Re: Experimental Tongue Therapy Helps Restore Brain Function
Posted: Sat May 04, 2019 11:37 pm
A small pilot trial with the PoNS in 10 MS patients found positive results on the Multiple Sclerosis Impact Scale-29 (MSIS-29) survey.
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It's 2 weeks of intensive PT at the clinic followed by 12 weeks of at home PT with weekly testing at the clinic. Yes, the price is steep. Did they send you the treatment protocol files?hargarah wrote: ↑Fri Jun 07, 2019 7:56 am I called Apollo in Ottawa and they said they should have the PoNS devices in stock by August. They put me on "the list". I also heard that the cost is around $30,000.00!
This is really insane. I mean is the device made out of Gold or Platinum? Finally there is a treatment that helps and they price it to the MAX!!!!
Regarding the cost, I had a family member who was in PT following both hip and knee replacements. Medicare was billed $380 for a half hour session if I remember correctly. PT isn't inexpensive. Here in the US, a PhD is required to be a physical therapist.NHE wrote: ↑Sat Jun 08, 2019 2:29 amIt's 2 weeks of intensive PT at the clinic followed by 12 weeks of at home PT with weekly testing at the clinic. Yes, the price is steep. Did they send you the treatment protocol files?hargarah wrote: ↑Fri Jun 07, 2019 7:56 am I called Apollo in Ottawa and they said they should have the PoNS devices in stock by August. They put me on "the list". I also heard that the cost is around $30,000.00!
This is really insane. I mean is the device made out of Gold or Platinum? Finally there is a treatment that helps and they price it to the MAX!!!!
Here's a description of their treatment.
Answers to NHE's questions:Hello,
As promised, here is my feedback after 4 weeks:
The first 2 weeks went well, physiotherapists are really great and I met really nice people at the clinic.
After 2 weeks comes the first assessment.
Results were really good, balance improved and some symptoms (spasms + pain behind my eye) almost disappeared.
As balance and gait are somehow linked, gait also improved.
Quality of sleep also improved significantly.
Needless to say how happy I was!!!
Middle of week3: I don’t know what happened but all improvements disappeared.
I guess it was just a placebo effect.
What a disappointment…
I noticed a small improvement while doing the physical exercises in the clinic.
However, it might just be a consequence from the physical therapy.
So,
I’m a bit disappointed as I had huge hope.
Also, the current weather (very hot) is not helping.
I am sorry, I would love to tell you the PoNS is like magic, but it ain’t true .
I will continue the program and provide new feedbacks after week8 (second assessment) or before if anything special…
NoElliotB wrote: Did a reasonable number of the people you met have favorable results?
Not only my case but also the numerous MSers (& others) I met in the clinic who came cause of Doidge's book.
Sorry Elliot for my very short answer.
Montel is likely biased. He was a cofounder of MPJ Healthcare, the company that became Helius Medical. The Montel Williams Foundation owns 1.4 million shares of Helius Medical. Moreover, Montel Media was paid $245,000 during 2017 & 2018 by Helius Medical to promote the PoNS.zen2010 wrote:For MSers, Parkinson, and other autoimune diseases, that means 5K for life...
This is not an option (we are not celebrities like Montel Williams!)