Fed up now!!!!!!!!

[MoJo]

I am fed up now!! I know i shouldn't really complain as I have had a pretty good few months, as far as symptoms go! I won't go into the copaxone disaster - that's a whole other story!!!!

I have had 3 weeks now of muscle spasms in my legs which have meant going back to using my walking stick!!!!!! This is making my job even harder as I work in a classroom with 5-6 year olds! Also I have been having episodes of the so delightfully named MS Hug - whoever thought up that name had obviously never experienced it! I feel like I am losing my mind as I keep forgetting what I am saying and if someone says something to me I have forgotten what it was in 2 minutes time!!!!

I know I shouldn't complain as there are people far worse of than me, but I guess I am just tired and had enough now!!! This is so not like me that I am angry with myself for even feeling like this!!!! Sorry to whine but I just need to let of steam somewhere!!!!

[growing2boys]

Hey Mojo,
I'm the mom of a 4yr old & 5yr old. I can't imagine a room full of them during a relapse! YIKES

How about drugs? I was anti-drugs before this major relapse, but now I am a serious addict. Provigil? Legal meth for MS'ers. Clears your mind, gives you this super human alertness. I love it
Lyrica? Doesn't do a darn thing for spasms but give you a real nice feeling of generalized happiness. LOL

Good luck to you. I know it sucks & not many people understand. At least everyone on here does!
Sarah

[MoJo]

Hi Sarah,

I haven't heard of either of those two drugs but I am no stranger to medication! I am on Baclofen, Gabapentin, and my neuro has just added Tegrtol(carbamezapine) to the list! I am also due to start Avonex injections on the 15th April!! Very scared about that!

Thankfully we have 2 weeks easter break in the uk so I only have my own 9 and 13year olds to deal with!!!!

Thanks for the support, I really appreciate it right now!

Jo xx

[Bam]

I am no longer working now due to disability, but was a teacher with adult mentally ill for 4 years. I was loosing it! besides the physical sxs, I lost concentration, train of thought, blanked out. I finally had to give up my career and became so lost. Didnt know who I was anymore. I have found that I know God has something better in store for me, and that is what I have to hold onto.

[Bam]

Providgal is like meth? wow, I am glad I turned it down, I dont do well with even caffeine! lol. I am on copaxone but am not likeing idea of injecting something into my body, not the needle that bothers me, just the chemical anyway, tried the neurontin, made me like an alzheimers pt. I wanna know, anyone else can chime in, WHAT IS THE PROBLEM WITH DOCTORS AND PRESCRIBING A GOOD OLE NARCOTIC PAIN MED???? IMEAN, THIS IS HOW I SEE IT. THIS IS A LIFELONG CHRONIC ILLNESS, YES, I MAY GET ADDICTED TO IT, BUT SO WHAT???? AM I SUPPOSED TO SUFFER JUST BECAUSE OF THAT???? MY NEURO DOESNT WANT TO GIVE ME ENOUGH REFILLS TILL MY NEXT APPT, WANTS ME TO CONTACT THEM, THEN I GET LOST IN THE SHUFFLE. ALL I WANT IS SOME SECURITY, ASSUREDNESS THAT IF I AM IN PAIN, I AM GONNA HAVE MY MEDS . NEVER ABUSED THEM YET OR RAN OUT BEFORE MY SCRPT WAS UP. I HAD A SEIZURE LAST WEEK AND NO EEG HAS EVEN BEEN SCHEDULED. I AM PUT OUT WITH THIS DOC I HAVE HAD FOR 4 YEARS NOW, ALL SUDDEN I AM NOT BEING TREATED AS NEEDED. I am sooo tired of explaining or trying to what I can express and remember, to an office full of staff who dont know which end is up. So frustrated and scared.

[jimmylegs]

vit d3 and magnesium glycinate can take on some forms of pain, mag is also good for muscle spasms.