Something positive

A forum to talk about the general challenges of daily life with MS.
Post Reply
User avatar
Punchy
Family Elder
Posts: 193
Joined: Tue Mar 06, 2007 3:00 pm
Location: Toronto, Canada
Contact:

Something positive

Post by Punchy » Fri Sep 12, 2014 5:47 am

All I do on here is vent or complain, and love that I van do that here, but for once I can post something positive.

I received results from my recent MRI and they were pretty good. Less lesions than 3 years ago, to start. I realize the presence or absence of lesions doesn't necessary indicate much as far as disease progression goes.

However, when I was diagnosed 7 years ago they found a large lesion on my brain stem that they correlated to the intense vertigo I experienced in my second relapsed. They also hypothesized that its position could also be the responsible for the unusual hemisensory parasthesia I was experiencing. We called the lesion "Big Bad" and I experienced two more relapses of vertigo and parasthesia. I also gave up driving out of fear of vertigo suddenly striking.

Big Bad hung around for 7 years, but I'm happy to say that as of last June, he has effed off and disappeared. I am going to claim this as a victory!

User avatar
DougL
Family Elder
Posts: 384
Joined: Mon Jul 11, 2011 2:00 pm

Re: Something positive

Post by DougL » Fri Sep 12, 2014 6:56 am

good to hear

User avatar
Punchy
Family Elder
Posts: 193
Joined: Tue Mar 06, 2007 3:00 pm
Location: Toronto, Canada
Contact:

Re: Something positive

Post by Punchy » Fri Sep 12, 2014 8:13 am

Thanks! I should note that I am meds-free, other than a year on rebif about 6 years back.

ElliotB
Family Elder
Posts: 1921
Joined: Mon Feb 03, 2014 4:08 pm

Re: Something positive

Post by ElliotB » Fri Sep 12, 2014 9:58 am

Congratulations on your progress! I will add my little bit of positive news to yours. My balance has been affected as well and I am doing so much, much better these days. I like to bike ride and last year I bought a 3 wheel bike. I think my balance has improved enough to the point that I can ride a regular 2 wheel bike. I bought one last week and it was delivered yesterday, and will be trying it out hopefully by Sunday (with a helmet) once I put it together.

Feeling better feels soooooo good, doesn't it! (Something most just take for granted.).

THX1138
Family Elder
Posts: 725
Joined: Tue May 14, 2013 2:00 pm

Re: Something positive

Post by THX1138 » Fri Sep 12, 2014 11:05 am

We need a lot more positive news to be announced at TiMS.

I would like to see a dedicated topic with multiple subtopics telling of how people have gotten better. And this is important - specifically how they did it. Vague descriptions of how one has improved, while being positive, leave others with an often daunting challenge to mimic the actions that were found to be helpful.
Descriptions of how one has achieved temporary symptom improvement and/or long term improvement would be of great value to TiMS members and anyone who visits TiMS.
Last edited by THX1138 on Fri Sep 12, 2014 3:12 pm, edited 1 time in total.

User avatar
Punchy
Family Elder
Posts: 193
Joined: Tue Mar 06, 2007 3:00 pm
Location: Toronto, Canada
Contact:

Re: Something positive

Post by Punchy » Fri Sep 12, 2014 11:20 am

That's a great idea THX. I realize mine is vague (because honestly, I've done nothing) but anything that can inspire hope is important.

We take whatever victories we can.

ElliotB
Family Elder
Posts: 1921
Joined: Mon Feb 03, 2014 4:08 pm

Re: Something positive

Post by ElliotB » Fri Sep 12, 2014 11:28 am

"specifically how they did it."

The problem with this is that there is really no way of knowing what actually causes someone to improve. Some people do nothing and improve, others do everything possible between meds, diet, exercise, etc. and don't improve and/or get worse. MS is a very complex and unpredictable illness. And what works for one may not work for another.

But I do like your idea!

THX1138
Family Elder
Posts: 725
Joined: Tue May 14, 2013 2:00 pm

Re: Something positive

Post by THX1138 » Fri Sep 12, 2014 3:09 pm

The problem with this is that there is really no way of knowing what actually causes someone to improve.
I see your point.
I think that is all too frequently the case, but not always.
For example, I can say without a doubt, that magnesium makes my muscles less spastic and more relaxed and much less hyper-reactive. I have witnessed the worsening of symptoms with reduced Mg intake and improvement of symptoms with increased intake. I have also noticed worsening of symptoms with consumption of things that lower Mg levels such as calcium and alcohol. These relationships are not unique to me but are, instead, established facts regarding Mg.

Post Reply
  • Similar Topics
    Replies
    Views
    Last post