My Regimen

Tell us what you are using to treat your MS-- and how you are doing.
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Joined: Fri Aug 02, 2013 10:26 pm
Location: Mississippi

My Regimen

Post by mrsmac2775 » Fri Aug 02, 2013 11:15 pm

After reading several of others' posts, I feel disheartened. I am on a ton of medication for multiple symptoms whereas others are taking next to nothing. However, that being said, what works for one does not work for others, or, the pain medication and others have stopped working for some. I was diagnosed in late 2009 and my regimen is as follows:

Dilauded 8 mg @ 4 times/day - obviously for pain
Primidone 50 mg @ 4 times/day - for tremors in my hands
Baclofen 20 mg @ 4 times/day - muscle spasms
Aubagio 14 mg daily - DMD
Lexapro 20 mg @ 2 times/day - depression
Ativan 1 mg @ 4 times/day - anxiety
Dilantin 200 mg @ 2 times/day - trigeminal neuralgia and peripheral neuropathy
Focalin XR @ 2 times/day - stay awake during the day
Zofran prn - neurological nausea
Amitiza 8 mg - opioid induced constipation
Oxybutnin @ 2 times/day - bladder spasms and incontinence

My 15 year old says I am a walking pharmacy and I know she is right but there is not much I can do about it. Without any one of those things I would lose some particular function. Whether it be my ability to walk, hold a pencil without flinging it across the room accidentally, stay relatively sane, move my bowels, or hold my lunch, each one has a particular necessary function.
Proud Mommy to 2 special needs daughters. Diagnosed with M.S. in 2009 after many years of being told all of my problems were all in my head by approx. 17 different specialists.

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Re: My Regimen

Post by leetz » Fri Aug 02, 2013 11:24 pm

wow...that's a lot of were right..did you ever think of taking milk thistle for your liver? That is a heavy load on your liver girl! Think some people that take a lot of medication also take that to help liver along...(of course you must ask doctor first to make sure it does not interact with your current meds)..hopes of you feeling better! God Bless...
GOD BLESS.... CCSVI treatment Dr. Siskin great doc....symptom's improved for about 3 week's (gait, balance, spasticity) now back to square 1...

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Re: My Regimen

Post by jimmylegs » Sun Aug 04, 2013 3:47 pm

hi and welcome :) that is so much stuff! reminds me of my uncle's box of drugs - every problem on his list could be addressed at least in part by optimizing magnesium status. try reading up on magnesium deficiency, see how many of your symptoms are on that list... could be worth looking into.. mag can be a bit of a toughie but there's tons of info here if you decide to take steps to investigate
take control of your own health
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!

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