Hello

New members should feel free to introduce themselves here
Zyklon
Family Elder
Posts: 347
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Fri Jun 21, 2019 2:39 pm

Small update:

Close to becoming a Q-Grader (arabica coffee grader/expert/gourmet, 5000 in the world, not sure about any with MS)

For 1 week, I was able to wake up and sleep just like a normal person. So I guess it is all psychologic. Almost the same regimen.

Really intense training, lots of effort. My hot tolerance is good, sweating like normal. Walking plenty.

I am ready for my second attack and beyond ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

Zyklon
Family Elder
Posts: 347
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Tue Aug 06, 2019 4:17 am

Nothing to update. Visiting forum almost every day.

Listening Slipknot's new album: "We are not your kind". My vagus nerve is perfectly happy :twisted:
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

User avatar
jimmylegs
Volunteer Moderator
Posts: 12220
Joined: Sat Mar 11, 2006 3:00 pm

Re: Hello

Post by jimmylegs » Fri Aug 09, 2019 4:26 am

enjoy!
https://www.who.int/news-room/q-a-detail/q-a-coronaviruses

take control of your own health.
pursue optimal self care, with or without a diagnosis.

Zyklon
Family Elder
Posts: 347
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Fri Oct 18, 2019 10:43 am

Small update :)

I have been working full time for 1months. It was something that I had doubts about. Tests soon. No regimen change for months.

Daily visiting tims. Take care, stay healthy ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

User avatar
jimmylegs
Volunteer Moderator
Posts: 12220
Joined: Sat Mar 11, 2006 3:00 pm

Re: Hello

Post by jimmylegs » Fri Oct 18, 2019 12:49 pm

congrats!
https://www.who.int/news-room/q-a-detail/q-a-coronaviruses

take control of your own health.
pursue optimal self care, with or without a diagnosis.

Zyklon
Family Elder
Posts: 347
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Mon Jan 13, 2020 1:57 pm

Yeeeeey I have Influenza A/H1N1 aka swine flu. Not much fever, bad cough, sore throat, Rebif kinda hits me more, something is going on with my body but nothing to worry about. Only cough syrup, paracetamol, vinegar.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

User avatar
jimmylegs
Volunteer Moderator
Posts: 12220
Joined: Sat Mar 11, 2006 3:00 pm

Re: Hello

Post by jimmylegs » Wed Jan 15, 2020 4:33 pm

hope you're feeling better! how's the rest of your regular maintenance regimen going, other than the rebif and the current cough syrup, pain killers and vinegar?
https://www.who.int/news-room/q-a-detail/q-a-coronaviruses

take control of your own health.
pursue optimal self care, with or without a diagnosis.

Zyklon
Family Elder
Posts: 347
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Thu Jan 16, 2020 10:57 am

My regimen is almost the same. Tests and yearly MRI in the next month.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

Zyklon
Family Elder
Posts: 347
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Thu Mar 26, 2020 11:41 pm

Covid-19 has kinda messed me up. I almost managed to discontinue citoplaram until 2 days ago. I had 1 major and 1 mild panic attack in the night. I have doubled my dose to 10mg and gonna continue for a few months. I have been staying at home for 9 days. Annual checks have postponed.

Really bored :twisted:
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

User avatar
jimmylegs
Volunteer Moderator
Posts: 12220
Joined: Sat Mar 11, 2006 3:00 pm

Re: Hello

Post by jimmylegs » Fri Mar 27, 2020 3:48 am

hi :) no idea what your regimen and status is like right now, but this trial may interest you:
fft: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6298677/
https://www.who.int/news-room/q-a-detail/q-a-coronaviruses

take control of your own health.
pursue optimal self care, with or without a diagnosis.

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