while you're dealing with docs and waiting perhaps you can ask for referral to a dietitian. aiming for optimal health while you wait for diagnostics to unfold will only do you good. here's a set of posts that shows a real fast forward through the kind of process i'm thinking could only help you out. http://www.thisisms.com/forum/introduct ... 28969.html
even if all it provides is a sense of control, taking action, doing something positive, it will help you at least feel better emotionally amidst all the rest of waiting and questions regarding the rest
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
There are no symptoms that are unique to MS, there is no test that is specific to MS either. MS is a diagnosis of exclusion. It can only be considered after all the more likely causes for your symptoms have been ruled out.
For instance, lesions, pulmonary embolisms (PEs), oligoclonal bands can be due to vitamin B12 deficiency. Did your family doctor order blood tests for nutrients? Many nutrient deficiencies can lead to symptoms such as yours.
If you have not had the vitamin D blood test called "25-hydroxy D," ask your family doctor to order one for you. It is inexpensive; and you can certainly handle a blood test after all the other testing you have been through!
Do some research on vitamin D deficiency and you will find that it can lead to everything you list – scientists are even linking it to dementia and Alzheimer's today.
Ask for other tests for your magnesium level, your zinc level – these are cofactors involved in the pathway of vitamin D. My suggestion is that you start with nutrient testing. Let us know your test results (the actual numbers!), if you are willing to share them.
Hi Melissa,Mislpn wrote: ...my neurologist wanted to do a spinal tap. It was done in 4/2017 in the radiology department on an X-ray table. I was told to lay flat for approx 15 mins and told to go home and rest. No viral signs taken. I even drove home. Now I have results from spinal showing more than 5 bands. Everything else with the csf showing normal. I need up in ER two days after spinal tap with excruciating head pain that I was close to passing out when I would stand up from a laying position. I was admitted to hospital to have a blood patch done. Had that done by an anesthesiologist and not my neurologist whom never stopped in to see me while I was in hospital and his office was one floor above my hospital room. After blood patch I immediately had severe pain done both legs and buttocks. Nurses and doctors said hmm that's strange. The anesthesiologist that did my blood patch stated that it could have been from my sciatic mere being kicked during the spinal tap my neurologist had done. Funny because that sciatic pain didn't start until immediately after the blood patch procedure and miraculously the head pain from the tap was gone. But the leg and buttock nerve pain wasn't even an issue after my spinal tap.
Welcome to ThisIsMS. When I was diagnosed, I also developed a headache after the spinal tap. I was told to lie down afterwards, but didn't. I suspect that the 15 minutes you lied down was not sufficient. People may need more like 30-60 minutes. In any case, after a week of struggling with the spinal tap headache, which was excruciating, I also had a blood patch done. However, I did not experience any pain afterwards, just relief from the headache. In your case, I suspect that a nerve may have been nicked when the blood patch was done. Or, perhaps the blood clotted in an unusual way and put pressure on a nerve. An MRI of your lumber spine where the patch was done may reveal what's going on. If the sciatic pain doesn't resolve, then go back to the doctor and complain though I really don't know what they could do.
It sounds like your in a position of just having one attack and have the result of being diagnosed as probable MS or what's called Clinically Isolated Syndrome (CIS). The diagnostic criteria for MS is called the Revised McDonald Criteria. See... http://www.nationalmssociety.org/For-Pr ... g-Criteria which states "Diagnosis of MS requires elimination of more likely diagnoses and demonstration of dissemination of lesions in space and time."Mislpn wrote:Is one area in white matter shown on brain MRI result and more than 5 bands showing on csf result along with all the symptoms I have enough to diagnose me with MS?