New member seeking help
Posted: Mon Jan 07, 2019 4:56 am
I am a 41-year old male just recently diagnosed with MS.
My last year has been rough. I suffer from chronic pain due to a bad vasectomy in october 2017.
That left me trying various medications, including high doses of gabapentin.
Sometime during spring 2018 I started noticing a numb sensation in my left hand/fingers.
Since I was in a car crash in summer 2017 the doctors (and myself) ascribed it to a possible neck injurie (prolapse).
In august 2018 I had the vasectomy reversed (several hours operation under full narcosis).
A week after the operation my left shoulder and neck started hurting a lot.
An MRI confirmed the prolapse in my neck. I was sent to hospital for full MS survey.
Unfortunately, this took several months and not until Dec 20 my MS was more or less a fact. The oligoclonal bands from the CSF were still missing though.
On dec23 a strong attack started and i went to the emergency unit.
After many hours of waiting they gave me solumedrol.
As a result of the attack I now have sensation changes in both hands and both feet and my left should is quite weak.
I have been pushing like crazy to start DMT and finally last week they approved me for Ocrevus.
First infusion is in two days and I can't wait to start fighting back the MS.
It has been slowly eating away my myelination for probably more than a year now...
In hindsight, there was probably a mild attack in march/april 2018 setting off the numbness in my left hand.
Then 2nd attach in august 2018 following the surgery.
And finally a 3rd attack in december 2018.
Anyone with 2-3 attacks per year and experiences with DMT?
I am of course researching like crazy, but its a complicated disease and I have only just started looking into it.
Will ocrevus have sufficient "stopping power" to halt the disease now or will there be more attacks?
Thats a tough question, I know .
Another way would be to ask whether there are anything I should add to increase my chances?
I am currently on vitamin B, C, D, fish oil, calcium, linoleic acid (for the chronic pain).
I have ordered ginkgo biloba, magnesium, flax seed oil
Let me know what you think.
Thanks!
My last year has been rough. I suffer from chronic pain due to a bad vasectomy in october 2017.
That left me trying various medications, including high doses of gabapentin.
Sometime during spring 2018 I started noticing a numb sensation in my left hand/fingers.
Since I was in a car crash in summer 2017 the doctors (and myself) ascribed it to a possible neck injurie (prolapse).
In august 2018 I had the vasectomy reversed (several hours operation under full narcosis).
A week after the operation my left shoulder and neck started hurting a lot.
An MRI confirmed the prolapse in my neck. I was sent to hospital for full MS survey.
Unfortunately, this took several months and not until Dec 20 my MS was more or less a fact. The oligoclonal bands from the CSF were still missing though.
On dec23 a strong attack started and i went to the emergency unit.
After many hours of waiting they gave me solumedrol.
As a result of the attack I now have sensation changes in both hands and both feet and my left should is quite weak.
I have been pushing like crazy to start DMT and finally last week they approved me for Ocrevus.
First infusion is in two days and I can't wait to start fighting back the MS.
It has been slowly eating away my myelination for probably more than a year now...
In hindsight, there was probably a mild attack in march/april 2018 setting off the numbness in my left hand.
Then 2nd attach in august 2018 following the surgery.
And finally a 3rd attack in december 2018.
Anyone with 2-3 attacks per year and experiences with DMT?
I am of course researching like crazy, but its a complicated disease and I have only just started looking into it.
Will ocrevus have sufficient "stopping power" to halt the disease now or will there be more attacks?
Thats a tough question, I know .
Another way would be to ask whether there are anything I should add to increase my chances?
I am currently on vitamin B, C, D, fish oil, calcium, linoleic acid (for the chronic pain).
I have ordered ginkgo biloba, magnesium, flax seed oil
Let me know what you think.
Thanks!