It’s probably time to update what I have been successfully doing. The one failure I had was Biotin. Maybe it was the dose, maybe it was a previously unreported interaction but whatever it was the stuff just does not agree with me at all. It’s for sale cheap if you live in Melbourne as I won’t touch it again.
I have had a further series of Botox injections in my left leg. I gained some benefit from the dose six months ago but it only worked in the calf and not the hamstring. I felt at the time that the hamstring shot was selected in a “pin the tail on the donkey” manner. To avoid that this time I went to my massage people and told them draw on my legs where they thought the tight spots were. Everyone had a lot of fun doing it! The next day, as I stood clothed in front of a Professor and six physiotherapists they confidently told me I had wasted my time as they were interested in motor neuron connections not muscles. When I removed my trousers they just stood there until the Professor said “did they do it on the back of the legs?” They could see the concentration of tightness in the hips and which hamstrings were affected and discussed the lines for 10 minutes. Then they did their normal examination for flexibility.
Normally the physios do the site selection and injections. When I lay down on my stomach, the Professor got down on his knees and took charge. He changed the needle size and did the shots himself constantly telling the others why he was doing it a certain way. I ended up with 200ml of Botox across six sites. My impression was it was a direct hit each time and I noticed the hamstring action changed as I resumed exercise. So, stupid as it sounds, if you are having botox find a good masseur and get scribbled on. The doctors won’t acknowledge that it helps them but I think it does.
The other big issue I have had for most of this year is elevated blood pressure. When I was really quite impacted back in February it recorded a high of 197/110 but mostly it was 160ish/90plus. This morning I had it down to 133/71.
My cardiologist knew the MS attack has coincided with my AF and felt he wanted more time before suggesting something to lower the blood pressure but had suggested a calcium channel blocker could be introduced this March.
The blood pressure issue really aggravated me. I had occasional arrythmyia and that can be indicative of elevated blood pressure.
My first task was to understand what was driving it so I read “Nitric Oxide,pathology and parapathology” edited by Louis Ignarro and a range University text books.
My conclusion was that I needed to introduce beetroot juice as a vasodilator and Hawthorn berry for the same purpose. In Australia, there is a chain of juice shops called Boost Juice. I went there and got the girls to make me a mixed juice of beetroot, carrot, ginger and Kale. I went to a compounding pharmacy and got Hawthorn Berry juice and took 2ml 3 times a day. The blood pressure fell but not by as much as I expected and I still had arrhythmia.
After researching I came to the conclusion that I needed to add magnesium. This is also one of Stephen Sinatras big four for congestive heart failure.
After a quick check with JimmyLegs I bought something close to what she suggested as a horse size tablet rather than a powder (see - http://www.ethicalnutrients.com.au/Prod ... vQodl5EM3A
) It was straight off the shelf and I took one on rising and one at midday.
In the evening I still take 5mg of Baclofen. It slightly lowers my blood pressure.
The point is I am trying to regulate the flow of calcium. It is calcium that floods from the sarcoplasmic reticulum that triggers muscles to tighten. Baclofen slows that because it is a potassium channel blocker but I can’t handle too big a dose of it.
So my day now looks like this
2x 1000mg acetyl-l-carnitine
1 tablet curcumin
1 x500mg Valtrex
1 horse tablet of magnesium as described above
1x glass of diluted Pomegranate concentrate
1 or 2 pieces of fresh fruit in season
3x boiled eggs (almost a religious undertaking)
Black coffee and newspapers
1 mixed juice beetroot, carrot, ginger and Kale (heavy on the beetroot)
1x Magnesium horse tablet
Something simple, salady and small
I mixed juice Watermelon, Blueberry and raspberry
Whatever hits the tablet – I have no choice
750mg Q10 (oil base, preferably VitE related)
2x 1000mg acetyl-l-carnitine
1 curcumin tablet
As you can see I don’t obsess about dosages and I don’t do endless tests of where I am. It’s more based on how I feel these days. I do monitor my blood pressure throughout the day because I am conducting a test but I won’t do it for the rest of my life.
I do 3x 1 hours of Pilates each week and would do more except a small class is expensive (and that is what you need). I walk two 9 year old Jack Russell dogs several times a day and threaten to put them in a curry. I always choose the stairs if I have a choice and go to bed at 10pm each night whether I am tired or not. All those things train my body about what to expect.
In addition I take regular, sometimes painful, massages. I endeavor to unlock knotted muscles, open the shoulder blades and release the hamstrings and adductors. Happy to go into detail if required.
I am still recovering but I am so much better. I don’t look or act like I have MS but I know my limitations. Work is not an option as it wrecks that pattern of behaviour. My working day was very intense and I can’t go back to that.
Hope this helps someone.