New to LDN
New to LDN
I spoke with my doctor and he has agreed to prescribe LDN. The question is what dose, 3mg? and what is the proper name. My primary issue is leg spasms. I've had RRMS for 18 yrs. and they have gotten to the point of happening all the time not just at night.
Any help would be appreciated.
Dan
Any help would be appreciated.
Dan
- Algis
- Family Elder
- Posts: 829
- Joined: Sat Nov 21, 2009 3:00 pm
- Location: XinYi District, Taipei City, , Taiwan
LDN is Low Dose Naltrexone. You can find in this section lot of info about it.
Usually it is started with 1.5mg (between 2100-0100) each day for 10 days ('my' experience) - then move up to 3mg for another 10 days and if all goes as planned try to go to the final (well; for most) step at 4.5mg a day.
If at first you wake up in the night; t is expected; try to calm down and go back to sleep; that will pass after few days (it has for me).
Hope tis might help
Usually it is started with 1.5mg (between 2100-0100) each day for 10 days ('my' experience) - then move up to 3mg for another 10 days and if all goes as planned try to go to the final (well; for most) step at 4.5mg a day.
If at first you wake up in the night; t is expected; try to calm down and go back to sleep; that will pass after few days (it has for me).
Hope tis might help
Started on 1.5 mg LDN last night. Leg spasms kept me awake most of the night, very tired this morning. This is nothing new, I go though this from time to time but the main reason I wanted to try LDN is for the spasms. I'll continue at this dose for 10 days then increase it to 3mg. I'll keep you posted.
LDN can be tricky - too much can sometimes cause leg stiffness. My wife was on 3.0 for about a year, and usually had a lot of stiffness in the morning. She is now back on 1.5, and the stiffness is now less. Just FYI - my wife used to get severe leg spasms until she started on the MS recovery Diet along with a regimen of magnesium, calcium, b12, d3, and fish oil.
I agree with Algis to see your doctor. While this is only my 2nd day of LDN, and I'm taking 1.5 mg (I think larger doses may not be suitable for all patients and you can always titrate up after you tolerate 1.5 for a time), I doubt the LDN is causing the spasms at night.
Do you take a muscle relaxant? I'm SP and find the spasms in my legs have gradually gotten worse over the years, even when I was on Copaxone. It varies widely as to the degree of pain. But it's possible your doctor can help but I also think stretching & yoga help my muscle spasms and exercise helps leg strength.
I wanted to try ampyra but my stupid neuro wouldn't let me - so at this point I have to try whatever I can (had to get my LDN out of the country as he wouldn't prescribe that either).
But any worsening of sx, it's time to tell the doc imo.
Do you take a muscle relaxant? I'm SP and find the spasms in my legs have gradually gotten worse over the years, even when I was on Copaxone. It varies widely as to the degree of pain. But it's possible your doctor can help but I also think stretching & yoga help my muscle spasms and exercise helps leg strength.
I wanted to try ampyra but my stupid neuro wouldn't let me - so at this point I have to try whatever I can (had to get my LDN out of the country as he wouldn't prescribe that either).
But any worsening of sx, it's time to tell the doc imo.
- jaspreetdr
- Newbie
- Posts: 3
- Joined: Fri Jun 11, 2010 2:00 pm
- Location: India
new to ldn
Hi all,
I am new to the forum. I am having recurrent transverse myelitis which my neuro thinks could be Devic's disease or PPMS. There is no clear consensus on what treatment will work good for me. So I started myself on LDN. In India it is not available so I crushed and dissolved a tablet of naltrexone and consume an amount equivalent to 4.5 mg. Its been 5 weeks now and I have had no side effects but no improvements either. After how long can I expect to see some significant improvement.
Jas
I am new to the forum. I am having recurrent transverse myelitis which my neuro thinks could be Devic's disease or PPMS. There is no clear consensus on what treatment will work good for me. So I started myself on LDN. In India it is not available so I crushed and dissolved a tablet of naltrexone and consume an amount equivalent to 4.5 mg. Its been 5 weeks now and I have had no side effects but no improvements either. After how long can I expect to see some significant improvement.
Jas
Jas, have you seen CCSVI thread?
There is a person called TMROX who had +ve TM but was tested +ve for CCSVI and got treated ...
There is a person called TMROX who had +ve TM but was tested +ve for CCSVI and got treated ...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
- Max Planck