Hello,
I was diagnosed with relapsing/remitting MS in April of 2014. I began Tecfidera mid May of that year. This last summer has been rough...numbness, I fell, etc. Had an MRI and found that I had new lesions on my thoracic and cervical spine. I met with a n MS Specialist and after much discussion, labs, etc it was decided that I would start Tysabri infusions.
My first infusion is set for Tuesday Nov 15th and needless to say I am nervous. I just met with my family practice Dr, who is very knowledgeable about MS. He had made the comment that I should make sure my family knows that I will not be in charge of Thanksgiving (this is without me even bringing up that we were potentially hosting), I shouldn't be the one in charge of schlepping a turkey around, making ten pounds of potatoes, etc. He said that I could potentially feel wiped out for a while.
I am nervous...nervous for what I am going to feel like after, the side effects, and all that accompany starting new meds. The Tecfidera made me extremely sick for a good 2 months.
If anyone out there has had experience with Tysabri infusions and can shed some insight I would greatly appreciate it!!
Thank you,
Heather
Question and Info
- euphoniaa
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Hi Heather, and welcome!hbriese07 wrote:Hello,
If anyone out there has had experience with Tysabri infusions and can shed some insight I would greatly appreciate it!!
Thank you,
Heather
I just noticed you had no replies to your question yet, even though there are many people taking Tysabri. I suspect it's because the subject heading isn't specific enough -- and also that it's in the "Drug Pipeline" forum. I know it's a bit tricky to figure out how the forum works at first, so I would suggest that you explore the Tysabri subforum here: http://www.thisisms.com/forum/tysabri-a ... zumab-f11/
If you don't find enough info already posted in those threads, you should ask your question again there, with a subject heading like, "Tysabri question" in order to get more responses. Good luck with your med decision and please feel free to ask as many questions as you want.
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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