I was diagnosed with ms almost exactly a year ago at the age of 25. And there have been many changes within this year. I think the diagnosis was actually a relief to me because I felt like I actually had an answer for what has been going on with me and I could now more forward and start treatment.
However, shortly after the diagnosis I began having severe electrical shocks all throughout my body. I was put on 1000 mg of IV prednisone for 3 days. During this time I also developed optic neuritis as well as several other issues. Luckily I started taking copaxone within the next few days (on my birthday).
Then a few months past and everything was going as well as could be expected. I ended up getting engaged to the most supportive man I could have hoped for. But 2 days after our engagement party I ended up in emergency due to the electrics shocks again, this time to have 1000 mg of IV prednisone for 5 days. MRIs showed a new brain lesion that took up a quarter of my brains size.
I know that I'm quite lucky that the ms doesn't affect me as much as it could. The only thing that I really have to worry about is sever fatigue and pain occasionally. But I think all the ms related issues, the stress of planning a wedding, and the changes that may come are all really getting to me.
I don't feel like my old self anymore. I'm constantly tired. To the point where I'm in tears cause I don't even have energy to get out of bed. Ive gained about 30 lbs due to the prednisone, a large decrease in physical activity, and a poor diet. I just don't think I'm the fun person I use to be. I feel like I'm struggling and losing hope. I cry constantly over the stupidest things and I feel like it's unfair to my fiancé.
I guess I just want to know if it gets better.
(I was trying to keep this short hahaha)
if you were to get a referral to a nutritionist they may ask for something similar, three day diet diary. two days out of the house, one at home. to approximate standard work week and weekend.
info to consider: http://drugs.wellitude.com/2012/02/05/prednisone/
chin up you have some control here!!
pursue optimal self care at least as actively as a diagnosis
ask for referrals to preventive health care specialists eg dietitians
don't let suboptimal self care muddy any underlying diagnostic picture!
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