Of course, I can post my full brain/spine MRI's - I will provide a public Dropbox link or something.
I have an MRI done in Mar 2015, this was after 4 years of no DMD's at all - no prednisone, no interferon, or any of the newer medications.
I will get an MRI done around Oct 2015, to compare. The only difference will be starting on hGH around early July, 2015.
The below excerpt from the following website, pretty much explains my situation - I over did it, and probably suffered a partial relapse. It hasn't got worse, and I also noticed I was bitten by quite a nasty(?) spider, right on the butt - two fang marks. No, I will not post photos of this - and I am unsure what species it was. I need to take a 'moon selfie' and inspect it further, it's in a pretty awkward spot to see. Sorry for the TMI.
I remember 13 odd years ago, I noticed a spider bite on my chest and a few days later my legs went numb. I can't find much information on neurotoxic spider bites and multiple sclerosis relapses, but I'm open to any links or info people may have - it could have simply been triggered by this. It would make perfect sense and was pretty unlucky timing. Regardless, it's minor but it's worth noting.
I wasn't as disabled at this guy, but I was on my way.
The below website was something I found, but I'd consider it 'heresay'. But it's pretty close to my experience. I'll post it for S&G
"Real improvement began, however, when one of his neurologists, at my suggestion, agreed to put David on growth hormone. His blood levels of IGF-1 increased. And his improvement was startling. His eyesight and coordination greatly improved. He had far less fatigue and greater endurance for physical activity. He could walk reasonably well for short distances and was no longer bedbound. He was still leading a very careful lifestyle, and, if he began to overdo things, he suffered a partial relapse, but, by and large, he was a far more functional person than he had been before the start of growth hormone therapy, and this improvement has now continued for more than a year."
Update: It's a pseudo-relapse. The numbness is not new. It subsides in the cooler weather and when I take a day off (take it easy). I got a cold, and an infectious bite from some critter (I'm Australian, we have lots of nasty things like that). I am on broad spectrum antibiotics and things seem to be clearing up super rapidly.
The best thing to do at this stage I figure it ride it out (it's getting better) and wait for the MRI. Otherwise we're all just speculating. Also, with the new technology that the RMH (I've been in studies there, the royal Melbourne hospital, Australia) I may contact my old Neurologist if my first scan is successful, and they can use me as a human experiment. I will happily give up my body if we figure something out. I simply conclude - hGH is something we need to 'explore further' in regards to MS. I've put much worse chemicals in my body before, trust me..
and it was so much fun!