Two years are up, now what?

A board to discuss the newly-released drug Tysabri, (formerly known as Antegren) as a treatment for Multiple Sclerosis
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jlmned94
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Two years are up, now what?

Post by jlmned94 » Tue Nov 25, 2014 10:46 am

I have tried copaxone and rebif, but neither one work. Then, I started tysabri. It has worked great, no new lesions or relapses! The bad part is I have hit my two year mark and now have to switch to a new med. Any suggestion as to what might work the same as the tysabri?
Last edited by jlmned94 on Tue Nov 25, 2014 12:40 pm, edited 1 time in total.

jlmned94
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Re: Two years are up, now what?

Post by jlmned94 » Tue Nov 25, 2014 11:55 am

I am also worried about "tysabri rebound". Anyone had any experience with this?

ElliotB
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Re: Two years are up, now what?

Post by ElliotB » Tue Nov 25, 2014 12:30 pm

Why do you have to switch?

jlmned94
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Re: Two years are up, now what?

Post by jlmned94 » Tue Nov 25, 2014 12:34 pm

JVC positive so they said only two years cause after that the risk goes up for getting the virus.

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CureOrBust
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Re: Two years are up, now what?

Post by CureOrBust » Thu Nov 27, 2014 3:41 am

jlmned94 wrote:I am also worried about "tysabri rebound". Anyone had any experience with this?
I have no knowledge or training, however, maybe a daily course of oral prednisone may help? just an idea. Although if you are already JCV positive, it may not be a choice. speak to your doctor.

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NHE
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Re: Two years are up, now what?

Post by NHE » Thu Nov 27, 2014 9:48 pm

jlmned94 wrote:JVC positive so they said only two years cause after that the risk goes up for getting the virus.
Just to clarify, if you're JCV positive, then you already have the virus. The increased risk after 2 years is for PML.

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