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Posted: Tue Jun 19, 2012 12:01 pm
I read your post about antibiotics in Multiple Sclerosis (Vanderbilt Protocol) and I'm curious if the good results you had are mantainning today (or if it was a temporary improvement) and what is your type of multiple sclerosis. In Portugal I think that this protocol it is not known, do you know any good sources of information where I could learn more about it? Are there any recent scientific papers about this issue?
Posted: Fri Jun 22, 2012 10:24 am
Hello AnaMaria, if you are talking to me, yes, I am definitely maintaining my improvements. I had secondary progressive disease of about three years duration and I had had MS as a whole for about eighteen years then.
You could learn more about this by reading the following site: http://www.davidwheldon.co.uk/ms-treatment.html
Here you will find both information and links to papers, which aren't many since neurologists are by and large still welded to the autoimmune idea, in fact the only neurologist who I know is willing to treat in this way is Ram Sriram from Vanderbilt. I was treated by the above David Wheldon, my husband, who is an FRCPath in Microbiology.
Posted: Sat Jun 30, 2012 1:59 pm
This is a question for Sarah ... not sure how to go about this, though.
Anyway, I have had MS for about ten years and am doing fine except for a lot of numbness from the waist down. I have been taking the two mentioned antibiotics for over three years ... did pulse for a number of months, but more recently found that it brought my energy way down. Was not seeing any benefit. I would like to continue taking the two antibiotics but not every day ... maybe one or two weeks per month?
Posted: Mon Jul 02, 2012 7:12 am
Alexi, if you have been taking the three abx for three years and are getting no response when you take the pulses of metronidazole you should be able to go intermittent by taking two weeks of antibiotics and two weeks off. That is what I did.
You only mention taking two antibiotics, though: what are you taking?
Posted: Wed Jul 04, 2012 1:05 pm
Thanks for your prompt response! I had to dig up some calendars from previous years, so it has taken me a bit longer.
Apparently, I have been taking the antibiotics from at least 2007 ... pulsing for about 12 months from 2007 through most of 2008. In early 2009, I retired to my college town in Bloomington, Indiana. Since then, I have only pulsed a few times and found the effect it seems to have on my energy level to be unacceptable. I hadn't noticed any significant side effects when I was pulsing in 2007-2008. Sometime after I began taking the antibiotics I had a brain scan and no active lesions were found, so I continued with the abx. I now take azithromycin and doxycycline, and also Copaxone which I have taken all along. Very confusing! I haven't been speaking in the forums because I really haven't had any useful information to share.
My question is ... would it be worth taking the two antibiotics two weeks of each month and not take flagyl at all?
Sarah, I've enjoyed your paintings on the Web; having been an art major so long ago, I have been trying to get back to painting myself. Alexi
Posted: Thu Jul 05, 2012 10:10 am
Alexi, I don't know: I don't know if anyone does! Some people take minocycline for immunomodulation and some people take doxycycline for the same reason. They take it every day, though. On the other hand, I don't take anything ad am far from getting worse, so I think it is up to you.
I'm glad that you like my paintings: I'm doing some large pen and ink drawings at the moment, of a metaphysical nature!
Posted: Tue Dec 23, 2014 6:54 pm
Hi Sara. I wonder if you're still online the posts date back to 2012. I'd like to know if you have heard of any physicians in Canada who are knowledgeable of anti Chlamydial treatment. Thanks
Posted: Tue Dec 23, 2014 6:57 pm
Sorry I forgot to mention that I have MS and I'm looking for AB therapy. Do you know any doctors in canada? Or alternatively, will Dr. stratton work with a GP in Canada? Thanks. Ella
Posted: Wed Dec 24, 2014 10:28 am
Ella...you can find Sarah at CPn Help
(note that's CPn Help...all one word...this site won't allow links to it)
Posted: Fri Dec 26, 2014 7:26 am
Hello Ella, I am here!!
If you type in Charles Stratton, Vanderbilt, yu will find his contact page which gives his email address. As far as I know, there is no reason why he shouldn't work with a Canadian GP. Canadian GPs. lke everywhere are still very thin on the ground as far as prescribing this treatment, which annoys me intensely.
If you join CPn Help, though, you will get lots of advice. Just type CPn Help, all in lower case into Google and the site comes up straight away! The site is now run by an other old hand, Mackintosh and I am there quite regularly.
Posted: Thu Feb 25, 2016 12:58 pm
I was diagnosed last fall (2015). I'm am not bad, but the "jolts" in my left leg have gotten more frequent and interfere with running and slow down my walking. I also have a generalized decreased sensation on the skin on my entire right side. These symptoms are due to lesions in my neck. I went to see Dr. Sriram at Vanderbilt on Feb. 4, 2016 and would not give me antibiotics. He said they would not help me. I'm not sure what to do next. I'm not bad, but my symptoms worsened in December, 2015 and I worry about the future.
Posted: Thu Feb 25, 2016 2:10 pm
Lynn56 wrote:These symptoms are due to lesions in my neck. I went to see Dr. Sriram at Vanderbilt on Feb. 4, 2016 and would not give me antibiotics. He said they would not help me.
Did he give you a reason why he though they would not help you? I would of thought that if he believed in the theory, that although they may not improve your current damage/symptoms, they would at least slow or halt new ones from occurring.
Posted: Sat Feb 27, 2016 8:48 am
Lynn, did you ask him why they wouldn't help you? What did he suggest instead?