ITP. Oh well. I feel that the beneficial effects of the CAmpath are now gone and I am starting to slip back into the progression.
- Getting to Know You...
- Posts: 10
- Joined: Fri Feb 27, 2009 3:00 pm
- Location: Tucson, Arizona
I've had 2 years of infusions, and am 6 months into year 3. So far no relapses, and I haven't done a third dosing course...yet.
Grumpster, I'd report that to the neuro. When you say pseudo relapse what does that mean, something just occurs for a few hours? I'm in Arizona, hot as you-know-what in summer. In the past, I would have minor symptoms like fuzzy eyesight, exhaustion, some uncoordinated movement, but in general it was brief, occurred outdoors at the peak of the hot day, or was later in evening after a long day. This summer, it's been a little different, and these "minor occurrences" are worse. Nothing serious, and again, they're brief. I mentioned the happenings to my neuro and study site, and while they may be new symptoms, they haven't occurred over a long enough time span, so they're never official "episodes" or "relapses". They think it's just my nemesis, the summertime heat.
I may go talk to him. It seems to me that the neuro approach is just managed decline and there is nothing much they can do unless you need rescue steroids for a massive relapse.
- Family Elder
- Posts: 2201
- Joined: Thu Jun 17, 2004 2:00 pm
- Location: Bedfordshire UK
It has caused something of a neurological outcry in Australia. You might be better going back to antibiotics rather than Campath or whatever it is being renamed. I couldn't take Campath because my disease had become too progressive and I am glad that I couldn't because I have not had any sort of MS relapse since 2003, when I started abx.
From what you have written, I cannot see why you would call it a pseudo relapse, as opposed to mini or very mild relapses?
Admittedly, I haven't seen a neuro since the programmed aired, but what do you exactly mean by this? I can see and understand neuros loosing their patients because more of their patient's have now been made aware of possible treatments outside their own current offerings.Anecdote wrote:It has caused something of a neurological outcry in Australia.