If it's on your mind and it has to do with multiple sclerosis in any way, post it here.
- Family Elder
- Posts: 306
- Joined: Tue Feb 24, 2009 3:00 pm
- Location: North Oregon Coast
I would like to start a antibiotic treatment. The marshal protocol makes some sense but scares the hell out of me. I have seen more sun than most my age and don't want to become a mole. I have ppms take no meds and do nothing except maintain a mostly raw diet without consuming any processed foods. I am healthy but loosing mobility. Drop foot and fatigue being the worst of what I deal with daily. My plan is to continue the healthy diet and add the antibiotics when I find a Dr. that will work with me. My d level is just below normal and feel that the best thing to do may be nothing to change it at this point. I know that many are concerned with calcium issues from low d levels but I think that eating from the garden leafy greens should help stave off loss of bone density. Any thoughts ? Plant a bigger garden... Peace and health MW
- Volunteer Moderator
- Posts: 12070
- Joined: Sat Mar 11, 2006 3:00 pm
heya, just a thought - to me it doesn't make sense to stay low normal in the d3 department. yes there's such thing as too much vitamin d3 but that doesn't mean you should not aim for the zone where all the people with the lowest risk of ms sit - i.e. over 100nmol/L. and take calcium, magnesium, and zinc too to help maintain bone density. PLUS eat an entire bunch of dark leafy greens every day or two
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
- Family Elder
- Posts: 2203
- Joined: Thu Jun 17, 2004 2:00 pm
- Location: Bedfordshire UK
The Marshall Protocol was developed originally for people with sarcoidosis, for which it did maybe have some success.
The trouble is with it, apart from the avoidance of vitamin D is the very low, subclinical amount of antibiotics that are prescribed.
I suggest that you peruse the antibiotics forum here and also dig out a few of the antibiotics threads from the regimens forum. You may also care to look at this site:
where you can contact someone called Reenie, who used to be a moderator on the Marshall site until she jumped ship and realised what she was doing to herself. You can also write to Katman either here or there, but she is having computer trouble at the moment. She started CAP antibiotics for her PPMS and has made amazing progress, recently seen climbing a long ladder to repair their barn roof.
Finally you could do worse than peruse my husband's website:
. As a medical microbiologist he knows more about this than most people.
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.