Born out of our experiences (no pun intended) here at This is MS, where a wonderful community has formed based (originally) on shared and common experience, the Experience Project extends that reach of reassurance and wisdom provided by people who have "been there before" to all people and all experiences.
Specifically, while MS can certainly shape a person, it does not *define* them-- each of us are complex individuals with thousands of experiences that make us who we are, of course one of the most potent being our experiences with Multiple Sclerosis.
Each one of those experiences would be worthwhile to record for your own history, the therapeutic effect of writing, and the benefit it could provide to another who is just now facing something you have already been through (and survived). Your experiences will undoubtedly help countless others.
Participation is of course absolutely free. We have been working passionately on this project for a long time, and really believe in its potential to help others. Taking a few moments to share your experiences with the MS therapies you have tried will help us make that a reality.
Share Your Statin Experiences
Read Others' Statin Experiences
I am thinking that I will be a bad patient and I will take some Lipitor even if I am in the study (the drug is not contraindicated) if this new drug can't give me what the lipitor did in the past.
Now I wonder if I will ever get that effect again.
Look after yourself as a first priority, and take the lipitor.carolew wrote:What will I do if this new drug doesn't do all that Lipitor does for me
I hope to go onto the trial for this as well. I plan to keep taking the lipitor, and if this stuff works, I would expect to be doing even better.
The researches have told you there are no contraindications, and from my understanding they work on totally different biological mechanisms.
By stopping the lipitor, if you go downhill, there will be no way to tell if it doesnt work at all. It may just not work as well for you as lipitor. I think the real test is if it helps you more than not taking it. ie while still on your existing regimine.
Seriously, look after your health as a first priority.
I am not sure it works the same for everyone but it does magic for me.
Thanks CureorBust: I agree with you. I may just stay on it since it is not contraindicated but the FTY720 and the lipitor both affect the liver. So I would really have to watch my liver function tests.
By the way, TODAY, I saw the neurologist and they gave me 3 months supply of the study drug. OH WHAT A FEELING !!!For the first time, they are accepting me into a study. WOW. Finally
I could be on the placebo but I sure hope not.... I feel like I have my lipitor to fall back onto if needed but I would prefer to really have something active.
My first dose is in 3 days.... drum roll.....
Take care all, I will keep you posted.
But my main question is about red rice yeast, which contains the natural form of the active substance in statin drugs. Has anyone tried this form, and what have been the results? Any advice on dosage, etc.?