Looking for advice
Posted: Sat Aug 11, 2018 8:57 am
Hi there!
I'm new to the forum and just wanted to generally introduce myself as well as give me history and ask for some opinions.
Im 30f now but I had my first flare at age 19. Presented with left sided numbness from chest down to toes. It lasted for about 2 months, 3 months until full recovery. About 1.5 years later I had optic neuritis in left eye which lasted for about 1.5 months. At this point I was diagnosed w rrms. I had 3 lesions showing on mri. Between then and until I was 28 I had no relapses. I also have never been on any DMDs. I take vitamin D daily but that is all.
At 28 I had optic neuritis which cleared up after about 1 week (perhaps pseudo exacerbation). No new lesions appeared on my MRI.
I'm now 30 and am currently in my worst relapse. Left sided numbness from my chest down (although this time not effecting my left arm/hand). This started about 2 weeks ago. 1 week ago I began noticing my right hand was feeling weak and now I have very little movement in my hand and right leg also feels weak. No changes in the left numbness.
My question is - based on what I've said here, would you consider my experiences to be relatively mild? I have felt very fortunate over the years not to have had many relapses but I realize this is not necessarily an indication of my future prognosis. Does only 3 lesions seem to indicate a good prognosis for my future? I have always been told that the sensory issues I've experienced up until now were a good indicator that my disease course looked favourable. But now with having some motor function issues, I have some new concerns.
Given that I'm already over 2 weeks into this relapse, would a steroid treatment still benefit me?
I'm also wondering if anyone can give me any clarity on how many people/percentage of people generally move from RRMS into SPMS? I have read 35% of people do and I've also read 90%... I know it will vary but I just can't find any straight answers on this.
I'm meeting with my neurologist on Tuesday but I thought I would post here hoping to talk to some people who would understand until then.
Thanks so much
I'm new to the forum and just wanted to generally introduce myself as well as give me history and ask for some opinions.
Im 30f now but I had my first flare at age 19. Presented with left sided numbness from chest down to toes. It lasted for about 2 months, 3 months until full recovery. About 1.5 years later I had optic neuritis in left eye which lasted for about 1.5 months. At this point I was diagnosed w rrms. I had 3 lesions showing on mri. Between then and until I was 28 I had no relapses. I also have never been on any DMDs. I take vitamin D daily but that is all.
At 28 I had optic neuritis which cleared up after about 1 week (perhaps pseudo exacerbation). No new lesions appeared on my MRI.
I'm now 30 and am currently in my worst relapse. Left sided numbness from my chest down (although this time not effecting my left arm/hand). This started about 2 weeks ago. 1 week ago I began noticing my right hand was feeling weak and now I have very little movement in my hand and right leg also feels weak. No changes in the left numbness.
My question is - based on what I've said here, would you consider my experiences to be relatively mild? I have felt very fortunate over the years not to have had many relapses but I realize this is not necessarily an indication of my future prognosis. Does only 3 lesions seem to indicate a good prognosis for my future? I have always been told that the sensory issues I've experienced up until now were a good indicator that my disease course looked favourable. But now with having some motor function issues, I have some new concerns.
Given that I'm already over 2 weeks into this relapse, would a steroid treatment still benefit me?
I'm also wondering if anyone can give me any clarity on how many people/percentage of people generally move from RRMS into SPMS? I have read 35% of people do and I've also read 90%... I know it will vary but I just can't find any straight answers on this.
I'm meeting with my neurologist on Tuesday but I thought I would post here hoping to talk to some people who would understand until then.
Thanks so much