Does this aching pain ever go away?

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Rowena
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Does this aching pain ever go away?

Post by Rowena » Sat Aug 25, 2018 12:28 pm

I was diagnosed with this almost a year ago. Everyone said it would get easier and I would feel more normal every day. Not a day goes by that I don’t break down crying over what my future is going to be. The thought of people I know finding out about this makes me cry. I am so humiliated by this I have to pretty much whisper when I am talking to someone at the Dr at check in.

I want to know what I did so wrong in life to deserve this. I honestly don’t see the point in anything since it will all end in the same place with me unable to work and being fully or partly blind and needing some type of assistance to walk.I just want to feel normal again and stop crying but I don’t see how. I know my dream of this being something else if just that a dream… but it at least allowed me to feel hope for what is probably the last time in my life.


Sorry for the depressing rambling I am just realizing more and more that I will never have the life I want with this. I get angry at the "normal" people for just talking about their normal life. I just wish I could win the lottery so I could be left alone in my apartment.

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jimmylegs
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Re: Does this aching pain ever go away?

Post by jimmylegs » Sat Aug 25, 2018 1:19 pm

take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

ElliotB
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Re: Does this aching pain ever go away?

Post by ElliotB » Sat Aug 25, 2018 1:45 pm

I want to know what I did so wrong in life to deserve this.

Sometimes things just happen, don't blame yourself. In any case, blaming yourself will not accomplish anything.


I honestly don’t see the point in anything since it will all end in the same place with me unable to work and being fully or partly blind and needing some type of assistance to walk.

There is more to life than working, but please keep in mind that most people with MS can work and out of necessity will choose to work at something they enjoy (while most people work at jobs they hate). ALSO, most with MS don't go blind, don't need assistance to walk, don't loose their mobility and can and do lead happy, relatively healthy, productive lives.

Learn to turn lemons into lemonade!
Last edited by ElliotB on Sat Aug 25, 2018 1:51 pm, edited 2 times in total.

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jimmylegs
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Re: Does this aching pain ever go away?

Post by jimmylegs » Sat Aug 25, 2018 1:47 pm

you took the bait
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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Luongo
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Re: Does this aching pain ever go away?

Post by Luongo » Sat Aug 25, 2018 2:37 pm

Doesn’t actually reference what disease it is. May be a weird copy paste routine they do across many such boards

Rowena
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Re: Does this aching pain ever go away?

Post by Rowena » Sat Aug 25, 2018 2:52 pm

what bait? This is an honest and serious question.

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Scott1
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Re: Does this aching pain ever go away?

Post by Scott1 » Sun Aug 26, 2018 11:44 pm

Hi,
I can think of quite a few different types of pain. Can you explain what the pain you feel is like and whereabouts it feels worst?

The clearer the description the easier it is to make a suggestion. I note you're on a few things already. Not all medications help pain, some just mask it or make you perceive it differently.

Regards,

Rowena
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Re: Does this aching pain ever go away?

Post by Rowena » Wed Aug 29, 2018 7:54 pm

I thought I was clear. The feeling that my heart has been ripped from my chest and I’m having to slowly watch my future die In front of me.

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Scott1
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Re: Does this aching pain ever go away?

Post by Scott1 » Wed Aug 29, 2018 8:31 pm

Hi,

Well, that's not actually pain. I think you have to talk to someone to resolve that. You're obviously very despondent and, of course, your heart can ache.

Don't talk yourself into something or it just might come to pass. There are plenty of us who are living productive lives despite a diagnosis. I've had three children and raised them, held down a job, overcome a lot of spasticity issues and am looking forward to the rest of my days. I have never thought the way you do because no one was ever going to sympathize with me and I knew that as long as I could move about that the game wasn't over.
Prepare yourself for what might never happen. Don't plan for something to happen because I guarantee it will.

Regards,

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