No one knows what's wrong with me.
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Re: No one knows what's wrong with me.
Re: No one knows what's wrong with me.

i wonder if simply taking a break from that high calcium (relative to mag) supplement might help a little, without spending one more penny on any other product until you are in a better position to do so.
re discontinuing b12, i was interested to see some research recently, describing how much more effective oral b12 can be compared to shots. if a little sublingual b12 and no shots would save you any cash, it could be an approach to consider.
re ESR and any other test, 'normal' just means normal distribution of the data, ie the bell curve. health and disease are both represented under that curve. that is why an ESR result can be both normal and problematic at 38.
i can't readily find a magnesium intervention looking at effect on ESR but this study does note an inverse correlation between magnesium status and ESR, ie higher mag seen with lower ESR:
https://www.hindawi.com/journals/jobe/2011/273105/
if you knew your serum mag level as well as your ESR, you could decide whether magnesium might need work, and see if an increase helped lower ESR over time.
magnesium and zinc are not going to be status quo tests but i really feel those would both be worth having done. both could be affecting your day to day experience, and for both a 'normal' result isn't necessarily good enough.
across the board, marginal deficiency symptoms can and do occur within the 'normal' range. ideally, results need to be in the healthiest part of that 'normal' range.
if nobody ever gets around to asking for those tests to be run, or can't be bothered to dig deeper when a result is 'normal', patients can end up with marginal deficiency symptoms for years without ever triggering a red flag from the lab. what could have been actionable results, instead end up in the subclinical 'it's all in your head' roundfile.
recently a connection of mine had zinc tested and in that case, the lab didn't even have a max and min set up for zinc at all. no matter how high or low that person's level had been, the lab wouldn't have raised any red flag to the doctor's attention. luckily in that case the doctor considered the result an issue, and i had a target level in mind. we've been working hard on it since with really positive results so far.
hopefully all that makes sense, and encourages you to push for a couple of unusual tests!!
take control of your own health.
pursue optimal self care, with or without a diagnosis.
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Re: No one knows what's wrong with me.
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Re: No one knows what's wrong with me.
Re: No one knows what's wrong with me.
I'm not really sure what an ANRP is. It's not a term I'm familiar with. Presumably it's some sort of nurse?
The best advice was from the ENT. If you can't get a referral from your doctor, ask the ENT to give you one. That takes you into a different pool of doctors than your GP's network.
Regards,
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Re: No one knows what's wrong with me.
Re: No one knows what's wrong with me.

it would be great to have some evidence of alcohol-induced nutrient depletion if applicable in your case, so that at very least in the best case scenario you could rule those out and get a better sense of what any other underlying issues might be. the magnesium result will be one informative piece of the puzzle.She also kept saying everything wrong with me was to do with my alcohol consumption.
the evidence seems to suggest that that one ^ goes both ways...ie physical condition and nutritional status can affect mental health and vice versaShe was very nice and tried to act like she cared and basically kept saying that if my mental status wasn't good that my physical status wouldn't be either.
sounds like good news, although i don't know much about any pros and cons of conventional liver testing. i think i posted some interesting related research earlier, but will need to review.I had my ultrasound (due to high ferritin serum on blood work a few weeks ago). It hasn't been read by the radiologist yet, but the person who did it has worked there for 20 years and said she didn't see anything wrong with any organs and my liver looked fine which was a relief.
that sounds like a good temporary option. hopefully even just easing off on the higher calcium product could be beneficial without going to immediate extra expense.Jimmy, I thought about one thing today. I have a flexible spending account. It is dwindling down with all these new specialist appointments ($75 each time), but I think the FSA will pay for certain vitamins so I will check into seeing if I can get the magnesium you suggested. I also read that would be good if I have these 2 conditions.
reviewing some older posts:
hi againi'm circling back around to your post of aug 22 here, re
i have already voiced some thoughts on that product in general, and i and wonder if you might consider a break from it,I've only been taking the magnesium for about 2 1/2 weeks. Spring Valley brand: calcium, magnesium & zinc + vit d3 bone & muscle health. Serving size: 3 pills a day. Per serving: D3: 15 mcg, 600 iu. Calcium: 1000 mcg. magnesium: 400 mg. zinc: 15 mg.
quick question - have you discontinued, or are you still using?Spring Valley brand: calcium, magnesium & zinc + vit d3 bone & muscle health. Serving size: 3 pills a day. Per serving: D3: 15 mcg, 600 iu. Calcium: 1000 mcg. magnesium: 400 mg. zinc: 15 mg.
wouldn't be the first time someone was taking something they thought would help, which was instead contributing to health problems
to be more clear: i hope you will consider taking a break from the high cal:mag ratio product until you have a chance to balance out the regimen a littleHi, Jimmy! I am still using the vitamins that I had.
it's sad that for a person so quick to blame everything on alcohol, that she doesn't seem to recognize magnesium depletion as a potential consequence. although research on alcohol induced nutrient depletion in particular seems to suggest she may not be alone in the oversight:Jimmy, I forgot to mention that when I went to the dr Monday, the ARNP told me that Labcorp forgot to take some bloodwork that was ordered and I asked if she could do magnesium. She said that was kind of weird, but she ordered it and I had it done today.
A prospective evaluation of thiamine and magnesium status in relation to clinicopathological characteristics and 1-year mortality in patients with alcohol withdrawal syndrome (2019)
https://link.springer.com/article/10.11 ... 19-02141-w
"... Conclusion
The prevalence of low circulating thiamine concentrations were rare [jl edit: ie all the physicians knew to watch for thiamin depletion]and it was regularly prescribed in patients with AWS. In contrast, low serum magnesium concentrations were common and not prescribed. Low serum magnesium was associated more severe AWS and increased 1-year mortality."
that would be fantastic, we can chat more about specifics when finances allow.I couldn't remember the other one you asked about (zinc) at the time, so maybe we can do that next time.
the importance of vitamin B1 aka thiamine noted above reminds me of an older nutritional regimen for ms which involves a wide array of vitamins and minerals, and places a strong emphasis on thiamine. i was malnourished/misnourished when diagnosed and that older regimen did me a LOT of good in a matter of days if not hours.
recalling some earlier input,
i recall the ms protocol involving more like 100 mg of thiamin 3 to 4 times per day. to edge in that direction, one of many products out there like this one could be a good start, when finances allow. https://newrootsherbal.com/product/id/0892b50 complex (many of the b-vits are depleted by alcohol)
quality multi
magnesium glycinate (mag is vulnerable to depletion by d3 and by alcohol)
high DHA omega 3 (fish oil) could be expected to help out the lipid profile
zinc (will help bring ferritin in line and is also depleted via alcohol use -not to mention smoking)
for contrast, note the thiamine regimen recommended in this alcohol-specific ICU scenario:
Unpeeling the Evidence for the Banana Bag: Evidence-Based Recommendations for the Management of Alcohol-Associated Vitamin and Electrolyte Deficiencies in the ICU (2016)
https://journals.lww.com/ccmjournal/Abs ... g_.14.aspx
"...Based on the published literature, for patients with a chronic alcohol use disorder admitted to the ICU with symptoms that may mimic or mask Wernicke’s encephalopathy, we suggest abandoning the banana bag and utilizing the following formula for routine supplementation during the first day of admission: 200–500 mg IV thiamine every 8 hours, 64 mg/kg magnesium sulfate (approximately 4–5 g for most adult patients), and 400–1,000 μg IV folate. If alcoholic ketoacidosis is suspected, dextrose-containing fluids are recommended over normal saline."
wow! anyway, that's enough for now. hope there's some news you can use. next time i'll get into the bits and pieces i know about the consequences of loading just one element of a vitamin complex long term.
back later, hope you have an okay day!
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Re: No one knows what's wrong with me.
Re: No one knows what's wrong with me.
i look forward to seeing your magnesium result, if you can share when it comes through

take control of your own health.
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Re: No one knows what's wrong with me.
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Re: No one knows what's wrong with me.
Re: No one knows what's wrong with me.
re stopping the supplement, to be clear, i had hoped you would consider taking a break from that particular product because the calcium amount looks too high relative to the magnesium.
when you can, if you can increase plain magnesium in your regimen to get your total supplemental cal:mag intake ratio back below 2 (it is currently 2.5 if memory serves), that would be more in line with recommendations in the literature.
until you can afford to blend it with plain magnesium, a break from your current product could be a good idea.
either or both approaches could be worth trying out, see if you get improvements in any of your symptoms.
great to hear that you might have at least part of the answer to your investigation thanks to the ENT.

in the meantime: https://onlinelibrary.wiley.com/doi/abs ... lary.28546
later i will circle back to the b vitamins but for now, yay re good magnesium status and still having a potential action item to work with

take control of your own health.
pursue optimal self care, with or without a diagnosis.
Re: No one knows what's wrong with me.
https://www.hindawi.com/journals/bn/2016/1801845/
lots of info there, and one paragraph on Nonpharmacological treatment options for VM notes:
"...One retrospective study showed that 14% of 38 patients enrolled reported improvement in symptoms after caffeine cessation [43]"
posibly relevant? :
https://www.caffeineinformer.com/caffei ... -dr-pepper
take control of your own health.
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Re: No one knows what's wrong with me.
Was that glucose test result done after fasting?katybarthedoor wrote: ↑Mon Oct 05, 2020 9:41 amI don't know how I missed this, but it looks like my bun/creatinine was high: 25 and my glucose was high: 126 mg/dl.
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Re: No one knows what's wrong with me.
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