ThisIsMS Rocks!

[bluejay]

Hello; I'm new here. I've visited &/or been a member of a number of MS boards, and I'm very impressed with the level of inquiry and commitment here. I hope, over time, I'll be able to contribute as well as read.

I have SPMS, diagnosed 3 years ago when it was still (barely) RRMS. My history indicates I've had MS for much longer than that, though. I was on Copaxone for a while, now just LDN. I'm still ambulatory, but only for short distances; I use a cane, but will be transitioning to a walker soon.

I'm very pleased to be here!

bluejay

[bluejay]

Just trying out my signature.

bluejay

[Kasuku]

Hi BlueJay,

How long have you been on LDN and at what dose? Do you feel LDN has slowed the progression of MS.

Kasuku

[Arron]

hi bluejay,

Thanks for the compliment and more so, thanks for joining the site and saying hello. We look forward to your participation in the community!

-arron

[bluejay]

Arron, thank you for the welcome!

Kasuku, I've been on LDN for four months now. I started at 1.5 mg, increased to 3 mg, then dropped back to 2 mg because of increased spasticity. Now I'm titrating slowly back up to 3 mg (hopefully).

I haven't had any new symptoms during that time period, but some of the old ones have worsened (probably in reaction to the horrible heat & humidity this summer). Symptoms alone don't say whether LDN is working; I won't know that until my next MRI.

I have had better energy, improved mood and significantly fewer bladder problems since I started on LDN

bluejay

[funstuff]

Bluejay, scarred dosen't begin totell how i feel about this MS. I live in Las Vegas, and yes it get's so HOT in the summer. We have boats, shouldb i never go to the boat doing the summer again.?
Btw. You rock,