Dr. Hyman explains his 10 day detox diet.
want2bike (From Thisisms.com)
I had the advice/assistance of a kinesiologist/nutritionist and won’t myself suggest a detox protocol. Dr. Hyman maintains that a simple diet change over 10 days will do the trick (or at least be a beginning) which is something anyone can try. So why not?
See also Detoxification and Supplements

2. OPTIMAL NUTRITION AND SUPPLEMENTS http://www.mshope.com.

3. ENHANCE BLOOD/CEREBROSPINAL FLUID CIRCULATION - CCSVI
AND STIMULATE ANS Autonomic Nervous System

(See Acupuncture (which includes Tens Self Acupressure) 
Simple blood/cerebrospinal fluid circulation thérapies such as massage,  acupuncture, neuro-muscular electrical stimulation, osteopathy, or swimming may suffice. I do daily Tens self acupressure treatments to stay afloat and try to get an acupuncture or osteopathic treatment once a month. A serious venous blockage may require ANGIOPLASTY. Prior to taking that decision, one might consult a specialist in skeletal disorders (e.g. Chiropractors or Osteopaths) to be certain a bone, muscle, tendon etc is not obstructing the vein. Best diagnostic tool – FONAR Upright Cine (as in cinema) MRI)

Consider Dr. Arata’S TRANSVASCULAR AUTONOMIC MODULATION (CCSVI plus massage) or Dr. Owiesy’s injection of a mixture of dexamethasone/lidocaine/thiamine in the area around the Internal Jugular Vein. Outcomes have been impressive, risks and expense minimal. 
 
4. SUNLIGHT OR UV RAYS on the skin at least 15 minutes daily to release Nitric Oxide essential to vascular health and blood circulation.

5. EXERCISE BUILD UP PROGRESSIVELY (Consulting a Physical Therapist can help.)

Be creative. Tif of ThisisMS has recovered function with Neuromuscular electrical nerve stimulation in the Onyx Body Shaping and Slim Spa which uses “Madame and Monsieur Electro-Slim Technology”. Hugo Macia (http://www.secretosdelaesclerosismultip ... pot.com.es.) is testing on himself a German made Neuromuscular “jacket” to regain function. See https://www.miha-bodytec.com/en/product/
He has brought to my attention the Bio-Magnetic Pair therapy used widely in Spanish speaking countries. It may prove useful as an “energy” therapy like acupuncture, in this case magnets are used to harmonize the body’s electro-magnetic field. Maybe worth a try.

I also use the homeopathic remedy Oscillococcinum by Boiron to head off a virus.

Previously published on my site http://www.mscureenigmas.net
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