My CtrlAltDel - Status

[shucks]

You guys are inspiring

[Liberation]

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[shucks]

I am holding a battle of the bands and silent auction this Friday to help raise funds. We got a couple local bands to play and a local beer distributor to donate beer and wine. I have know idea how muchoney it will raise but it will be a blast.

[Liberation]

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[Pesho]

Just a quick question. I might find a facility in Bulgaria that could do HSCT. Just wondering if it a good idea to make the procedure in a hospital, where they don't have much experience with it? I'm almost 100% sure I will go to Moscow next year, but it might be a lot cheaper in Sofia.

[shucks]

We had luck getting small donations from companies, but what companies are more apt to donate are gift cards and merchandise to auction off at raffles or silent auctions.

[shucks]

Pesho,
I know that others will say that the procedure is so common now for leukemia that pretty much anywhere can do it. I see stories like Stella's as a caution to use the best facility possible. While finances might make me change, My heart is set on Dr. Burt in Chicago, though it is 150k american dollars. I am nowhere near that in my fundraising, so may have to compromise. Theorists alway have the ability to think big.

[Pesho]

I'm also thinking about donations. I work in a multinational company, just don't want to try and get the money from there. And I might loose my job if they find out, so I rather be ready to be without a job, rather than being surprised. Don't know if anyone had any success with indiegogo, but there are just too many petitions out there . And also, most people won't give money for something that is not accepted as a treatment yet . Also the risk of getting infertile, I don't have kinds yet so it also something I'm thinking about.

[shucks]

I have had the same concerns. I am in a public appointed job and can be bumped for any reason or no reason at all since it is a "higher profile" job, and at 31 years old, I am in the "kid having" mindset myself. OI have been saving vacation time over the last four years to the point I have 12 weeks saved up, andf hope that would cover me for the procedure if I can get the money raised.

[Liberation]

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[shucks]

Dr Burt says the same thing about active lesions. Having a gain in lesion count between different MRIs also qualifies for "active lesions" since there must be inflamation for new lesions to accrue.

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[Pesho]

What is the price of MSC therapy? Only available in Israel with prof. Slavin?

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