MS is a Clinically Defined Disease

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vesta
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MS is a Clinically Defined Disease

Post by vesta » Tue May 28, 2019 7:01 am

A series of lab tests coupled with a physical neurologic exam have been developed to diagnose MS even though the MD doesn't know what causes it nor how to treat it.

In my opinion the primary virtue of the exams is to diagnose other disorders which need to be treated - brain tumor for example -and in some cases are entirely curable such as Lyme disease. Of course, once diagnosed as Multiple Sclerosis, neurologists often use medications to suppress the immune system reaction (DMDS) which they may consider to be a "treatment", albeit an ultimately unsuccessful one.

Below quote from Wikipedia English MS Diagnosis:
https://en.wikipedia.org/wiki/Diagnosis ... _sclerosis

"Multiple sclerosis is typically diagnosed based on the presenting signs and symptoms, in combination with supporting medical imaging and laboratory testing.[4] It can be difficult to confirm, especially early on, since the signs and symptoms may be similar to those of other medical problems.[5][47] The McDonald criteria, which focus on clinical, laboratory, and radiologic evidence of lesions at different times and in different areas, is the most commonly used method of diagnosis[15]with the Schumacher and Poser criteria being of mostly historical significance.[48] Clinical data alone may be sufficient for a diagnosis of MS if an individual has had separate episodes of neurological symptoms characteristic of the disease.[49] In those who seek medical attention after only one attack, other testing is needed for the diagnosis. The most commonly used diagnostic tools are neuroimaging, analysis of cerebrospinal fluid and evoked potentials. Magnetic resonance imaging of the brain and spine may show areas of demyelination (lesions or plaques). Gadolinium can be administered intravenously as a contrast agent to highlight active plaques and, by elimination, demonstrate the existence of historical lesions not associated with symptoms at the moment of the evaluation.[49][50]Testing of cerebrospinal fluid obtained from a lumbar puncture can provide evidence of chronic inflammation in the central nervous system. The cerebrospinal fluid is tested for oligoclonal bands of IgG on electrophoresis, which are inflammation markers found in 75–85% of people with MS.[49][51] The nervous system in MS may respond less actively to stimulation of the optic nerve and sensory nerves due to demyelination of such pathways. These brain responses can be examined using visual- and sensory-evoked potentials.[52]
While the above criteria allow for a non-invasive diagnosis, and even though some state
[5] that the only definitive proof is an autopsy or biopsy where lesions typical of
MS are detected,[49][53] currently, as of 2017, there is no single test (including biopsy) that can provide a definitive diagnosis of this disease.[54]"

Back to me:

The National MS society gives a good overview of other disorders which resemble MS symptoms which include Lyme disease, Syphilis, PML brain infection, HIV, HTLV-1, Sjogren's syndrome, Vasculitis, Lupus, Sarcoidosis, Behcet's disease, Mitochondrial disease, Brain tumor, Lymphoma, B12 deficiency, Structural damage to brain and spinal cord, Chiari malformation and more. See their site for a full description of these disorders. www.nationalmssociety.org/Symptoms-Diag ... gnosing-MS

I would include Chlamydia Pneumoniae in their list which is treated with several antibiotics by the Whaldon protocol. Unfortunately intense anti-biotic treatment damages the intestinal flora which can cause other health problems.

The first thing my Neurologist tested me for in 1980 was a brain tumour - negative fortunately. The MRI didn’t exist at the time. Thinking meningitus had triggerd the emergency visit to the hospital, a lumbar puncture was performed. It was negative for meningitus as well as MS, though it would have been too early for MS to reveal itself. I suffered the terrible post spinal tap headache and have refused undergoing another one, much to the frustration of my neurologists.

Some observations.

I found the only MRI I underwent (summer 1990) weakened me. I assumed being beamed by a huge magnetic field disturbed my own "magnetic" balance. I might have been much worse off had the gadolinium contrast agent – approved by the FDA in 1998 - been used. I would avoid the Gadolinium contrast agent if one must undergo a standard MRI. Tests have shown that the contrast is not necessary to diagnose MS so why use it when the kidneys could be at risk? (link provided by "violin". https://www.radiologybusiness.com/topic ... rosis-rsna

The one MRI I would love to undergo is the FONAR cinematic upright MRI to see "live" the circulation of my central nervous system fluids - blood, cerebral spinal fluid, lymphatic. No contrast agent is used, though the magnetic field might be disturbing. I now realize my first big attack April 1980 was abruptly halted by a Shiatsu massage at the San Francisco Kubuki Hot Springs because the blood back jet which was impacting the spine ceased. (See Pallis Blog) My spine has never been « photographed » but curiosity isn’t necessarily a good enough reason for getting a standard MRI.

Dr. Damadian, inventor of the FONAR MRI, (not to mention the original MRI for which he was denied a Nobel Prize) has offered free FONAR MRIs to those interested in participating in his scientific study. To enter the waiting list contact the FONAR CORP in New York. They can also direct you to clinics where FONAR MRIs are performed – currently 150 FONAR MRI sites work in the USA, 2 in England, 5 in Germany, 1 in Switzerland.

It is interesting to note that "'structural damage in the spine or spinal cord" is being eliminated as "causing" MS. Actually, in my opinion it is a major factor in defining a form of MS. (See My Seven Steps to MS Health) Emphasis should be placed on the obstruction of cerebro-spinal fluid

What is missing in all official MS discussions is the vascular, fluid circulation obstruction issue which ends by damaging the Central Nervous System.

When Dr Zamboni proposed the CCSVI theory the MS lobby went into panic mode.They didn't want to hear of it, they didn’t want to know anything about it, they did their best to kill it. But it didn’t die, the idea has gone underground and progress is being made on the periphery. I,for one, won’t give up the fight. His idea led me to understand the real cause of MS, that is to say, CNS fluid circulation obstructions. My first healer, the Kinesiologist Dr Jimmy Scott, didn’t figure that out. Rather, he worked with the principle of the free flow of traditional Chinese medicine’s meridien network. It now seems obvious that by freeing the obstructed energy meridiens one can release fluid circulation as well. His treatment began with de-toxification, nutritional supplements, allergy testing, ideal individualized diet, muscle testing and energy balancing to deal with psychological/emotional issues.

My healing success was so dramatic my neurologist Dr A declared I couldn’t have recovered as I had if I had MS therefore I never had it. This was in response to my request to back up his diagnosis during divorce proceedings. While all obvious neurologic deficiencies had disappeared, I still suffered fatigue and poor stress tolerance which handicapped me for normal life. He warned me that an MRI would prove negative which could hurt my case.

Once the divorce was final I asked for an MRI from another Neurologist Dr B. (For a limited time I had 2 health insurance policies.) The MRI was positive for a de-myelinating disease consistent with MS.

My first neurologist Dr A was embarrassed when he read his colleague's report. He asked for permission to obtain the MRI images and became respectful of my history, even taking an interest in the healing protocol which had helped me heal, though since he was an Allopath within a conservative HMO it would have been difficult for him to implement my experience in his practice.

Dr B was unhappy with me because I refused the spinal tap he said he needed to complete the MS diagnosis dossier. I saw no valid HEALING reason to subject myself to that trauma again. The following incident didn’t help our relations.

I received a notice for jury duty. I had served on juries before and am the first to want to honour my duty as a citizen. However, at the time I was under severe life stress and knew I just couldn’t do it without triggering a debilitating MS attack. So I asked Dr B for a letter to excuse me. He refused, saying having MS wasn’t an acceptable reason to be excused from jury duty. I replied that in general that might be true, but I knew myself and at the present time I just couldn’t do it. He still refused. I insisted « The only thing you can do for me is write this letter and I expect you to do it » This infuriated him, he replied that I would have to agree to the spinal tap. He did write the letter but I left the insurance and never underwent the tap.

For me now the main reason to need the MS diagnosis is for administrative reasons – obtaining a handicapped parking card, a handicapped card for free museum entry and first in line service, a wonderful low cost taxi service in Paris. But I consider the Allopathic DMD disease modifying treatment to be not only useless but dangerous. Fortunately I’ve discovered healing alternatives.

To finish, let’s consider the case of a correspondent ("violin" on this forum) who has taken my references to heart and is coming to an understanding of her neurological/health problems. She has been wonderfully informative of current resources in the USA.

A woman with MS like symptoms (not definitely diagnosed) she had suffered an accident many years ago which apparently caused a Chiari formation according to Dr Damadian (He has said that it takes on average 11 years after an accident for the injury to manifest as neurological symptoms.) Ultrasounds of her carotid and jugular veins revealed no stenoses or abnormalities. However, a CT scan by a dental surgon revealed calcification structures which correspond to the location of occluded and abnormal vein valves found in the venoplasty which she had undergone 5 years ago. She underwent the Venoplasty on being told it was as an effective treatment for chronic Lyme disease. The procedure greatly relieved her, though not entirely, and she was advised to repeat the venoplasty within 2 years. So we have numerous tools to uncover CNS obstructions – FONAR MRI, standard MRI, Ultrasounds, X Rays, CT scan, Venoplasty itself, preferably with IVUS intravenous ultrasound (for starters – there may be more but I’m not an MD).

My correspondant was successfully treated with anti-biotics for Lyme disease. Because the same anti-biotics treat the two conditions, she decided against the Whaldon protocol to treat Chlamydia Pneumoniae which has been linked to MS. She has suffered ear infections as well as many dental infections. Also allergies to foods and molds which trigger crises so serious she can"t walk. She wonders if she has Lemierres, which, if you read the Wikipedia description, is a very scary condition. Since the first venoplasty was so successful she looks forward to another. Her best bet might be to get treated in Dr Zamboni’s clinic in Italy if she can afford the expense. I would recommend the CCSVI Alliance CCSVI Alliance www.ccsvi.org/ for up-to-date information of current resources.

So in my courageous correspondant’s case we have structural obstructions (chiari formation), venous obstructions, as well as frequent, multiple infections in the head – teeth, ears, throat.

She was specifically told that jugular vein problems are often linked to infections located above the stenosis which would fit her history.

Conclusion: In my opinion current Diagnosis of MS completely misses the point. The "point" resides in how various known factors impact the (CNS) central nervous system's fluid circulation. Obstructions lead to tissue damage, inflammation, and loss of myelin, all of which define MS.

MSers need to study their own case/history. For starters they can ask their MD to begin the process of elimination of disorders which mimic MS (or ARE forms of MS) such as Lyme disease or Vitamin B12 deficiency before launching into the stressful MRI and spinal tap circuit. (Many well informed MDs already do so.) Also consider a chiropractor if an accident triggered symptoms. I believe one should avoid the panic an MS diagnosis can trigger. It seems like such a terrible scourge until one realizes, especially in the early stage, that a shiatsu massage can stop an attack. Oh, and by the way, I believe people with most of these other "diseases" could find healing relief in following my Seven Steps to MS Health simply because they define good general healing principles.

Previously published on my site https://www.mscureenigmas.net

Vesta

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Leonard
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Re: MS is a Clinically Defined Disease

Post by Leonard » Tue May 28, 2019 8:26 am

Vesta,

You are right: the medical sector does not know what is or what causes MS. But it is a lot worse than that. In fact, they ain’t got a clue what is autoimmunity, what causes autoimmune diseases.

If, at some point in the future we look back at 2019, we will look at it in a way that people looked at the universe before Kepler, where the movement of planets were described by 40 or so superimposed concentric circles around the Earth. In Kepler’s paradigm, this was greatly simplified by putting the Sun in the centre and an ellipse to describe each planet’s orbit. Likewise, in stead of all the multiple pathologies and co-morbidities we have today, we will look at autoimmunity in a much simplified manner i.e. as a virally induced disease that affects permissible cells. The full picture is here: viewtopic.php?f=1&t=15188&start=885#p257234

For most of us, MS is caused by vascular narrowings in the neck (CCSVI) which breaches the blood brain barrier. For other autoimmune diseases, cells may permit viral infection because they lack the right SNPs.

This paradigm change will turn the medical system upside down. Let us just hope that very soon, this new view on chronic autoimmune diseases will be more broadly accepted and an urgent effort to clarify and address the underlying causes will be launched.

Best regards,
Leo

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frodo
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Re: MS is a Clinically Defined Disease

Post by frodo » Thu Jul 04, 2019 1:14 am

Since 2006 four different diseases have been separated from what was before "atypical MS":

*anti-AQP4 (mostly NMO but also other presentations)
*anti-MOG
*anti-Neurofascin
*all the rest cases, much of them still atypical

I would bet that more diseases will be found inside the fourth category.

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