Tysabri only i try what next ?

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis
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Weneedhope
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Tysabri only i try what next ?

Post by Weneedhope » Sat Dec 19, 2020 5:48 pm

hi all

i like to know what after Tysabri

i am new this game my guess i be live with m.s for over 25 years

is too late 44 now and male i found out last year


what the cards for me

thank you

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Scott1
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Re: Tysabri only i try what next ?

Post by Scott1 » Sat Dec 19, 2020 7:39 pm

Hi,
If you have had undiagnosed MS for over 25 years and now you are 44, then you haven't changed as much as your diagnosis has. Drugs are only one way to deal with MS.
What symptoms do you have now?
What country are in? How were you diagnosed?
Regards,

Weneedhope
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Posts: 34
Joined: Wed Dec 09, 2020 9:37 pm

Re: Tysabri only i try what next ?

Post by Weneedhope » Sat Dec 19, 2020 9:11 pm

hi all i find hard in heat walk
all in 1 year
new and talk not right and small places and numb 24 hours both hands and feet
some times leg and legs get a move by them self
its the frist hit i really can feel or others can see yes dr's too

this the only drug i try to fight it with all i know

mri shown no change



i sould not got this i find ez walk with cane

from aus is too late ? for me i bike all my life

i own rareys bikes in aus i want less stress not good for us

they is a fix in pipeline 7 years time
i clean of all drug before

i need a clear head space thank you
Last edited by Weneedhope on Sat Dec 19, 2020 10:33 pm, edited 4 times in total.

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Scott1
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Re: Tysabri only i try what next ?

Post by Scott1 » Sat Dec 19, 2020 10:07 pm

Thank you for the update.

I'm not sure what you mean by aus.
Apart from the Tysabri, does your doctor prescribe anything else?
Regards,

Weneedhope
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Posts: 34
Joined: Wed Dec 09, 2020 9:37 pm

Re: Tysabri only i try what next ?

Post by Weneedhope » Sat Dec 19, 2020 10:35 pm

i from Australia

when mean 6 to 10 hours a day on bike all my life
when from elite to rock in 1 year i had cat scan or blood work in the time , i given all clear
thank you

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Scott1
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Re: Tysabri only i try what next ?

Post by Scott1 » Sat Dec 19, 2020 11:41 pm

Hi,
I thought you meant Australia but I wasn't sure. So am I.
When you say rock, I guess you mean you are stiff. Is that right? Can you walk? Do you bend forward when you go upstairs?
Are you fatigued?
Regards,

Weneedhope
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Posts: 34
Joined: Wed Dec 09, 2020 9:37 pm

Re: Tysabri only i try what next ?

Post by Weneedhope » Sun Dec 20, 2020 12:17 am

only good part give 1 year i could be bettter i need sell all my gear

i hope i have time i can move i sill in shell shock i give not help from idsn or MS Multiple Sclerosis Support group
i help before others with m.s lack of hope in dr's

i deal 500 year old problem

the drugs are free for us


thank you

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Scott1
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Re: Tysabri only i try what next ?

Post by Scott1 » Sun Dec 20, 2020 12:50 am

Hi,
If you are still moving ok, I suggest you take up an exercise that helps with stretching and strengthening, such as pilates.
Some people do find that a diagnosis really shocks them. Keep trying to do the things you usually do and see what happens.
There are good non-drug books like "The Wahls protocol", a lot of different diets that stay away from added sugar and many different ideas on this site.
The first thing you have to do is get used to the diagnosis. Don't chase after a cure, learn to think about how MS affects you and how you can adapt. Many people live normal lives. Don't become too focused on the negative stories. Things can go wrong but there is usually a number of things to try first.
Regards,

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