HAS ANYONE TAKEN TYSABRI WITH POSITIVE RESULTS

A forum to talk about the general challenges of daily life with MS.
Post Reply
amitsachdev1
Newbie
Posts: 4
Joined: Tue Jul 24, 2012 1:50 pm

HAS ANYONE TAKEN TYSABRI WITH POSITIVE RESULTS

Post by amitsachdev1 »

I AM BEING PUT ON TYSABRI BUT I AM SCARED OF THE SIDE EFFECTS CAN YOU PLEASE SHARE YOUR TYSABRI STORY WITH ME.
User avatar
euphoniaa
Volunteer Moderator
Posts: 798
Joined: Sat Jul 15, 2006 2:00 pm
Location: midwest U.S.
Contact:

Re: HAS ANYONE TAKEN TYSABRI WITH POSITIVE RESULTS

Post by euphoniaa »

amitsachdev1 wrote:I AM BEING PUT ON TYSABRI BUT I AM SCARED OF THE SIDE EFFECTS CAN YOU PLEASE SHARE YOUR TYSABRI STORY WITH ME.
Hello amitsachdev1, and welcome!

There is an entire subforum here at ThisIsMS devoted entirely to Tysabri threads & discussions, so you should definitely check it out. Here's the link to make it easier to find (I hope):
http://www.thisisms.com/forum/tysabri-a ... zumab-f11/

There are also separate subforums on all the other MS meds and treatments. I know it takes some time to figure out how to navigate through the areas here, but there's lots of information and people to help once you do. Make yourself at home! :smile:
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
vbeachy
Newbie
Posts: 1
Joined: Mon Jul 30, 2012 4:37 am

Re: HAS ANYONE TAKEN TYSABRI WITH POSITIVE RESULTS

Post by vbeachy »

Yes, I have taken Tysabri for nearly 6 years and I am JCV positive.

Prior to Tysabri I was using a wheelchair and brain cognition was a severe problem. I am now walking without crutches or a cane and I published a 240-page memoir in 2011.
amitsachdev1
Newbie
Posts: 4
Joined: Tue Jul 24, 2012 1:50 pm

Re: HAS ANYONE TAKEN TYSABRI WITH POSITIVE RESULTS

Post by amitsachdev1 »

vbeachy wrote:Yes, I have taken Tysabri for nearly 6 years and I am JCV positive.

Prior to Tysabri I was using a wheelchair and brain cognition was a severe problem. I am now walking without crutches or a cane and I published a 240-page memoir in 2011.
THANKS for your feed back. It really helps
User avatar
Bender
Family Elder
Posts: 109
Joined: Tue Oct 26, 2010 2:00 pm

Re: HAS ANYONE TAKEN TYSABRI WITH POSITIVE RESULTS

Post by Bender »

I felt amazing on Tysabri, my sight became clearer immediately (I didn't even realize before that it had blurred at all) I was sharper, I had more energy. I still think it was basically the greatest thing ever.

Unfortunately I developed an allergy to it within 6 months, but from what I understand this is relatively rare, and because you're at the hospital when they do it, and they will be able to test you for the antibody before you next dose, it's not dangerous, just irritating that I cannot stay on it.

Of the drugs I've been on Tysabri was imo the best, I'm hoping someone comes up with something similar that is different enough to trick my immune system.
Post Reply
  • Similar Topics
    Replies
    Views
    Last post

Return to “Daily Life”