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A forum for the discussion of antibiotics as a potential therapy for MS
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mom10789
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Post by mom10789 »

robbie
dud you ever get tested for lyme besides the ELISHA TEST
do your arms hurt
shell
robbie
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Post by robbie »

dud you ever get tested for lyme besides the ELISHA TEST
no
do your arms hurt
not at the present but i remember that my elbows use to hurt bad in the early days.
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
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mom10789
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Post by mom10789 »

are you still in alot of pain
were you outside alot
did you hunt dear
shell
robbie
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Post by robbie »

are you still in alot of pain
Yes legs mostly
were you outside alot
Yes all of my life always worked outside, farming mostly
did you hunt dear
Yes from 16 years old till i couldn't anymore
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
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mom10789
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Post by mom10789 »

how long ms
anyone talk to you about lyme
or a co-infections
shell
robbie
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Post by robbie »

how long ms
15 years
anyone talk to you about lyme
or a co-infections
Got a lyme doctor in the beginning and he ruled out lyme but wanted me to start on doxy because of a stomach parasite that he said I had and it would eventually become very bad for me if left untreated. This was a doctor that was considered a quack by his peers. He believed in the non-conventional diseases(lyme,paracitic infections ect.) and sickness that people have, he really took into account your past and your lifestyle and history. At the same time as this doctor was telling me to take doxy I also had a what I was told an excellent neurologist who said you have multiple sclerosis and I want you to start beta interferon right away which was the new hope in ms research.
Hear you have a doctor whose opinions and recommendations are not even acknowledged by the main stream medical community and the well revered neurologist with the big fancy desk and the office full of medical books.
After all the reading I do now 15 years later I wish I had stayed with the quack and the doxy. I really think I made the wrong decision; it's starting to haunt me more and more.
Had ms for 28 yrs,
8.5 EDSS
SPMS, 54 yrs old
Taking it day by day
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mom10789
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Post by mom10789 »

when i was told i had ms, ifelt alot of relief cuz i wasn't crazy but.........
i'm really scared
too be honest i never read alot but i'm sure taking a crash course
i've always lived along the st lawrence river apparently tick haven
robbie pm tory
i know everyone talks about cpn but i think lyme may be involved
now i'm really scared and i hurt alot
shell
MacKintosh
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Post by MacKintosh »

Shell, Nothing to be scared of. This protocol will take care of Lyme disease, as well as cpn.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
SarahLonglands
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Post by SarahLonglands »

Yes, don't worry Shell, as Mac says, these abx take care of both Cpn and lyme. They were picked for that purpose.

Robbie, your story is interesting, but all those years ago, even the best quack in the world would have been unlikely to have given you the doxy for long enough. You might even, with relapsing remitting disease, have appeared to be getting better, but then a relapse would have made you think that it just wasn't working. I know someone with CFS and arterial disease who stopped too soon because he thought he was doing so well. A couple of months later he had a stroke, whilst still in his thirties.

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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