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NHE
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Re: Hello

Post by NHE » Fri Mar 12, 2021 3:49 pm

Zyklon wrote:
Fri Mar 12, 2021 12:12 pm
I am going to update the English version as long as I have time. Both blogs will be the same.
The connection times out when I try to access the English version. That's why I posted the Google Translate link.

Zyklon
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Re: Hello

Post by Zyklon » Sat Mar 13, 2021 1:53 am

https://livingwithms.me

Sooooory :)

"5 Stages of Grief" is live on https://livingwithms.me/5-stages-of-grief

Full content here:

5 Stages of Grief is a model that is detailed in the book “On Death and Dying” by psychiatrist Elisabeth Kübler-Ross. The author observed that terminally ill (such as late-stage cancer) patients go through an emotionful model. The 5 stages are:

Denial
Anger
Bargaining
Depression
Acceptance


Multiple Sclerosis MS patients may be experiencing a similar experience…

Denial

It starts with the diagnosis. We think that the diagnosis is wrong. Therefore, we take action. Most likely we go to different health professionals. We believe that the first diagnosis may be wrong. We desperately want to escape reality.

Author Experience: Getting the diagnosis at 3 different health professionals.

Anger

When we can’t deny reality anymore, it creates anger. We start asking questions to ourselves such as “Why me?“, “Why did it happen?”, “Why? Why? Why?”.

From my personal experience, the sooner you end the anger stage, the better for your health. It is the most important stage after your diagnosis. In general, science not yet proven the connection between stress and MS. The anger stage is full of stress. Therefore, it is the best time for getting professional help and trust them.

Author Experience: Lots of whys and getting professional help as my neurologist recommended.

Bargaining

Once you are a little bit away from your anger, an interesting stage of bargaining starts. To recover from the situation you start bargaining with yourself and sometimes god. For instance, “I will fix my diet, “I’m going to start gym”, “I will stay away from stress” and similar things to soothe your anger. I believe it is some kind of survival instinct.

More surprisingly, religion and belief may be a factor in the bargaining stage. You may be more faithful and bargain with god. With such bargains, you go away from your anger and somewhat become happier.

Author Experience: Lots of self-bargaining and believing more in god.

Depression

It is frequently observed in terminally-ill patients. When you have a limited time after your diagnosis, you may realize that bargaining does not mean anything. In summary, you ask yourself “I am going to die soon, why such effort?” and that creates depression.

Since MS is not a terminal disease, we have much less such kind of fear and depression. Instead of fear of death, we fear being disabled. If you have started getting help from health professionals, you will deal with the depression stage much easier.

Author Experience: Being distanced from others, continuing sessions with my psychiatrist.

Acceptance

It is the latest stage of the model when we decide to take matters into our hands and accept everything as it is. You become a much more positive person and start thinking logically. Unlike terminally-ill patients, we have lots of things to do.

It is the time that you listen to your body and your soul, discovering MS and researching it. Now you are with another person and starting a journey together. Being in the 21st century, reaching for information is easier than ever. However, you need to be cautious with information. You must do your researches with trustworthy sources. Trust health-professionals and do your own research.

Author Experience: Joining thisisms.com Community. It is one of the best decisions that I have made. Lots of scientific papers, clinical trials, forums reading.

5 Stages of Grief in Summary

Unsurprisingly, we experience some tough times within the 5 stages of grief. It mostly depends on ourselves. You need to wish and take action for becoming better. Because of that, you must stand, calm down, get help and start your journey. MS is not a terminal disease and life is good.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

Zyklon
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Location: Turkey

Re: Hello

Post by Zyklon » Sat Apr 03, 2021 6:28 am

One week ago I was offered Sinovac (China vaccine) and I rejected it since risk/reward was not worth it. Tomorrow I'm going to have Pfizer/Biontech vaccine. I have a slight fear of side effects but Covid-19 is a much greater risk. I will share my experience daily ;)
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

Zyklon
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Posts: 363
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Sun Apr 04, 2021 2:42 am

T0+2: Very slight arm muscle pain, similar to Rebif injection. Nothing else. Not even monitoring anything.

T0+6: Arm muscle pain increases. Some tiredness.

T0+10: Everything same

T0+24: Arm muscle pain is almost gone. Normal daily life...
Last edited by Zyklon on Mon Apr 05, 2021 5:39 am, edited 3 times in total.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

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jimmylegs
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Re: Hello

Post by jimmylegs » Sun Apr 04, 2021 3:37 am

good to hear; hope it continues to go well :) still weeks away from the first shot of two over here, and the second one will be delayed by months. so be it!
https://www.who.int/news-room/q-a-detail/q-a-coronaviruses

take control of your own health.
pursue optimal self care, with or without a diagnosis.

Zyklon
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Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Sun Apr 04, 2021 10:57 am

Thanks, J :) I wish everything going well for you.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

Zyklon
Family Elder
Posts: 363
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Mon Apr 05, 2021 2:43 pm

Something very funny is happening right now. I did my Rebif injection. Feeling much much better now. I somewhat feel Rebif has destroyed the Biontech vaccine :D

My poor antibodies, oh no oh no nonononono
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

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NHE
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Re: Hello

Post by NHE » Mon Apr 05, 2021 10:11 pm

Zyklon wrote:
Mon Apr 05, 2021 2:43 pm
Something very funny is happening right now. I did my Rebif injection. Feeling much much better now. I somewhat feel Rebif has destroyed the Biontech vaccine :D

My poor antibodies, oh no oh no nonononono
That's odd. In the 10 years I took Avonex, I never felt better after a shot. I usually had quite bad side effects that I tried to manage with ibuprofen.

Do you take anything with your Rebif? I've read that it's best not to take any anti-inflammatory meds like ibuprofen with the covid19 vaccines.

Zyklon
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Posts: 363
Joined: Sun Apr 16, 2017 12:45 pm
Location: Turkey

Re: Hello

Post by Zyklon » Tue Apr 06, 2021 3:33 am

I did not take anything after the vaccine. Not even vitamin D3 as a precaution. Only daily magnesium and citoplaram. You are very right about anti-inflammatory meds. T0+48 hours after the Biontech vaccine, no more side effects.

I am very curious about my antibody levels. Maybe I get a test.
Pain! You made me a, you made me a believer, believer
Pain! You break me down, you build me up, believer, believer
Pain! Oh let the bullets fly, oh let them rain
My life, my love, my drive, it came from... Pain!

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